capecitibine

[Iwouldlike2knowmore]

Hello, Is anyone on Capecitibine and how are you doing. Helena

[Julie2233]

I was on it for 3 months, didn’t experience any horrific side effects. I developed deep water blisters on the soles of my feet and red swollen hands. It works well for a lot of ladies and if you get bad side effects the dose can be reduced.

[Iwouldlike2knowmore in reply to Julie2233]

Why for only 3 months

[Julie2233 in reply to Iwouldlike2knowmore]

I’m afraid it didn’t work for me but nothing has since ibrance and faslodex, I am the exception to the rule so don’t let my experience dishearten you. It’s an effective drug.

[Iwouldlike2knowmore in reply to Julie2233]

capeceitibine

[Iwouldlike2knowmore in reply to Iwouldlike2knowmore]

capecitibine

[Iwouldlike2knowmore in reply to Iwouldlike2knowmore]

I was on Ibrance and Fasolodex and they quit working for me.

[MyMiracle13]

Hi. I started Xeloda in October. My oncologist and I decided to try metronomic dosing (low dose but continuous.) In October til mid-November, I was on 1000 mg daily (500 mg in the morning and 500 mg at night.) Tumor markers still went up. So the dosage was increased to 1,500 mg daily (1000 mg in the morning and 500 mg at night.) Happy to say that when I had my blood tests done yesterday, the tumor markers decreased by 30%. I am happy with the metronomic dosing because I do not experience severe side effects. I suffer from mild tummy upset from time to time but not from hand/foot syndrome. I hope the Xeloda will work for you too! Maria

[8576 in reply to MyMiracle13]

That is great news. I am supposed to try Xeloda next and I am worried about the side effects.My Oncologist is going to start me on 1000 mgs. also. I didn't have much luck on Ibrance and Faslodex, in one year. By November I had had two slight progressions and I wanted to keep trying it rather then go to Xeldoa. I have a CT scan coming up on Monday to see how I am doing. Fingers crossed. I am starting my 10th year with MBC. My cancer is described as being very indolent so I have had a good run so far.

Cheers, June S.

[MyMiracle13 in reply to 8576]

Wish you luck on Xeloda. I actually find it easier on me than Ibrance. My WBC is in normal range even if I do continuous dosing.

[8576 in reply to MyMiracle13]

Thanks for the encouragement. I sure need it right now.

Cheers, June S.

[Lnlc in reply to MyMiracle13]

Hi My Miracle and everyone else! Glad to hear this. After my recent PET scan showed the cancer on the move, oncologist decided yesterday to try the Xeloda metronomic dosing. I'd been successful with the regular dosing of Xeloda in the past and we're going back to it in this different protocol. So happy to hear that SE may be easier as Verzenio was challenging. Thank you and happy and HEALTHY new year ! Ellen

[Lnlc in reply to Lnlc]

And PS - when I was on Xeloda in the past, had very few difficult SE. I remember my feet were rough and calloused but absolutely fine (an initial concern for me as I dance) and no problems at all with my hands.

[MyMiracle13 in reply to Lnlc]

Hope you will be successful with the metronomic dosing. What’s your dose?

[Lnlc in reply to MyMiracle13]

Hi! Will likely start this week. Oncologist says it will be 650 mg twice a day with no 4th week break --

[MyMiracle13 in reply to Lnlc]

Yes that was supposed to be my dose too but here in the Philippines, the only available tablets are 500 mg so I’m forced to take 1500 mg a day.

[Lnlc in reply to MyMiracle13]

And how has that been going for you? Has the cancer (tumor makers, pet scan) responded? How about the SE? Thanks! Ellen

[MyMiracle13 in reply to Lnlc]

Happy to say tumor markers went down 30%. Have not had pet scan yet because I had wbrt in August. follow up MRIs have shown decrease in brain lesions. I am having SRS done tomorrow to remove the remaining “larger” lesions.

[Lnlc in reply to MyMiracle13]

So happy for you -- may the good fortune continue!

[Topood]

Xeloda has been very good for me so far....after a month and a half all my tumors and lesions had shrunk by about 20%....will learn about my (very very high when last checked) tumor markers in a couple of weeks. I’m taking 3000 a day for a week, then off for a week. My finger tips and nails are not happy, but I’m getting by with New Skin and a lot of lotion...no problem with my feet. I was having diarrhea but take an Immodium every morning now and that has taken care of it! I hope you have good luck too!! I really like this drug. I’m even gaining some of my weight back!

[8576]

Thanks Sandra. I am a little apprehensive as I had progression twice over two scans in a new area in my left lung. So it is a bit of a stretch to think this one wk. on one off will work but I wanted to try. I may end up on Xeloda next week. Not looking forward to that but I do appreciate all the positive reports on managing the side effects. It is what it is. I am in dire pain right now, that I am blaming on the last Faslodex injection I got. I have never had a problem in a year of getting these injections. The pain occurs when I stand and put weight on my right side. The other side is ok. The pain has worsened since the injection Dec. 21st. Now it is very bad. I am taking my regular pain meds, 1 Oxycocet in the morning plus an Advil recommended by the oncology nurse and in the afternoon around two another Advil plus one at night with Lyrica. Twice or three times a day rubbed with Voltaren. Also heat applications every once in awhile. Some relief but it is still there. I will be telling the oncologist on Monday if it is not better.

Cheers, June S.

[Barb5 in reply to 8576]

I just had about the same problem with Faslodex shot painful still after almost three months never had that problem for a year getting shots just the usual soreness for a bit. Dr for some reason won’t send me for scan to see what the heck they hit when injecting I’m no longer taking that now on xeloda I heard on this site they may becoming out with Faslodex in pill form zi hope so