I am my responsibility. I have to live with every me moment of every day. At night when I lay in bed unable to sleep. My thoughts and fears are mine alone. Nobody can take them from me and the decisions that I make are mine and mine alone. I can and do take into account others, the reactions that my behavior may cause other people. That extra opiod to try and make the pain go away. That leads nowhere, but panicked emergency phone calls and a rushed trip to the emergency room.
These are my decision and mine alone. I know me and what effect this will have on others and perhaps upon myself if I make it to morning. No the decision is mine, as it is yours. I will not take that extra tablet. I will just suffer another night of no sleep and pain like “YOU” have never imagined. That is my responsibility and I do not shrink away from it. Along our long RRms life journey we are faced with a lot of decisions and choices. Learn everything that “YOU” possibly can about your condition. How it affects “YOU”, what options are available to “YOU”. Your choice is to be a helpless pill hoping blob in a dark corner crying or to be strong and brave and face what this illness throws at “YOU” with your shoulders back standing tall and looking it in the eye with a smile. Of course your smile says, ha RRms you have got nothing on me. I CAN I WILL COPE with everything that you can throw at me, because I am me and I am good.
Yes “YOU” are responsible for “YOU” This is an midset that “YOU” need to have. There is no need to ever be rude, maybe a little hidden arrogance that knows that this is possible and that “YOU” are up to the challenge. No, not possible DOABLE and “YOU” are going to DO it. Our RRms lives are very long, I expect to have this condition for forty to fifty years, there is no cure there is no miracle secret treatment. There are the Disease Modifying Therapies (DMT) which have a wide range of effectiveness but are your best option today. Always ask for proof whenever starting any type of treatment. Do not believe everything that “YOU” are told do not fear the side effects. We all are sick. Medicine as a rule is not very pleasant to take, but to remain as strong as “YOU” can perhaps “YOU” should take responsibility for your health and take the medicine if it is available. The option of not taking the medicine is that “YOU” will go downhill faster. That is the nature of our illness and we all have to face that at some point. Remember though that there is absolutely no cure. We can not cure this. DMT just slows it down not cure it, and not every DMT works for everybody. I did not find one that was easy to take until my third try, I still have support members telling me that it is not as effective as the old one, but it is my responsibility and I will accept my decision. In the mean time, knowing this I do everything I can to keep myself upright and strong. I have RRms but I am not totally silly.
Royce
Do your best for yourself, treat yourself like you actually do like you.
YOU really are better than RRms, YOU are truly worthy of a good strong and happy life
