I have had MBC since 2017. I just wanted to let everyone know about using Claritin for Bone Pain. A friend of mine that has MBC before I did told me about it when I was first diagnosed and it has helped me so much. If I ever run out I can really tell the difference. I hope that it will help all of you also. Is there anything that any of you have found that makes this journey any easier?
Prayers 🙏 for you all. And May God Bless.
Thank you for the reminder!
Hi,
I take 5mg of loratadine (it's the same thing as Claritin) every morning on the recommendation of my integrative doctor.
Exercise is great for bone pain, general aches and pains, and is a great mood enhancer so I try to incorporate 30 minutes into my routine each day. I see exercise as "medicine" rather than a way to get in shape. I don't want to drop too much weight, as I am fine the way I am and don't want my oncologist to eye me suspiciously next time she sees me. When she noticed that I had lost a bit of weight one time she asked if it was "deliberate" and I just told her I was exercising and eating healthily. So for me personally, exercise is my extra pill I try to take each day. I was also reading in Dr Greger's How not to die book that exercise can help get rid of circulating oestrogen.
Sophie
Hi Sophie
Do you ever take a break from the loratadine?
Hi Olha,
No, I take it every morning with my first lot of medication. I take a break from niclosamide and chloroquine phosphate, and alternate between doxycycline and mebendazole, but I take loratadine continuously. I would suggest you talk things through with an integrative doctor who can tailor your treatment for you. I see my GP, oncologist and integrative doctor, so I use a combination of conventional treatment, along with alternative treatments. Loratadine is very cheap. I bought four month's supply yesterday for just £2.
Sophie 🌷
Thanks Sophie. How did you find an integrative doctor? My oncologist is lovely but not keen on other treatments.
Kate
Hi Kate,
My oncologist is not in favour of anything alternative either, which is why I have had to go elsewhere for help. It is my life on the line after all, and I was not happy to accept the status quo and just wait to die. She knows that I am taking an integrative approach, but does not support it at all and will not even send pathology and radiology reports to my doctor. I see Dr Callebout, who was mentioned in Jane McLelland's How to starve cancer book. Are you in the UK? If so, let me know if you want his phone number and email address and I shall let you have them.
I have also been reading up on cancer and alternative ways to treat this disease too (diet, exercise, supplements etc) and trying to implement those in my life, which I feel has made a difference. Kris Carr, Dr Michael Greger, Jane McLelland and others have been very helpful and inspirational.
Sophie
Hi Sophie
So sorry I haven’t replied sooner, I’m in the middle of trying to get my tax done for tomorrow! I have three different accounts to finish - my personal, a holiday let and I have a little business making a bra I designed back when l first had breast cancer (2010) and bilateral mastectomies which I sell online and along with other designers and homeware in a little shop in East Sussex, so quite busy which I’m sure really helps my positivity.
Gosh - don’t doctors have to pass on your information if you ask them? Do you get it and then pass it on?
Do you think it has been worthwhile seeing Dr Callebout? Do you go to COC as well?
Yes Dr Greger’s book is excellent and you are so right about exercise and diet and supplements. I have a lovely local medical herbalist and have cut out dairy and very rarely have meat. I’m considering the COC protocol. Was diagnosed Mets in August 2019 to bones and marrow only atm, and first scan this month has shown all healing and nothing new atm onPalboccilib 75g (low neutrophils so sporadic start), Letrozole and Denusomab. I took loratadine for 10 weeks until Christmas and have had a private video call with Chris Woollams from Canceractive re supplements etc.
Best wishes to you!
Kate
Hi Kate,
There's no need to apologise! It sounds like you have been busy with your tax return. I know how that goes! I have submitted mine and paid the tax recently, so I am good to go for another year. I run my own pet sitting and dog walking business. June will mark eight years since I set up.
East Sussex is lovely. My oldest brother lived in Robertsbridge for 25 years before we moved him back up to Suffolk at the end of 2017.
I don't think doctors have to pass on information to other doctors if they don't want to. My oncologist picks and chooses. She will only share information with my GP, but not with Dr Callebout. That's not a problem, as I just pass on my results to him anyway.
I do think it's worthwhile seeing Dr Callebout. I have been seeing him for eight months now. I was also seeing the COC doctors, but as Dr Callebout follows their protocol (but adds more) it made more sense to stop seeing them and just see him. I'm also saving money, as the COC doctors won't prescribe medications unless you have a consultation with them every three months. Dr Callebout prescribes the drugs, and I can either have them filled at Gould Pharmacy (his clinic is downstairs from there) or I can get them prescribed elsewhere for free.
It sounds like you have been quite proactive with your care. I wish you well and continued healing. My last six CT scans have shown shrinkage and stability, so I am hoping the next one on 14th February will also yield good results. I had such a horrible bombardment of bad news from my diagnosis until I started treatment that I finally felt like I could breathe when my condition stabilised almost immediately. It's almost like I could pinpoint the day the cancer stopped growing and started shrinking.
Sophie
Yes, I have been taking daily Claritin since diagnosed with MBC in 2017. I have seen a great difference.
Thank you for the tip. I have been using Tylenol at night but still wake up with achy back. I’m going to give Claritin a try! Linda. 🙏🏻❤️
Yes! My sister's chemo nurse told her about this and it worked very well for her. She had bone mets.
Thanks I just started it for the allergies from Ibrance and yes it’s working . My bone pain has lessened somewhat. I was diagnosed in sept 2018 with stage 4 and the tumors are gone-shrank to scar tissue in one breast and the other disappeared. My lesions to my thigh and spine are stable. My left lymph node calcified and nothing is lighting up. Putting in the hands of god by tumor marker is 26. No surgery no radiation or chemo. We all must continue to be strong and keep faith. My heart is with all-❤️🙏
I'm glad to see it is helping others as well.. I take it daily and yes I had stage 4 from 2017 and have METS all the way down my spine to my tail bone.
Be careful with Tylenol taking daily. Read up on that. My sister had cancer and we had to take her to ER. It was taking too much Tylenol. Naproxen Sodium is also good as a break through.
Love you my sisters
Yes you are correct anyone that has upcoming surgery or are taking blood thinners should not take anything with aspirin in it.
Thanks for clarifying that. I am lucky to be able to use it once in while.
God bless
I have taken it for my allergies but didn’t find any difference in my pain levels. I’m glad it works for you b
Thank you for your post. I take an antihistamine daily for allergies so I was wondering how it would work to decrease bone pain. Therefor I don’t know if it affects the bone pain I have. I wish there was a way to control the pain better. I am on gabapentin but I don’t like how it makes me clumsy ( dropping things or tripping ) I can’t afford to fall with my severe osteoporosis ( at age 60 ! ).... I was just looking into infrared heating .. do you mind posting what you actually use ? I would like to get able to use it at home.
I hope you’re feeling well. ❤️
Respectfully submitted , Patricia
Hi. I have mestastis to my neck. Had a C6c7 fracture and lead ions throughout. Was having neck arm pain. That’s how I was diagnosed. I had to wear a neck collar and saw surgeons one said I needed surgery w rods etc so I would not become paralyzed. After biopsy I did radiation and started Ibrance xgevia. My pain is gone. I’m having my 2nd bone scan in aug. pain was the fracture.
Hi I also started taking Claritin for my bone pain. It helped so much. Don’t need it now.
Me, too, I take Claritin for about a week to 10 days around the time I get my Zometa bone infusion…it works for me but like many meds, I try not to take it all the time so my body doesn’t get used to it and it stops being as effective. Great stuff…a game changer!
acupuncture is wonderful if you have someone nearby. My acupuncturist has gotten me through many symptoms.
Bone scan
Walking on egg shells with MBC bone mets . 
Bone mets/fracture 
Bone marrow
Bone scan total body
