Not everything is obvious to everybody the first time. We "ALL" have some form of ms and because we all do not get it, whatever it is, it needs to be repeated.
ms can hurt. I mean really hurt. My doctor once described Trigeminal Neuralgia as the suicide pain. I am pretty sure by accident as she gasped in shock after she said it. She who must be obeyed has nerve itching in her arm that no matter how much she scratches, or what with, it does not abate. So, when "YOU" are told ms does not hurt, whoever says it, does not know what they are talking about or are lying. "YOU" will get this alot in your many ms years. Not everybody is trying to hurt "YOU" they just do not know. When I was younger the ms society in Queensland, Australia called it the mystery disease. We know more now, but there is still a lot of mystery in our condition. Yes, there is pain in ms. We shall not mention emotional pain, there is lots and lots of that. The frustration in getting diagnosed (Dx'd). The frustration in finding the right Disease-Modifying Therapy(DMT) for "YOU". I had it easy, there was only one drug, so no matter how much I hate needles, I was going to take it. Today there are many therapies, I had one. Of course, it involved a needle. I hated those shots, but still, I took them. It does not matter how bad I felt or what bruising I got, it was the only option, and not doing something was not an option.
Nobody promised me anything, but I promised myself something. To keep myself on my feet and as healthy as I could for as long as I could. Those who pitied me or said mean things about me I was going to prove them wrong. I can be rather bloodyminded (stubborn) like that. Because I have a chronic disabling incurable condition, does not mean the end of me. No, not by a long shot. I might suggest that "YOU" take a little time and develop that type of attitude. When "YOU" are told that "YOU" can not do it, go right ahead and do it anyway. In fairness, "YOU" will not find a miracle cure, but feel free to look for one. Nobody wants to be a human pin cushion or a chronic pill pooper but, DMT is actually your best option. I suggest Ocrevus, two infusions a year is not so bad, "YOU" can do it. This is a serious condition, treat it as such and do whatever it takes to make your life with it b bearable and happy.
There are ups and downs, many more downs than ups this takes some effort. Make an effort, learn all that "YOU" can about ms. Hate it, but be smart, take your DMT. For some of us, ms is very dark, try to live your life just dim. Twilight instead of three am darkness and fearful. I would rather be broken yet strong, than shattered and weak. The choice is yours, make yourself a promise and keep it. There is no need not to have a goal, some realistic hope. A life with ms requires effort. Make it and keep making it.
Royce (the ms writer)
I plan to be at my standing desk past seventy, what is your plan?
