Ocrevus Infusion : I'm sitting here in the... - My MSAA Community

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Ocrevus Infusion

hairbrain4 profile image
23 Replies

I'm sitting here in the infusion center waiting for the Ocrevus infusion. They already have me they steroids just waiting to start the infusion. One nice thing is they got all new recliners that are actually comfortable.... Sorry for the interruption, they just came to start my IV. So its about 4 hrs from now that I get to leave & spend 2 more hours going home. Yeah!

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hairbrain4
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23 Replies
Royjr profile image
Royjr

Hope everything goes well.

carolek572 profile image
carolek572CommunityAmbassador

Here's to wishing you a tail wind with this Ocrevus and you get out sooner rather than later, hairbrain4 :-D

I'm thinking bout switching from tecfidera to ocrevus because it doesn't have the s/e of PML!

😊🙏❤Lisa💕

hairbrain4 profile image
hairbrain4 in reply to Sweetheartonvdayl

I wish Techfedera would have worked for me. I had too many flare-ups when I was taking it. Wasn't real fond of have to have a blood draw every month either but it was a lot easier than injections. Even the 2x a year with Ocrevus is easy except for the whole day it takes for me and the person that drives me. We live 2 hours away from the infusion center and it takes about 4 hours for the whole infusion process from arrival to departure. You just need to weigh your priorities. The other thing about Ocrevus, it doesn't fall under the Drug part of your insurance. On mine, it falls under the Outpatient drugs. So now I never meet the max on my Drug deductible and have to pay more for my other meds.

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply to hairbrain4

Thanks for the info😊

As for having a long infusion stay , I used to take tysabri for 7 yrs......

4 hr minimal stay cause you had to wait for your liver blood work to come back. So,I'm used to it- so to speak. Therefore , ocrevus " Here I Come!!!

🙏❤Lisa💕

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply to hairbrain4

Plus , I had to go for infusion Every MONTH, while on tysabri. So, 2x/yr sounds GOOD 👍 to me.

hairbrain4 profile image
hairbrain4 in reply to Sweetheartonvdayl

Twice a year is nice!

jimeka profile image
jimeka

🙏 🍫

Ladybriars profile image
Ladybriars

Hope all goes well today!!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

You should be about done now hairbrain4 ! Hope everything is going well for you!🤗💕👻

greaterexp profile image
greaterexp

Hope you have an easy time of it. So glad about the new recliners!

kdali profile image
kdali

Exciting!! I hope all goes well!

twooldcrows profile image
twooldcrows

great and yes the chairs are comfortable ....enjoy your time in them and nice drive home ....love and much happiness...

jorrell profile image
jorrell

Do they at least give you a lunch?

hairbrain4 profile image
hairbrain4 in reply to jorrell

Yes, they usually serve a sandwich, chips, and a drink.

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply to hairbrain4

Wow! 👎 here 😞

jorrell profile image
jorrell in reply to jorrell

Thanks to insurance, it's not bad, but I say they should bring in a nice sizzling stake, baked potato, and of course, a food maestro to meet your every need! Okay, I'll go for the roast beef sub, tiny bag of chips and a 6oZ can of Pepsi! Hey, I'm not unreasonable!

hairbrain4 profile image
hairbrain4 in reply to jorrell

:-p

pamgarner profile image
pamgarner

enjoy your nap:)

mrsmike9 profile image
mrsmike9

Goodness, I hope I never have to do that. I'd hate sitting around for that long plus I am Such a bad stick...

hairbrain4 profile image
hairbrain4 in reply to mrsmike9

I know, I hate just sitting. It seems like such a waste of time! I take crocheting & a book so I'm at least being productive a little. It would be kind of hard to quilt since I quilt on a machine and not by hand, not mention there isn't that much room. I had one trip that it took 7 sticks before they found a spot that would work. After that, I made sure that I was OVERLY hydrated and it has made all the difference in the world. The last 2 times they have been able to get it the first time.

rjoneslaw profile image
rjoneslaw

i hope it went well

hairbrain4 profile image
hairbrain4 in reply to rjoneslaw

It did. Thanks.

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