My MS and Covid-19: Hello. My name is Jack... - My MSAA Community

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My MS and Covid-19

jwoj13699 profile image
22 Replies

Hello. My name is Jack. I have Primary Progressive Multiple Sclerosis. I was diagnosed with MS in 2003. I'm legally deaf, wheelchair-bound. Thanks to my hearing aids, my wheelchair, and handicap minivan I get around pretty well. Covid-19 is messing up my mind. Separation from people is not for me. Jack.

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jwoj13699
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22 Replies
carolek572 profile image
carolek572CommunityAmbassador

Welcome to the forum, jwoj13699 :-D

Tinker-Belle profile image
Tinker-Belle

I think COVID is messing with a lot of folks minds. It’s scary stuff. Welcome to the group. I hope this forum gives you inspiration, offers some well thought out opinions on our experience with MS, and even helps you to laugh here and there as well. I look forward to getting to know you.

jwoj13699 profile image
jwoj13699 in reply to Tinker-Belle

Well, what would you like to know about me? Jack.

Tinker-Belle profile image
Tinker-Belle in reply to jwoj13699

Whatever you’d like to share...interests, hobbies, etc. We are just happy to have you join us!

jimeka profile image
jimeka

Hi Jack, welcome to the forum. I have PPMS as well, and this forum has been a great help to me in many ways. We all have different types of ms but we all understand each other. Join in at any time, ask any question you like there is always someone willing to help. We like a good laugh as well, so if you know any good clean jokes, then please share. Blessings Jimeka 😊

jwoj13699 profile image
jwoj13699 in reply to jimeka

Can you please send me a link for it? Thank you. Jack.

jimeka profile image
jimeka in reply to jwoj13699

Link for what Jack?

jwoj13699 profile image
jwoj13699

Covid-19 is a bad virus. Social distancing creates an oasis for depression. We all need people's interaction, to function right. I missed how it was last year, without distancing, masks, worry.

jwoj13699 profile image
jwoj13699

Thank you for the link.

jwoj13699 profile image
jwoj13699

Thank you. Would you mind sending me a link for it?

greaterexp profile image
greaterexp

Welcome, Jack! I’m so glad you found this lovely group.

robster1 profile image
robster1

Welcome Jack!

I too have PPMS (Diag 2017).

Well I just set up a counseling session w/my senior pastor TODAY for myself and my loving wife. Relating to being disabled physically through MS, emotionally through MS & COVID and spiritually because I know I’m not doing what I’m called to do because I’m not coping properly w/the whole war. So I’m going for Godly counsel to get things aligned w/my Heavenly Father. I’m praying for you Jack as well as all my other wonderful loving friends within this forum.

God bless you my friend.

Robbie

mrsmike profile image
mrsmike

Welcome Jack. Joining the forum and talking with the group you may not feel so alone.

kdali profile image
kdali

Welcome!

Raingrrl profile image
Raingrrl

Hi Jack! Welcome to this forum! I don’t know anyone who doesn’t miss life pre-Covid. I know I do.

I live solo and not being able to travel to visit family and long-distance friends has really upended my lifestyle. I live in a part of the country that gets a ton of weather not conducive to meeting a friend outdoors unless we want to get drenched so that option is minimally available.

Ali_B62 profile image
Ali_B62

Sorry to hear you are struggling, Jack, it is the absolute pits this Covid on top of everything else you have to struggle with. Don't suffer in silence - so glad you felt able to reach out. Best wishes and keep on keeping on. 🥰

Neworleanslady profile image
Neworleanslady

Hi

My doctor set me up with a counselor for november 6th because I complained of feeling embarrassed about my walking probs and about having MS. I can’t wait to see what she has to say

leking1 profile image
leking1

Welcome to the group, Jack!

pamgarner profile image
pamgarner

welcome Jack,you are not alone,covid is messing up alot of people,when will it end?give me a date please,....this is a great place to laugh,cry,or scream,share your joys,pick your poison:)

cindyrn68 profile image
cindyrn68

Welcome! I have found this group to be informative and fun. Lots of unique perspectives and talents shared. I hope you enjoy the group - I sure do!

mrsmike9 profile image
mrsmike9

Welcome, Jack! Hopefully online friends like us can help keep you company. I know everyone here helps me (in so many ways).

Patti23 profile image
Patti23

If you remember how did you go about getting the handicap van and scooter or wheelchair to get around? I’m lost on where to go for assistance. My walker is not cutting it anymore.

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