Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,817 members•8,440 posts

All posts for November 2024

Update

Hi Everyone just a quick update on my story. Last week I left a story of my journey so far which included several changes of treatment including a mastectomy...

Hi Everyone just a quick update on my story. Last week I left a story of my jour...

•4 days ago

Update on trial drug AC699

Hello all, On October 1, 2024, I started a drug trial protocol AC699. This past week I had my first scans and tumor marker blood tests. The scans are stable...

Hello all, On October 1, 2024, I started a drug trial protocol AC699. This pas...

•4 days ago

Introducing Lola.

It’s come to my attention that I didn’t update everyone on my new little family member, and a feeling that’s running quite deep for me of late. Firstly. I...

It’s come to my attention that I didn’t update everyone on my new little family ...

•5 days ago

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Introducing Lola.

It’s come to my attention that I didn’t update everyone on my new little family member, and a feeling that’s running quite deep for me of late. Firstly. I...

It’s come to my attention that I didn’t update everyone on my new little family ...

•5 days ago

Happy Thanksgiving and...I HATE Enhertu

Just a quick vent - but first know that I am blessed and grateful for my life and for all of you and for the availability of all these meds that keep us going....

Just a quick vent - but first know that I am blessed and grateful for my life an...

Iwasborntodothis

•5 days ago

positive newx

hi everyone from windy raining SE England! I had my 2nd ct scan and found out the tumours were now so small they are unmeasurable! To say I’m over the moon is...

hi everyone from windy raining SE England! I had my 2nd ct scan and found out th...

•6 days ago

hair care advice

Hello, I’m currently on Verzenio and Faslodex, it’s been about a year and a half. I was taking Ibrance and Letrozole for a year and a half as well. In...

Hello, I’m currently on Verzenio and Faslodex, it’s been about a year and a hal...

•6 days ago

Carnivore / Zero Carb / PKD

I'm considering going HARD core PKD, as described by Dr. Robert Cywes M.D. Ph.D. (#CarbAddictionDoc) and Dr Zsofia Clemens (www.paleomedicina.com) and am...

I'm considering going HARD core PKD, as described by Dr. Robert Cywes M.D. Ph.D....

wandererwonderer

•7 days ago

Itovebi

Has anyone been prescribed Itovebi along with Ibrance and Fulvestrant? The possible side effects of Itovebi seem harsh. It was only FDA approved in...

Has anyone been prescribed Itovebi along with Ibrance and Fulvestrant? The poss...

•7 days ago

Triple positive

Does anyone here have triple positive breast cancer? I know someone just diagnosed and would like to know which drugs are used for it. Thank you.

Does anyone here have triple positive breast cancer? I know someone just diagnos...

•9 days ago

Falsodex

I recently changed from Ibrance and Letrezole to Ibrance and Falsodex. I has my first injection of Falsodex on October 29th. Does anyone know how long it will...

I recently changed from Ibrance and Letrezole to Ibrance and Falsodex. I has my ...

•10 days ago

Bad ca15-3 report

I think of all of you daily in this fight. I an overwhelmed this morning. Been in this fight roughly 2 years 8 months. Not much luck with any treatment. Not...

I think of all of you daily in this fight. I an overwhelmed this morning. Been i...

•14 days ago

Do you ladies take a bone strengthener?

Mom’s oncologist would like her to take one. She doesn’t want to do it. She is currently on enhertu. What’s your thoughts on it. If you don’t mind sharing....

Mom’s oncologist would like her to take one. She doesn’t want to do it. She is c...

•15 days ago

Is anyone taking Metoprolol (or any Beta Blocker) along with cancer meds?

I have been diagnosed with Afib and the meds my Doc prescribed are causing problems. I’ve been on Letrozol & iBrance for cancer for 2 years with no bad...

I have been diagnosed with Afib and the meds my Doc prescribed are causing pro...

•17 days ago

To The river

I am not getting anything in my email the last few days.

I am not getting anything in my email the last few days.

•17 days ago

Bone marrow

Hello everyone. I’m hoping to get some positive feedback. I went to my Onc PA yesterday and received some upsetting news. I asked my PA to look at my MRI that...

Hello everyone. I’m hoping to get some positive feedback. I went to my Onc PA ye...

•17 days ago

First scan after Enhertu

Update!!!!!!!! Mom is continuing her Enhertu and they feel it’s working her tumor markers dropped again. Anything with bone they feel is treatment...

Update!!!!!!!! Mom is continuing her Enhertu and they feel it’s working ...

•21 days ago

advice after piqray

hi there I have just finished 2 years on piqray plus Fulvestrant injections which were not easy, starting with severe rash and ending with osteonecrosis of...

hi there I have just finished 2 years on piqray plus Fulvestrant injections whi...

•24 days ago

Yowza!!! 😱 Stomach and lung chest cancer tumor progression while on Trodelvy.

severe pain in then ab and pleural cavity sent me to the emergency room! Not good guys! I am on Trodelvy. 3 cycles. And learned of the progression on the ct...

severe pain in then ab and pleural cavity sent me to the emergency room! Not goo...

•27 days ago

Stomach issues & severe weight loss

Hi. I spent a year on Orserdu and we stopped it in July because I had severe diarrhea. We hoped stopping it would cause the diarrhea to go away. It hasn’t...

Hi. I spent a year on Orserdu and we stopped it in July because I had severe di...

•28 days ago

Xeloda

hi everyone- my dad had some small progression on Lynparza for the BRCA2 gene and he now will be moving on to Xeloda. We are quite nervous as this is his first...

hi everyone- my dad had some small progression on Lynparza for the BRCA2 gene an...

•29 days ago

The FDA has approved itovebi (inavolisib) plus Ibrance (palbociclib) and Faslodex (fulvestrant) ...is anyone taking this trio?

If you are taking it, had you previously used Ibrance until it failed? I'm on Piqray and faslodex right now but feeling like the end of this run is near so Im...

If you are taking it, had you previously used Ibrance until it failed? I'm on P...

•1 month ago

Ibrance toxic now, anyone on fulvestrant and metformin after?

Hi, I've been on Ibrance and anastrozole for 7 years. The Ibrance got toxic, so I had 2 recurrences. We lowered the Ibrance to 75 mg. No problem. But I was...

Hi, I've been on Ibrance and anastrozole for 7 years. The Ibrance got toxic, so...

•1 month ago

Sunshine Coast - Australia

Anyone on the Sunshine Coast, Australia that would like to meet up for a drink and a chat about the care in Australia. I am considering relocating from Sweden,...

Anyone on the Sunshine Coast, Australia that would like to meet up for a drink a...

•1 month ago