Very hopeful site for those living wi... - SHARE Metastatic ...

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Very hopeful site for those living with MBC

LeeannW710 profile image
8 Replies

Hi ladies!! Stumbled upon this site and wanted to share. Very inspiring stories from women living with MBC 10+ years!

mbcn.org/blog-3-columns-mas...

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LeeannW710 profile image
LeeannW710
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Red1246 profile image
Red1246

Thanks so much for sharing. Great reading these success stories.

All best to you!

Red

I've "met" many other women on different forum boards who are still going 10 years. Many continued and continue to work at their jobs while still doing treatment.

Hi Leeann,

Thanks for sharing! I am going to be greedy and say 10 years is not enough though. I want much more than that. I've been living with this diagnosis for nearly two years. I don't want to think that I may only have eight more years left if I am "fortunate".

Sophie

in reply to

I have been dealing with it the same amount of time as you (although it feels like a lifetime.) The hardest adjustment was the change from working in NYC and socializing to this new normal. But note that it says 10+ (plus) years. There was one lady on the board that had stage iv for 14 years. Every year, maybe, they will get out with new and better medication so the hope is still alive for you.

in reply to

Oh I know what you mean about how it feels like a lifetime of dealing with this disease. I can't really remember how I felt before my diagnosis before I was confronted with my own mortality like this. I've had several (accidental) brushes with death during my lifetime, but this is completely different.

The hope is still alive for all of us. I want us all to be cured!

Sophie

LeeannW710 profile image
LeeannW710 in reply to

Hi. Yes of course I am greedy too!! My wish for us all is a cure on the immediate horizon. The site has women living with MBC ten years and beyond. I just think about all the new advancements that are still yet to come. I spoke with a women last night dealing with her MBC 17 years!! Her story was truly inspiring.

in reply toLeeannW710

That is my hope too. We deserve a cure. I hate how we are treated differently to early stage breast cancer patients, as if our lives are not as important as theirs. I noticed an immediate change once my team realised my disease was metastatic rather than early stage. So gone were the surgery options and I had to scrap the end date of treatment that I had recorded in my diary. I really hate that about metastatic disease! Our lives do matter. I'm not giving up!

Sophie

Andersl profile image
Andersl

Thank you. So inspiring x

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