Trigeminal Neuralgia and PAIN: It really... - My MSAA Community

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Trigeminal Neuralgia and PAIN

RoyceNewton profile image
7 Replies

It really is ALL about how YOU think about it and how YOU react to it. I remember for months on end going to bed and having the waves of pain crash upon my face. It did not matter what I did, ice packs, heat packs new pillows, new sleeping positions. No medicine helped no amount of medicine helped. I overdosed on opioids 3X, I dreaded going to bed, but I learned that it was going to happen I had to LEARN TO COPE. I started to visualize the pain as waves crashing on my face some small and fast some HUGE and violent. I imagined other peoples struggles over the years and realized they found a way through it. they are no different than me. I CAN cope, I CAN find away though this, I can learn to bend I will not break, this will not beat me, I WILL cope.

ms is annoying and any other descriptive word that u might like to use, but u can u should u will win because u can. Who cares if u have to love the finish line, lower your expectations. Victory is always yours just stay calm and find it.

Royce

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RoyceNewton
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Tinker-Belle profile image
Tinker-Belle

Thanks for sharing. Yes, we CAN do this. I like your wave analogy. I often think of it like a board game. All I have to do is move to the next space. If I get knocked back a few, that's ok. All I have to do is move to the next space again. Wishing you a peaceful day.

RoyceNewton profile image
RoyceNewton in reply to Tinker-Belle

A board game, nice we all have our ways of coping.

erash profile image
erash

I have TN too 😩

So grateful I’ve had relief from gamma knife 🌈

RoyceNewton profile image
RoyceNewton in reply to erash

I had cyber knife, in and out in an hour no scaring just a few meds to relax me so I did not move, no worse than an MRI

6092177588 profile image
6092177588 in reply to erash

What is gamma knife?

RoyceNewton profile image
RoyceNewton in reply to 6092177588

Gamma knife is an option for treating TN I am not exactly sure but I believe it is not a walk in walk out an hour later like cyber knife which is a laser style procedure.

Royce

cheshcat profile image
cheshcat

I finally broke down and started daily medication.

Visualization is how I learned early on to deal with my migraines (on top of rescue medication of course).

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