Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

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All posts for January 2025

Question for US Patients About Specialty Pharmacy

Hi! My Ibrance prescription has been filled since 2019 by Optum Pharmacy, and I have loved working with them. My health insurance will not be using them...

Hi! My Ibrance prescription has been filled since 2019 by Optum Pharmacy, and I...

AvidBooklover

•3 months ago

9 Replies

New drug trial for TN MBC

The good news is that it utilises an existing drug so approval could be faster if clinical trials back up the expectations. The bad news could be access....

The good news is that it utilises an existing drug so approval could be faster i...

Kerryd22

•3 months ago

2 Replies

ERSO update

An update on ERSO https://apple.news/ARZSAt-QrRUqh2KhuWT-V6w Prior research powers this new study, which developed a small molecule called ErSO. That...

An update on ERSO https://apple.news/ARZSAt-QrRUqh2KhuWT-V6w Prior research p...

Kerryd22

•3 months ago

6 Replies

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update on raised liver enzymes!

hi all I hope you’re well. I posted a while ago about my liver enzymes raising and I received some helpful and supportive comments. Attended clinic...

hi all I hope you’re well. I posted a while ago about my liver enzymes raising...

BritSammy

•3 months ago

29 Replies

Yesterday, began Truqap half dose, alone, four days a week.

My health has gone down dramatically in the past few weeks. The oncologist really wanted me to do beginning doses of Faslodex with or without Truqap...

My health has gone down dramatically in the past few weeks. The oncologist real...

jersey-jazz

•3 months ago

54 Replies

what is your experience with Kisqali?

Dear sisters, After 4 1/2 years of taking Ibrance+letrozole, my scan showed just enough progression that requires change of systemic therapy. I’d be switching...

Dear sisters, After 4 1/2 years of taking Ibrance+letrozole, my scan showed jus...

Tolife_18

•3 months ago

14 Replies

Starting Eribulin

Hello everyone I’m starting my 7th or 8th (I’ve lost count) line of treatment this Friday. I’ve been MBC for 12 years. I was Mets only to my bones until last...

Hello everyone I’m starting my 7th or 8th (I’ve lost count) line of treatment t...

Jhshl512

•3 months ago

14 Replies

Xeloda

Hello, what’s your experience with Xeloda? What are the most common side effects you experienced, diarrhea, nausea, vomiting, abdominal pain, hair loss,...

Hello, what’s your experience with Xeloda? What are the most common side effec...

SKoter

•3 months ago

14 Replies

benign liver lesions?

Anybody ever have benign liver lesions? Just curious.

Greatday2

•3 months ago

9 Replies

Gastro issues from Ibrance

Haven’t started it yet but I had enough trouble with my methotrexate (MTX). Are there tips for dealing with gastrointestinal issues from Ibrance? Want to be...

Haven’t started it yet but I had enough trouble with my methotrexate (MTX). Are ...

Hidden

•3 months ago

20 Replies

Xeloda and Markers

hi everyone, my dad started Xeloda on November 5th. After his first month on it he got bloodwork done in December and his CEA went from 4.9 to 3.5. CA15-3...

hi everyone, my dad started Xeloda on November 5th. After his first month on ...

Jenniferp2122

•3 months ago

5 Replies

Need help for my mothers metastatic breast cancer

My mother is 44 years old and suffering with breast cancer since 7 years presently that spreads to her brain and bones, we given trastuzumab 16 cycles now...

My mother is 44 years old and suffering with breast cancer since 7 years present...

Venuvadde

•3 months ago

10 Replies

Difficult veins

Hello! Anyone else out there have difficult veins? I have been in treatment since 2018 and they always have trouble finding my veins for blood draws and...

Hello! Anyone else out there have difficult veins? I have been in treatment si...

michelangelina

•3 months ago

66 Replies

10mm lesion in liver

I just received my scan results. 1 10mm lesion was discovered on my liver. I am ER+Her2Negative with multiple lesions in my spine. I have been battling for 8...

I just received my scan results. 1 10mm lesion was discovered on my liver. I am ...

DinNorCal

•3 months ago

47 Replies

Taken ibrance / letrozole combo...

Hello, just came across this forum nice to see so many people having good results with ibrance, I am hoping to be the same early days... for me has anyone...

Hello, just came across this forum nice to see so many people having good result...

Millymilo99

•3 months ago

53 Replies

Metastasis to the Pancreas

After many years on oral meds for bone mets, I recently have been diagnosis with breast cancer which has metastasized to my pancreas. I also have mutated rom...

After many years on oral meds for bone mets, I recently have been diagnosis with...

Healthplus1

•3 months ago

9 Replies

RAF for lung nodule

Has anyone tried this procedure for breast cancer that has metastasized to lung? I had 3 biopsies but due to nodule in a hard to reach area of the lung,...

Has anyone tried this procedure for breast cancer that has metastasized to lung?...

AuntyJane

•3 months ago

11 Replies

Trial drug AC 699

Hello all, Before the holidays I said I would keep you informed of my situation on the trial drug I started in October. After some initial trouble due to...

Hello all, Before the holidays I said I would keep you informed of my situation ...

Nocillo

•3 months ago

35 Replies

pain meds

having leg pain due to bone Mets. What du take for pain. Scans next week then dr? Lidocaine patch?

having leg pain due to bone Mets. What du take for pain. Scans next week then dr...

Praising

•3 months ago

19 Replies

Itovebi

After almost two years on Ibrance and letrezole, I had progression. I only have mets to my liver. It was discovered I have the Pik3CA mutation. In late...

After almost two years on Ibrance and letrezole, I had progression. I only have ...

Frenchgirl69

•3 months ago

14 Replies

Ibrance dosage for those 3+ years

Hello everyone. For those of you who have been on Ibrance 3+ years.... what dosage are you on? If you are NED, did any of you get your dose lowered based on...

Hello everyone. For those of you who have been on Ibrance 3+ years.... what dosa...

Greatday2

•3 months ago

36 Replies

Clinical trial at Dana Farber

I am wondering if any of you here are on the same clinical trial at Dana Farber as I am. There is no name to the medication. I am taking 3 blue capsules in...

I am wondering if any of you here are on the same clinical trial at Dana Farber ...

SMPG

•3 months ago

10 Replies

Vision problems as side effect?

I was on Xeloda for about nine months, then stopped. Toward the end of that treatment and during the three weeks I was off all treatments, my distance vision...

I was on Xeloda for about nine months, then stopped. Toward the end of that trea...

TammyCross

•3 months ago

9 Replies

Kasquali

Hi Has anyone taken Kasquali Did you have any side effect?

nancypont

•3 months ago

18 Replies

nancy

HI I was diagnosed with stage 4 metastatic breast cancer. It has spread to my lung and bones. I have been on ibrance for three weeks. Luckily no side...

HI I was diagnosed with stage 4 metastatic breast cancer. It has spread to my...

nancypont

•3 months ago

10 Replies

Truqap without Faslodex?

Last minute Lizzy is my other name. I am scheduled to have a telephone call at the end of Wednesday, Jan 8, with my oncologist. This is to discuss my last...

Last minute Lizzy is my other name. I am scheduled to have a telephone call at ...

jersey-jazz

•4 months ago

23 Replies

ENHURTU Question

About a year ago the wife tried Enhertu but became quite sick and almost unresposive. She was taken to the hospital and was there two weeks. They said it may...

About a year ago the wife tried Enhertu but became quite sick and almost unrespo...

Duckftball

•4 months ago

1 Reply

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for January 2025

Question for US Patients About Specialty Pharmacy

New drug trial for TN MBC

ERSO update

update on raised liver enzymes!

Yesterday, began Truqap half dose, alone, four days a week.

what is your experience with Kisqali?

Starting Eribulin

Xeloda

benign liver lesions?

Gastro issues from Ibrance

Xeloda and Markers

Need help for my mothers metastatic breast cancer

Difficult veins

10mm lesion in liver

Taken ibrance / letrozole combo...

Metastasis to the Pancreas

RAF for lung nodule

Trial drug AC 699

pain meds

Itovebi

Ibrance dosage for those 3+ years

Clinical trial at Dana Farber

Vision problems as side effect?

Kasquali

nancy

Truqap without Faslodex?

ENHURTU Question

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