Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,097 members • 20,860 posts

All posts for May 2018

Undiagnosed

Hello everybody, I've been having extreme fatigue, photophobia, tingling extemities, trouble concentrating, cold hands, also my ringer finger twitches all the...

Hello everybody, I've been having extreme fatigue, photophobia, tingling extemit...

Hidden

•6 years ago

11 Replies

Never ignore our traveler.

Do NOT do it, it is what ms wants. Ignore it and it will bite u hard and laugh in your face. Just slow down s little, do NOT SURRENDER. This is a problem...

Do NOT do it, it is what ms wants. Ignore it and it will bite u hard and laugh...

RoyceNewton

•6 years ago

5 Replies

LIFE after Diagnoses

Newly Dxd, Do Not despair your life is not over, u r not condemned to every problem u c here, u are NOT guaranteed to become an invalid, This is NOT to much...

Newly Dxd, Do Not despair your life is not over, u r not condemned to every pr...

RoyceNewton

•6 years ago

6 Replies

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Small victory

Just wanted to share a small victory! Haven’t been able to exercise since before my diagnosis (5 1/2 months). I’ve been too afraid to try anything for fear of...

Just wanted to share a small victory! Haven’t been able to exercise since before...

4krobh

•6 years ago

20 Replies

Where to Find MS Support Online

Saw this article "Where to find MS Support online" on healthunlocked thought I would pass it along. Link below...

Saw this article "Where to find MS Support online" on healthunlocked thought I w...

rjoneslaw

•6 years ago

4 Replies

So frustrating - New Neuro I was supposed to see is no longer there!

Received a call this morning that the neuro I was supposed to see on July 5th is no longer there...not sure what happened so now I have an appt with a...

Received a call this morning that the neuro I was supposed to see on July 5th is...

bxrmom

•6 years ago

28 Replies

No More Baclofen!!

I posted last month about my accidentally forgetting to take my Baclofen one day. To make a long story short, not taking them took me out of the fog, made me...

I posted last month about my accidentally forgetting to take my Baclofen one day...

BRENDA1958

•6 years ago

8 Replies

Ms maybe

Hi ya. Last few years Ive been having chronic fatigue,blindspots,forgetfulness,bowel issiues,clumsiness.urge for urination then leaking if cant get there. All...

Hi ya. Last few years Ive been having chronic fatigue,blindspots,forgetfulness,b...

Walsalltommy

•6 years ago

11 Replies

Pam Bertha protocols

Is anyone out there familiar with the information that Pam Bertha / Live Disease Free recommends and the discussion that MS is being caused by parasites or...

Is anyone out there familiar with the information that Pam Bertha / Live Disease...

Barb_28

•6 years ago

9 Replies

Still strong...no matter what

My husband told me that he is considering a divorce. We have been best friends and such sweethearts for almost twenty years. I simply fell apart. It is not...

My husband told me that he is considering a divorce. We have been best friends a...

Amore55

•6 years ago

23 Replies

MS giving flu like symptoms

Hi everyone, I was wondering if anyone ever feels like they have the flu but really don’t? In the past I’ve realized that I start to have flu like symptoms...

Hi everyone, I was wondering if anyone ever feels like they have the flu but rea...

Eveliz

•6 years ago

4 Replies

Gilenya experience?

After several months of dealing with my insurance, I was initially approved for Ocrevus but then asked my doctor to see if he could get Rituxamab approved...

After several months of dealing with my insurance, I was initially approved for ...

cgladdin

•6 years ago

7 Replies

SWOLLEN FOOT

I know I've spoken about having a swollen feet before and I believed that was from the baclofen and so I stopped taking the baclofen months ago and the...

I know I've spoken about having a swollen feet before and I believed that was fr...

ssdw1958

•6 years ago

9 Replies

So many questions

Hello I am not new to MS just to how weak I suddenly feel. I have my neurologist appt Wednesday. I had so much trouble with tysabri so I am not on any meds...

Hello I am not new to MS just to how weak I suddenly feel. I have my neurologi...

jkdavid99

•6 years ago

5 Replies

Flu the energy zapper

I am recovering from the flu, temperature, headache, etc. I rarely get sick but boy this one got me. It sapped every bit of energy out of me that I had,...

I am recovering from the flu, temperature, headache, etc. I rarely get sick bu...

livewell2

•6 years ago

15 Replies

Fat-Derived Stem Cells a Potential Safe, Feasible Treatment for Secondary Progressive MS, Trial Shows

Fat-derived stem cells are a safe and feasible treatment strategy for patients with secondary progressive multiple sclerosis, results from a Phase 1/2 clinical...

Fat-derived stem cells are a safe and feasible treatment strategy for patients w...

bxrmom

•6 years ago

1 Reply

Complications from Gilenya Treatment Managed Successfully, Case Report Says

https://multiplesclerosisnewstoday.com/2018/05/16/complications-gilenya-managed-successfully-case-report-says/

https://multiplesclerosisnewstoday.com/2018/05/16/complications-gilenya-managed-...

bxrmom

•6 years ago

1 Reply

tecfidera

Has anyone heard of people staying on the 120 dose of Tecfidera instead of the regular 240 dose?

Has anyone heard of people staying on the 120 dose of Tecfidera instead of the r...

Sadieschafer

•6 years ago

2 Replies

Signs Getting Old

Signs you're getting old.

rjoneslaw

•6 years ago

6 Replies

Aubagio question

Wanting to know if anyone is taking the 7mg of Aubagio. My neurologist said it’s not as effective as the 14mg. Other neurologists agree also that it isn’t as...

Wanting to know if anyone is taking the 7mg of Aubagio. My neurologist said it’s...

SalMac1127

•6 years ago

14 Replies

WATCH YOUR WORDS

follow sufferers of this terrible horrible disease. G'day fellow ms people along tis old country road to a destination that I challenge myself to imagine, how...

follow sufferers of this terrible horrible disease. G'day fellow ms people along...

RoyceNewton

•6 years ago

4 Replies

Effects of caffeine

Has anyone ever noticed any improvement at all in their cognitive issues with caffeine intake? I can’t imagine that it would be significant, but I keep...

Has anyone ever noticed any improvement at all in their cognitive issues with ca...

greaterexp

•6 years ago

45 Replies

1 More Meme

We Can Do This!!!

Jazzyinco

•6 years ago

2 Replies

MS meme #2

Here comes another 1💐🌼😄😃😀😍🐺🐱🐯💜💙💛

Jazzyinco

•6 years ago

2 Replies

Gotta Love Our Memes!

They say what we truly feel.. Here comes some for us MSer warriorz! W/Love to this Awesum Family!!🐯🐱🐺😁😍💜💛💝🎁🌹🌺😊😀😃😄💐🌼--jazzinco

They say what we truly feel.. Here comes some for us MSer warriorz! W/Love to th...

Jazzyinco

•6 years ago

1 Reply

Still not on treatment

Hi everyone, I’m new here I’ve been diagnosed with RRMS and I’m trying the dr. Terry wahls protocol approache on my MS being that I’m not on treatment and once...

Hi everyone, I’m new here I’ve been diagnosed with RRMS and I’m trying the dr. T...

Ilianas0033

•6 years ago

9 Replies

Trigeminal Neuralgia and PAIN

It really is ALL about how YOU think about it and how YOU react to it. I remember for months on end going to bed and having the waves of pain crash upon my...

It really is ALL about how YOU think about it and how YOU react to it. I reme...

RoyceNewton

•6 years ago

7 Replies

Thought for the Day

I was always looking outside myself for strength and confidence, but it comes from within. It is there all the time.

I was always looking outside myself for strength and confidence, but it comes fr...

SueAB

•6 years ago

7 Replies

Cooling vest

Need a cooling vest

geenel99

•6 years ago

4 Replies

Cooling vest

How do I get a cooling vest? I'm on the site but got lost.

geenel99

•6 years ago

5 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for May 2018

Undiagnosed

Never ignore our traveler.

LIFE after Diagnoses

Small victory

Where to Find MS Support Online

So frustrating - New Neuro I was supposed to see is no longer there!

No More Baclofen!!

Ms maybe

Pam Bertha protocols

Still strong...no matter what

MS giving flu like symptoms

Gilenya experience?

SWOLLEN FOOT

So many questions

Flu the energy zapper

Fat-Derived Stem Cells a Potential Safe, Feasible Treatment for Secondary Progressive MS, Trial Shows

Complications from Gilenya Treatment Managed Successfully, Case Report Says

tecfidera

Signs Getting Old

Aubagio question

WATCH YOUR WORDS

Effects of caffeine

1 More Meme

MS meme #2

Gotta Love Our Memes!

Still not on treatment

Trigeminal Neuralgia and PAIN

Thought for the Day

Cooling vest

Cooling vest

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