Run me over!: Why? Just why? They are... - My MSAA Community

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Run me over!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’22 Replies

Why? Just why? They are messing with my modafinil! I need it! Or I'm gonna look like her and someone is gonna have to do traffic duty! πŸ›‘πŸ€£πŸ˜‚πŸ€—πŸ’•πŸ‘»

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Jesmcd2 profile image
Jesmcd2
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hairbrain4 profile image
hairbrain4

Oh, sorry you are having trouble getting your meds. I know how you feel when they mess with your meds. If it's not the doc it's the insurance. It's the insurance that really gets me. Those people sit behind a desk. They know nothing about medical procedures or drugs, nor do they know anything about us. Yet they try to control the who, what, and when(s) of everything medical. Praying you can get it worked out soon!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to hairbrain4

I know it's crazy! Everything has to approve then approved again and again! It's enough to pull your hair out!😨 But I will fall asleep if I don't get it soon! πŸ˜‚πŸ€£πŸ€—πŸ’•πŸ‘»

hairbrain4 profile image
hairbrain4 in reply to Jesmcd2

Use ice packs on your face & neck to stay awake. I used to have to take that med. So glad I don't anymore.

Tazmanian profile image
Tazmanian in reply to hairbrain4

Have your doctor send in a letter of medical necessity

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Tazmanian

Tis all straightened out! 😁 !πŸ€—πŸ’•πŸ‘»

mrsmike profile image
mrsmike

Wow, that's how I feel today! Hope everyone else is doing better. Sorry about your meds. I know the approvals can drive one crazy.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to mrsmike

Do you need a traffic cop mrsmike ? πŸ›‘ I can do it!! πŸ˜‚πŸ€£πŸ˜‚ πŸ€—πŸ’•πŸ‘»

mrsmike profile image
mrsmike in reply to Jesmcd2

Some days it would be a big help!πŸ˜‚πŸ˜

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to mrsmike

I hear ya!πŸ€£πŸ˜‚πŸ€£πŸ€—πŸ’•πŸ‘»

jimeka profile image
jimeka

If you can’t sort it out, then no one can. It’s not right that they mess with your meds, some meds are life threatening. Keep us updated πŸ€— 🍫 πŸ’

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to jimeka

It's just a pain in the butt! They say they did this, they don't. Follow up on that, they didn't. I forgot who I'm supposed to call now!!!πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€—πŸ‘»

carolek572 profile image
carolek572CommunityAmbassador

Well, at least they didn't paint the center line over them! :-D

Juliew19673 profile image
Juliew19673

So rough and so sorry you have to deal with this!

Morllyn profile image
Morllyn

I know what you mean!😲

Doubled51 profile image
Doubled51

I hear you Jesmcd2 they mess with my Modafinil they got a fight on their hands. Without it I’m def a couch potato and I don’t like sitting on the couch all day. I’ve been taking it since dx so I ain’t giving it up now.

Insurance will be starting over new soon so imagine I’ll have the same fight. I take 400 mg every day so they buck up on me at renewal.

It’s truly my lifeline.

Good luck.

Donnie

greaterexp profile image
greaterexp

I’m sorry.

kdali profile image
kdali

That’s scary, I’m so sorry!

Tulip77 profile image
Tulip77

I could not work without mine!

leking1 profile image
leking1

I know exactly what you mean! Mine was approved fine, but my insurance went up on the co-pay price 143%!

pamgarner profile image
pamgarner

there are days I do feel like that! uurrgghhh!

twooldcrows profile image
twooldcrows

i am sorry that they are messing with your meds...take care and maybe they are getting something better for you ...or just they are having problems getting them...

I've been on modafinil (Provigil) since I was diagnosed with ms in 2000. Every time my health insurance changed I had to have my Dr. work with the insurance company. When Obama care started, and I had to search for a drug plan in the Marker Place, the cost was very high. It is considered a Tier 5 drug. It is also a controlled substance. Luckily for me I am a veteran and the VA now takes care of my prescription but I had the same trouble getting them to approve the prescription. Once it was approved the VA requires me refill it every 30 days.

When I was trying to find drug coverage I also checked on the price in Canada. It was almost exactly the same price.

Don't give up the fight!

Good luck!

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