Has anyone with MS had the shingles vacc... - My MSAA Community

My MSAA Community

8,969 members20,688 posts

Has anyone with MS had the shingles vaccine?

Midnight-Blue profile image
17 Replies

My sister recently got the Shingles even though she had the new vaccine. Her physician told her that if she had not received it (The vaccine) the Shingles would have been quite bad. I am thinking of getting the vaccine but have MS.

Written by
Midnight-Blue profile image
Midnight-Blue
To view profiles and participate in discussions please or .
Read more about...
17 Replies
twooldcrows profile image
twooldcrows

last year and i was just fine ....

bxrmom profile image
bxrmom

I have not received the shingles shot (yet) but I seen my grandpa go through it earlier this year and he was miserable. When I have my next appt with my fam dr I'm going to ask for an rx for it as I don't want to get it, and if I do, hopefully the vaccines will help minimize it.

pamgarner profile image
pamgarner

yes,I had the old shingles shot and my dr told me I also need to get the new one,yes you are correct ms patients are not supposed to have a live virus and it is, my insurance approved it for me and ms.i have had no problem,now when i get my meds (ocrevus) they test me once a year to see if it is still active before I have it....

Humbrd profile image
Humbrd

I just 2 weeks ago got the first of the two shingles vaccination. Both my sister and mother had shingles. It was so painful for them. So I never want it. My doctor said make sure it's not the live vaccine. The injection site was sore, red, and a little puffy for days, but that was it. So very worth it. I go back in a couple of months for the second. My insurance paid for it.

Tulip77 profile image
Tulip77

I’ve had the shingles. Do whatever you can to avoid getting it. It was terrible!

jorrell profile image
jorrell

GET the VACCINE, I saw my mother go through it with the left side of her head and left eye being consumed by it. Yes, my reason is Ocrevus!

mrsmike9 profile image
mrsmike9

I've had shingles and will walk on hot coals to keep from getting it again. I did get the vaccine last year and it made me SO sick the night after (but by morning was fine). So when I got the 2nd one (it's a 2 parter) I made sure to have it on a Friday and was even sicker! If there was a 3rd part, even knowing how sick it made me I would still do it again.

I have not heard about anyone else getting sick from it. I guess I was just "lucky", but that's okay. I wanted to get that one done!

Midnight-Blue profile image
Midnight-Blue in reply to mrsmike9

Thanx for your “experience”. From everything/everyone that I’ e come across they all feel the same. And as much as I hate injections & needles I’d rather be able to fight something with ammo then to have nothing & suffer the reprecussions!

falalalala profile image
falalalala

I had shingles about 10 years ago.

It was memorable to put it mildly.

I never get the vaccine & thankfully have not had it since.

Midnight-Blue profile image
Midnight-Blue in reply to falalalala

I guess you can say I’m not one to “test the gods”! Lol

greaterexp profile image
greaterexp

Unless you doctor tells you not to, I'd be sure to get it. I did get the newer vaccine last year, both parts. After being a nurse and seeing so many patients with it, I'd never want to go through that!

Bnali profile image
Bnali

Definitely talk to your neurologist first. It will depend on what treatment you are taking for MS.

I got shingles in 2017 and 2020, (I hung around too many wayward chickens in my youth 😉🤣🙃)

My neuro said I would have to go off Ocrevus for a couple months and then wait several months before restarting.

Midnight-Blue profile image
Midnight-Blue in reply to Bnali

I plan to ask beforehand. I don’t know what would react to my meds/MS. Thanx.

Iona60 profile image
Iona60

Shingles are horrible! You may need to time the vaccine to correspond to your DMT. I am on Ocrevus and was told to get each part of the vaccine 4 weeks prior to my infusion.

Midnight-Blue profile image
Midnight-Blue in reply to Iona60

I am going to wait until I see my neurologist & ask her. Pain & I don’t get along; pisses me off & I’m not happy person to be around!😠😠

Iona60 profile image
Iona60 in reply to Midnight-Blue

I'm trying to think of all the questions to ask my new neuro before my upcoming visit like: When should I get a flu shot? How will we be able to time a Covid vaccine around infusions? (wishful thinking) Best of luck.

Partexpat profile image
Partexpat

Had 1st of the 2 shots yesterday, no problem.

You may also like...

Shingles Vaccine, MS & DMT's

you have had the Shingles Vaccine? My PCP encouraged me to get it (the newer, double dose vaccine)...

MS & Shingles vaccine

posts regarding the shingles vaccine for people having MS. They have a new vaccine out that’s...

Shingles Vaccine

suggested I get my shingles vaccine, but a friend with MS was told by her neurologist not to get a...

About the Shingle and pneumonia vaccine

We recommend you get your annual flu vaccine. As for the pneumonia vaccine, this is typically...

Info update Shingrix (shingles vaccine)

DMTs) Yes, give if you've had shingles or you've had the prior shingles vaccine (Zostavax ) 2 shots...