Has anyone been on Eribulin (Halaven) - SHARE Metastatic ...

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Has anyone been on Eribulin (Halaven)

Shelby4now profile image
10 Replies

Met with my onc a few days ago and she would like the next line of treatment to be Eribulin

I would assume it is a later IV chemo drug to take. I have lost track on how many treatments I have tried. I'm probably well over 10........

My mbc has spread entirely into the skeletal bones... Ribs, hips, vertebra, scapula, ribs, humus, etc

No organs. Looking to hear back from anyone that has heard about this chemo drug. Thanks in advance

Take care stay well

Shelby

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Shelby4now
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Julie2233 profile image
Julie2233

Hi Shelby 😊 I was on eribulin from September to November. I have bone and liver mets. It was a 3 week cycle for me with 2 weeks on and 1 week off. At the end of November my scan showed progression in my liver but healing in my bones. I think i’ve had seven different lines of treatment and the others kept my bones stable but this was the first I had healing with. For me, the main side effect was fatigue which crept up on me and made me feel quite poorly.

Jerseygirl45 profile image
Jerseygirl45

Hi Shelby

I have been on Halaven for about three months now. Two weeks on one week off. Don’t know if it is working but I do not get sick from it.

I will have a pet scan in February and we will see.

Barbara

Bestbird profile image
Bestbird

Shelby, with bone mets you should also be on a bone-directed tx such as Xgeva or Zometa. Hoping you are already on it.

Shelby4now profile image
Shelby4now in reply toBestbird

Hi Bestbird

My last appointment with my

Oncologist mentioned that we are coming to the end of treatment. I have tried so many types of chemo and my body is becoming very resistant to chemo. Each pet scan I have taken over the

5 years has shown progression . My mbc is entirely in my bones no organs. The drugs you suggested I have taken already. I said I would Like to try one more time any suggestions

Take careBe safe

Shelby

.

Bestbird profile image
Bestbird in reply toShelby4now

Have you undergone genetic and genomic testing to see whether your tumor has actionable mutations or if you've inherited a BRCA mutation?

Also would strongly suggest a second opinion, and looking into clinical trials.

You can also read about approved therapies and cutting edge research for all MBC subtypes in my book, "The Insider's Guide to Metastatic Breast Cancer" which is also available as a complimentary .pdf. For more information, please visit: insidersguidembc.com

Good wishes!

Shelby4now profile image
Shelby4now in reply toBestbird

Thank you for your response. I did go for another opinion and got the same answer.I was just starting a clinical trial on the first of december and ended up in the hospital the first of december with blood clots in my lung and. pnemonia in the other... I spent 8 days. In the hospital. Look forward to reading the insider guide......thanks again

Shelby

Scandia68 profile image
Scandia68 in reply toBestbird

I have just ordered your book. Looks amazing x

Bestbird profile image
Bestbird in reply toScandia68

I hope you find it helpful and would love to hear your thoughts!

Bestbird profile image
Bestbird

I am so sorry to hear of what you've been through, and hope your path ahead will be much smoother!

Shelby4now profile image
Shelby4now in reply toBestbird

Thank you again ..Im absolutely happy with my journey it's been 13 years No complaints

Take care

Shelby

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