Done with Ocrevus Infusion

[hairbrain4]

My infusion went well yesterday. It was a 4-hour stay from start to finish. No reactions, just couldn't go to sleep last night. It was about 2:30 am when I fell asleep. At 5:15 my dog woke me up wanting outside. It was his usual time not realizing that I hadn't had any sleep! Animals are so regimented, and he keeps me on a schedule, his! It's ok though, it's good to be on a schedule cuz it helps to keep my mind from going off-kilter (too much).

Now I'm waiting to see how this dose of Ocrevus reacts, if any, to my new thyroid medication. I will know if I start having A-fib and then a blood test within the next 2 weeks.

[falalalala]

I'm glad it went well for you

[jimeka]

Pleased everything went well 👍

[Kenu]

Love good news 👍🙏 Ken 🐾🐾

[twooldcrows]

so glad it went well for you ...

[greaterexp]

Glad it went well. I’m sorry about the lack of sleep.

[hairbrain4 in reply to greaterexp]

Thanks. The lack of sleep was to be expected so I used that time to do some of the things I didn't get done while I was gone. I'm the communications director on our Liones Club and I had some ads that I had to get done for FB and update the web page. I basically just swapped rest time.

[mm1527mm]

I cant fall asleep until late from steroids after infusions either but glad all went well!

[rjoneslaw]

hoping 4 the best

[tiffortat]

That’s good news! Keep us posted!🤞🏾

[Jesmcd2 CommunityAmbassador]

So glad for you hairbrain4 !! And umm, a-fib would not be a good thing!!😒🤗💕👻

[hairbrain4 in reply to Jesmcd2]

Nope, it wouldn't. And so far I haven't had any A-fib, and it's been 2 days since infusion. YEAH!!!

[carolek572 CommunityAmbassador]

So happy that your infusion is done, hairbrain4 Yes, I usually don't have a restful night the day of the infusion, but I usually settle in to me normal (whatever normal is) after the first night. Keep Smiling

[hairbrain4 in reply to carolek572]

I'm now getting the routine down on infusion day. They don't give that much of the steroids to bother me too much. Nothing like an infusion of steroids.

[bxrmom]

Glad everything went well for you hairbrain4 Somtimes when I have had to have steroids, I could still sleep, others not so much. Steroids also give energy to do stuff around the house or work such as what you needed to get done

[hairbrain4 in reply to bxrmom]

I used to react to them the same way. I would get so much done after having a 3-day infusion of steroids. The last time I had to have that done it made me swell up like a water balloon. I felt like I was sloshing around with every step. No energy either. It was strange. i have noticed that If I stay hydrated especially before steroid infusions I don't get the swelling. I'm thinking hydration makes a difference in a lot of things. On my 2nd full dose of Ocrevus, it took 7 sticks before they got it right. I had been dehydrated. That was when I also had a lot of swelling. Since then I have made sure I'm hydrated and no problems, they get it with the 1st stick and no swelling afterward.

[Scamp56]

The lack of sleep improves after high dose steroid is out of my system. I get an upset digestive track and some lymph gland tenderness in the back of head and under chin and then feel fine after a week. Hope there are no drug interactions

[hairbrain4 in reply to Scamp56]

Through the past 15 years since I was diagnosed, I have become more sensitive to steroids. I sometimes get a lot of water retention in my feet and ankles and no sleep for 24 hrs. Other times it's just no sleep for 12 hrs. I don't know why the differences.

[mrsmike9]

I hate steroids because everything tastes like metal for a long time after. I live on peppermints which seem to be the only thing that will break through that taste.

[hairbrain4 in reply to mrsmike9]

That's one thing I haven't experienced. Hope I never do!

[pamgarner]

everyone is different,but I have afib too, it hasn't bothered me yet

[hairbrain4 in reply to pamgarner]

I think the problem I had last time was a reaction to my thyroid medication. I'm on a different now.

[pamgarner in reply to hairbrain4]

keep our fingers crossed