progression

[lilybank]

just back from onc. Had all the scans have had eye problems for about a month optician diagnosed 6th cranial nerve palsy new in my heart something nasy back. well its a tumour i had previous brain mets in may 2018 goimg to treat possibly by cyberknife bones stable got a fair few skin mets on head treating one by one off ibrance after 20 months worried whats next

[Red71]

I’m so sorry that your news wasn’t better. I don’t have much to offer you in advice, but send my heartfelt thought and prayers.

Elaine

[lilybank in reply to Red71]

Thanks

[lilybank]

Yes just a waiting game now

[Barbteeth]

Hi Lily

I wish you all the best with your cyberknife treatment...I guess we’re lucky to have easier techniques these days...still upsetting though

My Ibrance stopped working after 18 months and I’m now on Afinitor and aromasin...only been on these for a month so difficult to assess side effects yet

Barb xx

[Hidden]

Hi Lily,

I hope that the cyberknife treatment is effective at treating the new metastases. I have read good things about it, and how it can keep disease at bay for years following treatment. So I do hope you can have that done as soon as possible and get some good results from that. I wish you all the best.

Sophie

[lilybank in reply to Hidden]

I'm waiting to see if I'm suitable as it's based on a case by case basis

[Hidden in reply to lilybank]

I hope you get the treatment, Lily. I am planning to talk to my oncologist next month to see if I am suitable for it too. I spoke to a doctor at Life Extension in America and he brought it up. Up until then I had not even considered it as an option. I want to get rid of the two spots in my spine. I have read that it's available on the NHS if patients meet the criteria. I hope I am one of them. If my oncologist vetoes it I am considering going private and getting it done anyway.

Sophie

[lilybank]

I'm waiting to find out if I'm suitable as it's based on a case by case basis

[Teddielottie]

Good luck Lily ! Hope you get the cyber knife treatment go-ahead ! x 😘