What it feels like to live with Neuro-Fatigue

[anaishunter]

Just sharing this article because it describes well the fatigue I felt before diagnosis. It's different than lack of sleep or physical exertion. My husband had a hard time understanding why I always said "the TV is too loud", "I don't think I want to go to the concert" and many other activities that I was trying to protect myself from. Fatigue from neuro diseases is different... I am now much better under DMT, but some of it is still there.

yahoo.com/lifestyle/feels-l...

[rjoneslaw]

good read

[greaterexp]

Thank you. It’s very difficult to describe MS fatigue to anyone who hasn’t experienced it.

[mm1527mm]

Good article. I find that many people without ms do not understand.

[Juliew19673]

That was a too true telling of fatigue, and a rather eye opening one (for me) as well - thanks!

[Raingrrl]

Great article! Fatigue is my constant companion and was one of my symptoms long before diagnosis.

[anaishunter]

I forwarded the article to my husband. I've not had a chance to talk to him about it. I hope it's going to put the right words around how I feel for him to understand.

[mrsmike9]

My BIGGEST pet peeve is when I say I'm so tired and others say, "Oh, I get tired all the time." GRRRRRR....

Second place pet peeve is when people say, "I forget things all the time, too." Could be, but do you forget the directions to drive home????

[anaishunter]

My biggest challenge is when my husband come back from work in the evening and he wants to talk and talk about everything exciting that happened during his day. While I'm at the other end of the energy spectrum and just want to do nothing and have complete silence. He just says that I don't need to do anything, just listening. But that's too much for me.

We found a compromise and I redirect his energy towards cooking for dinner. He's actually really good about it (both the whole thing and cooking).