Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,405 members•21,193 posts

All posts for May 2018

Just a thought for newbies

Please don't get on this site and read comments from those of us (like me) who have issues you never, ever want to have and let it scare you. For that matter,...

Please don't get on this site and read comments from those of us (like me) who h...

Tinker-Belle

•6 years ago

5 Replies

Ampyra and Biotin

I’m starting ampyra tomorrow. I can walk but I’m so SLOW. Hoping that the walking speed and balance improves! I have bruises on my right arm and leg from...

I’m starting ampyra tomorrow. I can walk but I’m so SLOW. Hoping that the walkin...

Juleigh21

•7 years ago

15 Replies

Seasons!

So how is everyone dealing with the change of seasons lately?

positiveness

•7 years ago

28 Replies

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Been a while - antidepressants

Hi Everyone. I haven't posted in a very long time mostly because I'm doing so wonderfully. I am having one issue, not MS related and since everyone is so...

Hi Everyone. I haven't posted in a very long time mostly because I'm doing so wo...

Karen-x

•7 years ago

12 Replies

New to this site - Hello everyone!

I am new here. I saw this site described in the latest MSAA Motivator magazine. I am trying to connect with others with MS. I am a 47 yr. old married gwm...

I am new here. I saw this site described in the latest MSAA Motivator magazine....

Baltoric

•7 years ago

16 Replies

Small victory

After over a month of wondering I finally received a letter from the insurance company saying the approved the treatment medication I wanted to started...

After over a month of wondering I finally received a letter from the insurance c...

Smartcloud1981

•7 years ago

22 Replies

26 years RRMS

Thursday I woke up and couldn't lift my head off the pillow. That had happen before but the spasms were so hateful. I'm on the medro pack for 6 days? I jump...

Thursday I woke up and couldn't lift my head off the pillow. That had happen be...

Bxpeach1962

•7 years ago

5 Replies

Hot temps & MS

Nice weather here in Ireland,sunny but not too warm.😎.Heading to Spain in a few weeks.How does the heat affect MS?Any advice would be appreciated.Had Avonex...

Nice weather here in Ireland,sunny but not too warm.😎.Heading to Spain in a few...

Curran1970

•7 years ago

23 Replies

Tecfidera side effects

I started Tecfidera 2 weeks ago. The first week or so I was fine, no side effects on the low dose. I switched to the regular dose 5 days ago, and have...

I started Tecfidera 2 weeks ago. The first week or so I was fine, no side effec...

Sadieschafer

•7 years ago

21 Replies

Well, I saw Neuro Today.... &

Now She says she saw my M.R.I. & Looks like it's another weirdo auto-immune disease, she needs the L.P. & another M.R.I. of my spinal cord to see just what...

Now She says she saw my M.R.I. & Looks like it's another weirdo auto-immune dise...

Jazzyinco

•7 years ago

7 Replies

Living alone...

...and, so it goes! At 36, I’m having anxiety about living alone. I need help with somethings, and I know it. Don’t have a man, ex hubby is about to get the...

...and, so it goes! At 36, I’m having anxiety about living alone. I need help wi...

Kj9681

•7 years ago

3 Replies

Tysabri is doing ok 😁😁😁

Just sitting here at the Day Treatment Centre just had my Tysabri again will be going home soon 😊. Feel ok have had no probs I'll be tired tonight but apart...

Just sitting here at the Day Treatment Centre just had my Tysabri again will be ...

janetb1968

•7 years ago

10 Replies

MSAA My MS Manager app

Do you use the MS Manager app? If so, what is your experience? I have always just kept notes on my iPad, either in the calendar or in Notes. However, when I...

Do you use the MS Manager app? If so, what is your experience? I have always jus...

Tinker-Belle

•7 years ago

7 Replies

HUGGING PAIN

Hi all I have a question for you. The temperature here has changed yesterday it got up to 90*f and today will be the same. I woke up this morning with a Huge...

Hi all I have a question for you. The temperature here has changed yesterday it ...

ssdw1958

•7 years ago

31 Replies

OC Revus Infusion

Hi Friends, Is anyone taking OCRevus? I’ve been taking it since June last year and wanted to ask a question. It’s a very good medicine and I’m pleased! Just...

Hi Friends, Is anyone taking OCRevus? I’ve been taking it since June last year ...

nicoly3467

•7 years ago

7 Replies

Baclofen

I am currently taking Baclofen for muscle spasms and cramps. The other day, I figured I would try an experiment and not take them for the day. Can you believe...

I am currently taking Baclofen for muscle spasms and cramps. The other day, I fi...

BRENDA1958

•7 years ago

13 Replies

Thank you all for letting me vent

Sorry about my earlier post. I guess I was sitting on the pity pot, one place I do not like to go! You all suffer too, and I know that. I just needed to vent,...

Sorry about my earlier post. I guess I was sitting on the pity pot, one place I ...

Amore55

•7 years ago

6 Replies

MAY 2018 MSAA MS Ability Art Showcase Artist of the Month

Congratulations to Shana! She defines what it is to be an MS Warrior!! Beautiful person and painting! Shana – Los Angeles, CA Twelve years into my MS...

Congratulations to Shana! She defines what it is to be an MS Warrior!! Beautifu...

CalfeeChick

CommunityAmbassador•7 years ago

5 Replies

Hello😊

37 years old have had this stupid disease for about 15 years now and relapse free for 5 years. I quit smoking Along time ago and have recently picked it up...

37 years old have had this stupid disease for about 15 years now and relapse fre...

t80collins

•7 years ago

19 Replies

Can’t feed myself

For the past few days my arms have been so weak, I have not been able to feed myself. Aaaarrgh!!! So frustrating. I swear this monster is just eating my body...

For the past few days my arms have been so weak, I have not been able to feed my...

Amore55

•7 years ago

25 Replies

I Can Laugh @ M.S. Now!

I stumble, I stutter, I sometimes fall, I cry, I scream, I so wish this was only a bad dream... I lay on the couch w/pillows behind me, I'm getting tired of...

I stumble, I stutter, I sometimes fall, I cry, I scream, I so wish this was only...

Jazzyinco

•7 years ago

11 Replies

Hello for the 1st time

Hi my name is Anita and I have been living with this s&(&&y disease for going on 16 years! Needless to say I hate how it has affected my life socially,...

Hi my name is Anita and I have been living with this s&(&&y disease for going on...

Buma1951

•7 years ago

15 Replies

Hi

Hugs everyone ..im still not good at running this site so its kind of confusing to me but im learning ok..thanks everyone for caring ..hugs

Hugs everyone ..im still not good at running this site so its kind of confusing ...

luvhair

•7 years ago

10 Replies

So frustrated over DMT & symptoms

I have tried to stay positive when possible. My latest frustration..since January I've had numb legs, back pain & slightly burning feeling, brain fog &...

I have tried to stay positive when possible. My latest frustration..since Januar...

MaryMargaret1966

•7 years ago

18 Replies

HEALTH NEWSNew Drug Shows Promise in Treating Secondary Progressive Multiple Sclerosis

Half of all people with MS are ultimately diagnosed with secondary progressive MS. This new treatment is the first to slow progression of the disease....

Half of all people with MS are ultimately diagnosed with secondary progressive M...

bxrmom

•7 years ago

7 Replies

spms

Hi I was wondering how people deal with there spms? How long has anyone had this Thank you

Hi I was wondering how people deal with there spms? How long has anyone had ...

kerry0915

•7 years ago

13 Replies

New to MS and to this blog

At 65 I was diagnosed with MS in September of 2017. started my 1st treatment of Tysabri in November 2017. taking baclofen, Keppra. oxybutynin. still...

At 65 I was diagnosed with MS in September of 2017. started my 1st treatment of...

bpriddle

•7 years ago

8 Replies

Frequent Relapses

For the past few days I have been having a rough time with my walking and cognition. Is there something I can do to help this problem? I know it comes with the...

For the past few days I have been having a rough time with my walking and cognit...

BRENDA1958

•7 years ago

12 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for May 2018

Just a thought for newbies

Ampyra and Biotin

Seasons!

Been a while - antidepressants

New to this site - Hello everyone!

Small victory

26 years RRMS

Hot temps & MS

Tecfidera side effects

Well, I saw Neuro Today.... &

Living alone...

Tysabri is doing ok 😁😁😁

MSAA My MS Manager app

HUGGING PAIN

OC Revus Infusion

Baclofen

Thank you all for letting me vent

MAY 2018 MSAA MS Ability Art Showcase Artist of the Month

Hello😊

Can’t feed myself

I Can Laugh @ M.S. Now!

Hello for the 1st time

Hi

So frustrated over DMT & symptoms

HEALTH NEWSNew Drug Shows Promise in Treating Secondary Progressive Multiple Sclerosis

spms

New to MS and to this blog

Frequent Relapses

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