I try not to vent here too much, as I know we all are struggling with some thing or another and we all know what it is like to have MBC.
Good news is, I seem to be stable with Taxol. The cancer markers have gone down, pet scan shows that most of the lesions have decreased. Doc wants me to continue on Taxol. I do get more tired than before, have afew other annoying things but as they say I can't have my cake and eat it too (smile).
The not so good news is, I am struggling with anixety, frustrations. For those who pray please pray for me about this; I have two adult daughters, one lives with her boyfriend, the other lives with me. The one who lives with me has epilepsy. She has been doing better health wise, until Christmas Eve evening. She had a night sezuire that left her sick for several days after. I nursed her back to health, thankful that she was getting better. It is difficult at times, trying to take care of myself and my daughter--what a pair we are. After her Christmas Eve sezuire, she has high anxitey, is afraid to be alone at night, has taken steps backwards confidence wise. I just emailed the Epilepsy Foundation, asking for support. Her sister is trying to be supportive, tho that is a challenge at times, since they don't always get along. Anyway, please pray for myself and daughter. I also will be praying. Thank you ladies.
I hope you all are doing good,
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SusieIM
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Oh Susie I’m so sorry you have to worry about your daughter on top of your own worries. Definitely I will pray for you and your daughter that you will both pull through from this setback. It’s good though that taxol is working for you as that is one less thing to worry about. God be with you🙏 Maria
Susie prayers and hugs to you. As we all know life keeps going and mothers keep giving and caring. You are lucky to have each other! God’s grace is sufficient, may He give you comfort and peace of mind . I think that is the greatest healing!
Look at MSK under supplements snd the melatonin. Then l theanine . First we need because treatments we take kill melatonin. L theanine is excellent and helping keep her stable emotionally. They literally take 200 mg in the morning and 200 mg every night. You should take it on an empty stomach and it works in about 30 minutes. Melatonin, I only seem to need 12.5 most nights to sleep extremely well. We all normally sleep we can handle things better and we heal better. look into it
So, how long of you been taking IVTaxol?I know it’s small dose of taxol now, and I was given More than double over 20 years ago. But it still makes me a little bit nervous. I too I am being encouraged to start that in the near future. No Neuropathy?
Yes I do have some neuropathy unfortable but is mild. The doc talked with me this morning. She said she needs to watch the neuropathy. If it gets worse doc said she will need to stop the treatment and try another treatment; because I am not having severe symptoms, it is the neuropathy that needs to be watched and of course, if other symptoms get worse. I have had 9 treatments so far. Thank you for your input (smile).
Susie , I’m glad the taxol is doing it’s job but do take some ‘me’ time and rest when you’re body tells you to ! I am sorry your daughter is facing new challenges and I hope you are able to get professional help for her . Take care ! x 🤗
Rather than venting your post sounds understandable and resonating. These are such difficult days and edginess and anxiety is to be expected.. I will respond as you requested and hold you and yours in prayer.
In addition, I am wondering if the YouTube video will be interesting and helpful.
3 Things You Can Do For Worry | Pandemic Level Worry
What a struggle this is for you SusieM. You are welcome to vent...and I hope it helps you to know that we are here to help you cope. I hope you and your daughter can also find some support in your community for this worrisome situation. I don't know much about epilepsy but I watched a documentary on TV that said some people with epilepsy are helped by taking CBD. But, of course you would want approval from her doctor to do anything like that. Is there a forum for young women and men with her condition to help and support each other ??- like this one - that we are allowed to vent on. I will pray for you and your daughter to the big spirit in the sky who I believe helps us all heal and gives us emotional support. Hugs Vienna
Thank you so much for caring so much. She does take CBD,it helps but she needs to work on what triggers her, work on calming herself, releasing stress more. I will do what I can to seek resources, encourage her to move forward.
Oh, Susie, I don't think you need to hesitate to vent here! Living with this cancer can be so difficult and when there's added stress....... it can add up fast! And we sure understand the living with cancer part! I am here as much for you and the other people here, as much as for myself and I think alot of us feel this way. My grown daughter was treated for complex partial seizures from the time she was four until she was 16....it took a year to find the right combo of meds to manage the seizures and I remember that as the most difficult time of my life! Our kids are so precious and seizures can sure be hard to manage....... I can only imagine how hard it would be if one of our daughters had a serious health issue like that while I'm living with mets, plus all the other stuff going on right now! You and your daughters will be in my prayers. Sending love and cyberhugs ((((hug)))) too!
It must have been so difficult taking care of your daughter and yourself. I’m glad you are seeing positive results, it makes the side effects somewhat worth it.
I can’t imagine having to take care of another person so those of you with kids and others you must take care of, have me in awe of the strength you have found.
Since I started chemo I’ve been exhausted and can’t get enough sleep so I can’t take care of myself let alone someone else. I’m sorry your anxiety is so high but I understand completely. Perhaps something from your doctor would help. My depression has worsen since I switched to chemo if that helps you not feel so alone. Ask for help from your other daughter. She can help you even if she doesn’t get along with her sister. ❤️
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