Claritin for Bone Pain : I have had MBC... - SHARE Metastatic ...

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Claritin for Bone Pain

Godismycomfort profile image
21 Replies

I have had MBC since 2017. I just wanted to let everyone know about using Claritin for Bone Pain. A friend of mine that has MBC before I did told me about it when I was first diagnosed and it has helped me so much. If I ever run out I can really tell the difference. I hope that it will help all of you also. Is there anything that any of you have found that makes this journey any easier?

Prayers 🙏 for you all. And May God Bless.

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Godismycomfort profile image
Godismycomfort
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21 Replies
Duranteg profile image
Duranteg

Thank you for the reminder!

NPmary profile image
NPmary

How much do you take? How often? Do you have Mets to the bones?

Thank you so much.

Andersl profile image
Andersl

Thank you for sharing this. It is so helpful.

Xx

Hi,

I take 5mg of loratadine (it's the same thing as Claritin) every morning on the recommendation of my integrative doctor.

Exercise is great for bone pain, general aches and pains, and is a great mood enhancer so I try to incorporate 30 minutes into my routine each day. I see exercise as "medicine" rather than a way to get in shape. I don't want to drop too much weight, as I am fine the way I am and don't want my oncologist to eye me suspiciously next time she sees me. When she noticed that I had lost a bit of weight one time she asked if it was "deliberate" and I just told her I was exercising and eating healthily. So for me personally, exercise is my extra pill I try to take each day. I was also reading in Dr Greger's How not to die book that exercise can help get rid of circulating oestrogen.

Sophie

Olha profile image
Olha in reply to

Hi Sophie

Do you ever take a break from the loratadine?

in reply to Olha

Hi Olha,

No, I take it every morning with my first lot of medication. I take a break from niclosamide and chloroquine phosphate, and alternate between doxycycline and mebendazole, but I take loratadine continuously. I would suggest you talk things through with an integrative doctor who can tailor your treatment for you. I see my GP, oncologist and integrative doctor, so I use a combination of conventional treatment, along with alternative treatments. Loratadine is very cheap. I bought four month's supply yesterday for just £2.

Sophie 🌷

Olha profile image
Olha in reply to

Thanks Sophie. How did you find an integrative doctor? My oncologist is lovely but not keen on other treatments.

Kate

in reply to Olha

Hi Kate,

My oncologist is not in favour of anything alternative either, which is why I have had to go elsewhere for help. It is my life on the line after all, and I was not happy to accept the status quo and just wait to die. She knows that I am taking an integrative approach, but does not support it at all and will not even send pathology and radiology reports to my doctor. I see Dr Callebout, who was mentioned in Jane McLelland's How to starve cancer book. Are you in the UK? If so, let me know if you want his phone number and email address and I shall let you have them.

I have also been reading up on cancer and alternative ways to treat this disease too (diet, exercise, supplements etc) and trying to implement those in my life, which I feel has made a difference. Kris Carr, Dr Michael Greger, Jane McLelland and others have been very helpful and inspirational.

Sophie

Olha profile image
Olha in reply to

Hi Sophie

So sorry I haven’t replied sooner, I’m in the middle of trying to get my tax done for tomorrow! I have three different accounts to finish - my personal, a holiday let and I have a little business making a bra I designed back when l first had breast cancer (2010) and bilateral mastectomies which I sell online and along with other designers and homeware in a little shop in East Sussex, so quite busy which I’m sure really helps my positivity.

Gosh - don’t doctors have to pass on your information if you ask them? Do you get it and then pass it on?

Do you think it has been worthwhile seeing Dr Callebout? Do you go to COC as well?

Yes Dr Greger’s book is excellent and you are so right about exercise and diet and supplements. I have a lovely local medical herbalist and have cut out dairy and very rarely have meat. I’m considering the COC protocol. Was diagnosed Mets in August 2019 to bones and marrow only atm, and first scan this month has shown all healing and nothing new atm onPalboccilib 75g (low neutrophils so sporadic start), Letrozole and Denusomab. I took loratadine for 10 weeks until Christmas and have had a private video call with Chris Woollams from Canceractive re supplements etc.

Best wishes to you!

Kate

in reply to Olha

Hi Kate,

There's no need to apologise! It sounds like you have been busy with your tax return. I know how that goes! I have submitted mine and paid the tax recently, so I am good to go for another year. I run my own pet sitting and dog walking business. June will mark eight years since I set up.

East Sussex is lovely. My oldest brother lived in Robertsbridge for 25 years before we moved him back up to Suffolk at the end of 2017.

I don't think doctors have to pass on information to other doctors if they don't want to. My oncologist picks and chooses. She will only share information with my GP, but not with Dr Callebout. That's not a problem, as I just pass on my results to him anyway.

I do think it's worthwhile seeing Dr Callebout. I have been seeing him for eight months now. I was also seeing the COC doctors, but as Dr Callebout follows their protocol (but adds more) it made more sense to stop seeing them and just see him. I'm also saving money, as the COC doctors won't prescribe medications unless you have a consultation with them every three months. Dr Callebout prescribes the drugs, and I can either have them filled at Gould Pharmacy (his clinic is downstairs from there) or I can get them prescribed elsewhere for free.

It sounds like you have been quite proactive with your care. I wish you well and continued healing. My last six CT scans have shown shrinkage and stability, so I am hoping the next one on 14th February will also yield good results. I had such a horrible bombardment of bad news from my diagnosis until I started treatment that I finally felt like I could breathe when my condition stabilised almost immediately. It's almost like I could pinpoint the day the cancer stopped growing and started shrinking.

Sophie

morty87 profile image
morty87

Yes, I have been taking daily Claritin since diagnosed with MBC in 2017. I have seen a great difference.

SeattleMom profile image
SeattleMom

Thank you for the tip. I have been using Tylenol at night but still wake up with achy back. I’m going to give Claritin a try! Linda. 🙏🏻❤️

Iwasborntodothis profile image
Iwasborntodothis

Yes! My sister's chemo nurse told her about this and it worked very well for her. She had bone mets.

Eliactida1955 profile image
Eliactida1955

Thanks I just started it for the allergies from Ibrance and yes it’s working . My bone pain has lessened somewhat. I was diagnosed in sept 2018 with stage 4 and the tumors are gone-shrank to scar tissue in one breast and the other disappeared. My lesions to my thigh and spine are stable. My left lymph node calcified and nothing is lighting up. Putting in the hands of god by tumor marker is 26. No surgery no radiation or chemo. We all must continue to be strong and keep faith. My heart is with all-❤️🙏

Godismycomfort profile image
Godismycomfort

I'm glad to see it is helping others as well.. I take it daily and yes I had stage 4 from 2017 and have METS all the way down my spine to my tail bone.

Be careful with Tylenol taking daily. Read up on that. My sister had cancer and we had to take her to ER. It was taking too much Tylenol. Naproxen Sodium is also good as a break through.

Love you my sisters

Godismycomfort profile image
Godismycomfort

Yes you are correct anyone that has upcoming surgery or are taking blood thinners should not take anything with aspirin in it.

Thanks for clarifying that. I am lucky to be able to use it once in while.

God bless

I have taken it for my allergies but didn’t find any difference in my pain levels. I’m glad it works for you b

LotusAFlower profile image
LotusAFlower

Thank you for your post. I take an antihistamine daily for allergies so I was wondering how it would work to decrease bone pain. Therefor I don’t know if it affects the bone pain I have. I wish there was a way to control the pain better. I am on gabapentin but I don’t like how it makes me clumsy ( dropping things or tripping ) I can’t afford to fall with my severe osteoporosis ( at age 60 ! ).... I was just looking into infrared heating .. do you mind posting what you actually use ? I would like to get able to use it at home.

I hope you’re feeling well. ❤️

Respectfully submitted , Patricia

Praising profile image
Praising

Hi. I have mestastis to my neck. Had a C6c7 fracture and lead ions throughout. Was having neck arm pain. That’s how I was diagnosed. I had to wear a neck collar and saw surgeons one said I needed surgery w rods etc so I would not become paralyzed. After biopsy I did radiation and started Ibrance xgevia. My pain is gone. I’m having my 2nd bone scan in aug. pain was the fracture.

Praising profile image
Praising

Hi I also started taking Claritin for my bone pain. It helped so much. Don’t need it now.

Dragonfly2 profile image
Dragonfly2

Me, too, I take Claritin for about a week to 10 days around the time I get my Zometa bone infusion…it works for me but like many meds, I try not to take it all the time so my body doesn’t get used to it and it stops being as effective. Great stuff…a game changer!

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