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My MSAA Community

9,019 members • 20,711 posts

All posts for October 2020

Has anyone with MS had the shingles vaccine?

My sister recently got the Shingles even though she had the new vaccine. Her physician told her that if she had not received it (The vaccine) the Shingles...

My sister recently got the Shingles even though she had the new vaccine. Her phy...

•4 years ago

Crawling Worms

How could I get rid of worms crawling under my back skin? I addressed about it to my MS doctor and Dermatology doctors and did nothing about it as it is not a...

How could I get rid of worms crawling under my back skin? I addressed about it t...

•4 years ago

Give thanks & stay positive

Good evening, I’m Tasha and I’ve been living with MS since 2014 I have a very supportive family (especially mama) & my 2 grown kids.I have a red nose pit that...

Good evening, I’m Tasha and I’ve been living with MS since 2014 I have a very su...

•4 years ago

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unsure

I'm new here, was diagnosed 1993 with relapsing type. Have been on injections for long time. Thinking about switching to a pill anyone have advice? thank...

I'm new here, was diagnosed 1993 with relapsing type. Have been on injections ...

•4 years ago

Flumadine or Rimantadine?

Is anyone on Flumadine (generic is Rimantadine) for balance control/issues -- or any other reason, for that matter? If so, I'd like to hear your experiences....

Is anyone on Flumadine (generic is Rimantadine) for balance control/issues -- or...

•4 years ago

My MS and Covid-19

Hello. My name is Jack. I have Primary Progressive Multiple Sclerosis. I was diagnosed with MS in 2003. I'm legally deaf, wheelchair-bound....

Hello. My name is Jack. I have Primary Progressive Multiple Sclerosis. I was...

•4 years ago

Hello!

How are you? No, seriously, I want to know! We want to know! As in we here! Cause I might not get it but someone might! ☺️ So how are you? 🤗💕👻

How are you? No, seriously, I want to know! We want to know! As in we here! Caus...

CommunityAmbassador•4 years ago

Introduction to a new life

Hello I’m B3tinha. Nice to meet you guys! I know we are more than our condition but I guess this is where we can talk safely. I was diagnosed in Miami in 2010...

Hello I’m B3tinha. Nice to meet you guys! I know we are more than our condition ...

•4 years ago

Fingers

I have very little feeling in my fingertips, so hand sewing is close to impossible. Part of it is MS, part of it is age. But drop a coffee bean, a pea, or a...

I have very little feeling in my fingertips, so hand sewing is close to impossib...

•4 years ago

Run me over!

Why? Just why? They are messing with my modafinil! I need it! Or I'm gonna look like her and someone is gonna have to do traffic duty! 🛑🤣😂🤗💕👻

Why? Just why? They are messing with my modafinil! I need it! Or I'm gonna look ...

CommunityAmbassador•4 years ago

More bittersweet news

My father-in-law (my 2nd dad) passed away. My world crashed but the dear Lord gave me some folks to stop from crashing so I can keep going. Well, he lived to...

My father-in-law (my 2nd dad) passed away. My world crashed but the dear Lord ga...

•4 years ago

My new roommate....

This my new roommate—trial basis, of course... He might decide he doesn’t wanna room with me 😳 His name is puppy 🐶 His breed is MUT

This my new roommate—trial basis, of course... He might decide he doesn’t wanna ...

•4 years ago

My First Photography Trip

20 years ago, I went on a out-of-state photography trip. No family reunion, no wedding of a family member, or to meet up with friends. I had...

20 years ago, I went on a out-of-state photography trip. No family reunion...

•4 years ago

Post 706 RRms is a lifelong experience 25 Pct 2020

Good morning and good Sunday to “YOU’ all, my beloved ms family. A good nights rest and few if no Relapsing-Remitting ms (RRms) gremlins annoying your sleep...

Good morning and good Sunday to “YOU’ all, my beloved ms family. A good nights...

•4 years ago

Hmmm

Maybe they have something here... 🤔 I say reset! Reset!! Reset!!! 🤗💕👻

Maybe they have something here... 🤔 I say reset! Reset!! Reset!!! 🤗💕👻

CommunityAmbassador•4 years ago

Old folks and neglect...

Since living here in a Senior (55+) apartment building, I have seen such extremes of family involvement. I see some people who have family members over all the...

Since living here in a Senior (55+) apartment building, I have seen such extreme...

•4 years ago

Last year,

I gave you Baby Shark! Daaa da, da, dada baby shark! 🤣😂 This Year I give you in honor of covid-19, https://youtu.be/i_EoeTLF6Tc 🤣😂🤣😭🤣 🤗💕👻

I gave you Baby Shark! Daaa da, da, dada baby shark! 🤣😂 This Year I give you ...

CommunityAmbassador•4 years ago

Done with Ocrevus Infusion

My infusion went well yesterday. It was a 4-hour stay from start to finish. No reactions, just couldn't go to sleep last night. It was about 2:30 am when I...

My infusion went well yesterday. It was a 4-hour stay from start to finish. No...

•4 years ago

In case you need anything 🤣

👍😉😊 Ken 🐾🐾🐾🐾🇺🇸

👍😉😊 Ken 🐾🐾🐾🐾🇺🇸

•4 years ago

Question?

For some reason, my notifications aren’t showing up anymore.... does anyone know how to fix it? I have went to settings, but don’t see an option for this....

For some reason, my notifications aren’t showing up anymore.... does anyone know...

•4 years ago

Do you feel dizzy even when you sleep ?

I know dizziness (vertigo) part and parcel of MS but do you feel dizzy even when you sleep ? As far as i have read feeling dizzy when you go to sleep is not......

I know dizziness (vertigo) part and parcel of MS but do you feel dizzy even when...

FindingAnswersMaccy

•4 years ago

Pumpkin Maths 🎃

This made me 😊

This made me 😊

•4 years ago

Snow ⛄️

First BIG snow storm...calling for 4 to 8 inches—where I am at—- Wish I had Rollator with the plow —-haha😆 I’ll post the radar map—-pics in the morning

First BIG snow storm...calling for 4 to 8 inches—where I am at—- Wish I had Roll...

•4 years ago

Weighted blanket

My daughter sends me emails from this site when she sees a good deal. I know some have looked into weighted blankets, but they can be expensive. I know nothing...

My daughter sends me emails from this site when she sees a good deal. I know som...

•4 years ago

Unnumbered post My choice always 23 Oct 2020

Just to be different, always. In a battle, there are two sides, one loses one wins. That is how it goes. I choose NOT to make this a battle, for I and...

Just to be different, always. In a battle, there are two sides, one loses one ...

•4 years ago

To You!

I know it's hard, this roller coaster we are on. We can have great days, weeks and months and yrs! Other times, someone comes along and shakes up your snow...

I know it's hard, this roller coaster we are on. We can have great days, weeks a...

CommunityAmbassador•4 years ago

Is it me?

Or are "they" pushing the holidays a bit early this year? I mean I like watching certain show's and now they have 24 hr holiday movie's? 😭😭 What's worse is...

Or are "they" pushing the holidays a bit early this year? I mean I like watching...

CommunityAmbassador•4 years ago

Unnumbered post I am baack 23 Oct 2020

Beloved ms family. I am back from our drive up to the mountains. Missed the Grand Canyon, but that is an excuse to go again. Did not explore Flagstaff...

Beloved ms family. I am back from our drive up to the mountains. Missed the ...

•4 years ago

Reply to Amore55 from yesterday

Your two little ones are wonderful and I know they bring you happiness. I wanted to share a picture, but replying to yours I can't. I have 3 kittens who were...

Your two little ones are wonderful and I know they bring you happiness. I wante...

•4 years ago

Ocrevus Infusion

I'm sitting here in the infusion center waiting for the Ocrevus infusion. They already have me they steroids just waiting to start the infusion. One nice...

I'm sitting here in the infusion center waiting for the Ocrevus infusion. They ...

•4 years ago

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