Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,107 members • 20,887 posts

All posts for May 2018

A year in a life with MS and Ocrevus

Hello all, it's that time again. I would first like to take a moment to welcome all the newcomers to the forum. I have been in a hermit stage for the past few...

Hello all, it's that time again. I would first like to take a moment to welcome ...

Allen5280

•6 years ago

34 Replies

Judgement or worry or concern

I find it is often difficult to decide which a person means to say. People do not speak really clearly these days for any number of reasons. I am often...

I find it is often difficult to decide which a person means to say. People do ...

RoyceNewton

•6 years ago

7 Replies

Urologist appointment did NOT go well. ☹️

I had a urodynamic test done on Wednesday to set a baseline for bladder function, since I was diagnosed with progressive relapsing ms in January. I was totally...

I had a urodynamic test done on Wednesday to set a baseline for bladder function...

alimitchell1

•6 years ago

21 Replies

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Mouth

I am sure this is not just an MS thing, but don't you hate it when your mouth Works faster then your mind analyzes things. I sometimes ask questions I already...

I am sure this is not just an MS thing, but don't you hate it when your mouth Wo...

positiveness

•6 years ago

2 Replies

Texting Codes for MS

Peruzzot, the following are some of the codes I found. I couldn't figure out how to take pictures with my fickle tablet so here goes: BFF - Brace for fall...

Peruzzot, the following are some of the codes I found. I couldn't figure out how...

Tinker-Belle

•6 years ago

13 Replies

MS Trial Alert: Seeking People Newly Diagnosed or Untreated with Relapsing MS Nationwide to Participate in Trial of Treatment Strategies....

....to Prevent Disability SUMMARY A study based at Johns Hopkins University is comparing two treatment strategies in 900 people newly diagnosed, or with...

....to Prevent Disability SUMMARY A study based at Johns Hopkins University is c...

bxrmom

•6 years ago

1 Reply

FDA Expands Use of Gilenya® (fingolimod) for Children and Teens 10 Years and Older with Relapsing MS - First Approved Therapy for Pediatric

May 11, 2018 Updated 5/17/18 SUMMARY The U.S. Food and Drug Administration has approved the expansion of the use of the oral MS therapy Gilenya®...

May 11, 2018 Updated 5/17/18 SUMMARY The U.S. Food and Drug Administration ...

bxrmom

•6 years ago

2 Replies

Need a brace for foot drop and I need knowledge from those who know.

Hello I'm being sent for a brace for my left leg foot drop. My question is for those who have a brace how's it going? Does the brace help you? Do you have any...

Hello I'm being sent for a brace for my left leg foot drop. My question is for t...

KC0808

•6 years ago

24 Replies

Lettuce Smile

You know you've had Multiple Sclerosis too long if... Multiple Sclerosis affects everyone differently, but even in our differences we have similarities....

You know you've had Multiple Sclerosis too long if... Multiple Sclerosis af...

Jazzyinco

•6 years ago

3 Replies

Lettuce Smile

You know you've had Multiple Sclerosis too long if... Multiple Sclerosis affects everyone differently, but even in our differences we have similarities....

You know you've had Multiple Sclerosis too long if... Multiple Sclerosis af...

Jazzyinco

•6 years ago

1 Reply

Ocrevus update.

Hello we're getting everyone in our family it's Fancy1959. Oh I wanted to pass along some encouraging results I'm noticing from my last or should I say my...

Hello we're getting everyone in our family it's Fancy1959. Oh I wanted to pass ...

Fancy1959

•6 years ago

15 Replies

Migraine meds

I currently take Topamax which it worked in the beginning but it doesn't seem to be really working any more and I just read that a side effect is weight loss...

I currently take Topamax which it worked in the beginning but it doesn't seem to...

bxrmom

•6 years ago

35 Replies

Summer Fun!

If I have to scoot around most of the summer on my scooter, I plan to scoot around and show my own style! I do it for most of the seasons. I have a turkey for...

If I have to scoot around most of the summer on my scooter, I plan to scoot aro...

Fancy1959

•6 years ago

16 Replies

Double negative

Anytime I read or somebody says a double negative my brain locks up. I have to read it several times or ask the speaker to repeat it again and again and even...

Anytime I read or somebody says a double negative my brain locks up. I have to r...

Iggyvair

•6 years ago

27 Replies

G'day, words of ??? just for u, yes you.

G'day, So u have ms. It really is not the end of your world even it it sees like it is. I like to think of it as a light turn on your road of life. Best...

G'day, So u have ms. It really is not the end of your world even it it sees li...

RoyceNewton

•6 years ago

17 Replies

Drug options

My neurologist is going to try and start me on a lower dose of tecfidera since my first go around was very rough. He said if it's still rough the second time...

My neurologist is going to try and start me on a lower dose of tecfidera since m...

Sadieschafer

•6 years ago

3 Replies

Wisteria

Mine is on a trellis, not as good of a look as yours against the brick wall jimeka but I love it. The birds love it also! Thanks for sharing!

Mine is on a trellis, not as good of a look as yours against the brick wall jime...

Morllyn

•6 years ago

17 Replies

I Salute Us!

I salute all the MSer Warrior Family on here! Love ya!💓💐🌸🌲🌈😘❤💜💙😍😄

Jazzyinco

•6 years ago

6 Replies

WEATHER IS CRAZY AGAIN r

Hi all here we go again there are strong storms coming in from NewYork to western Massachusetts they are under tornado 🌪 watches moving east and we are under...

Hi all here we go again there are strong storms coming in from NewYork to wester...

ssdw1958

•6 years ago

15 Replies

depressiveness

Wow being depressed is sneaky, I never realized quite how sneaky. The way I found around it is to just do, that what u really do not give a dsmn about...

Wow being depressed is sneaky, I never realized quite how sneaky. The way I f...

RoyceNewton

•6 years ago

4 Replies

Aubagio

I've been on aubagio for 8 months now. The first couple of months I had a lot of hair loss an red bumps came up that later took my skin pigment so I was left...

I've been on aubagio for 8 months now. The first couple of months I had a lot of...

Cilla86

•6 years ago

16 Replies

Stressful Day & Heightened symptoms

So I had a my first super stressful day yesterday with this lovely MS diagnosis. MIL put in hospital with possible stroke; standing on those concrete floors...

So I had a my first super stressful day yesterday with this lovely MS diagnosis....

4krobh

•6 years ago

12 Replies

Treatment meds

Have a month and a half of wAiting for my treatment meds they arrived today. Tomorrow I will start the first dose of tecfidera.

Have a month and a half of wAiting for my treatment meds they arrived today. T...

Smartcloud1981

•6 years ago

27 Replies

Let's brighten our chat room with Nature's Beauty!

As with any chronic condition our chat room often consists of serious topics. As CafeeChick did last week in her post about her flowers I thought we could eat...

As with any chronic condition our chat room often consists of serious topics. As...

Fancy1959

•6 years ago

6 Replies

Pediatric Ms

I had no idea that MS hit the young.genetic?warn my kids ..this is real sad....wish they knew more.To warn our kids kids......what does one do?

I had no idea that MS hit the young.genetic?warn my kids ..this is real sad....w...

jackiesj

•6 years ago

2 Replies

MSAA News Update - FDA Approves Gilenya® for Pediatric MS

Hello everyone! I just wanted to share the latest MSAA News Update that was just posted on MSAA's website:...

Hello everyone! I just wanted to share the latest MSAA News Update that was jus...

MSAA_Staff

•6 years ago

2 Replies

Hope all is well.....

I guess I've been on a roll of a rollacoaster of pain wondering my purpose when flat down.i really thought I was being broken in two.So we hang on to hope.

I guess I've been on a roll of a rollacoaster of pain wondering my purpose when ...

jackiesj

•6 years ago

6 Replies

Post Mother’s Day

Well it was an emotional Mother’s day for me. My only daughter was celebrating her first mother’s day and my husband invited his 82 year old mother to our...

Well it was an emotional Mother’s day for me. My only daughter was celebrating ...

FearlessMsMimi

•6 years ago

19 Replies

A gift for Dad on Mothers Day

Yesterday, I had the pleasure of attending my daughters second college graduation. She has Worked so hard for juggling a ft job for her university both...

Yesterday, I had the pleasure of attending my daughters second college graduatio...

finallyseekinghelp

•6 years ago

16 Replies

Vision

Was curious what types of vision issues everyone experiences as a result of MS? Anything like vertigo? How do you manage these symptoms?

Was curious what types of vision issues everyone experiences as a result of MS? ...

Jeremyhess1980

•6 years ago

15 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for May 2018

A year in a life with MS and Ocrevus

Judgement or worry or concern

Urologist appointment did NOT go well. ☹️

Mouth

Texting Codes for MS

MS Trial Alert: Seeking People Newly Diagnosed or Untreated with Relapsing MS Nationwide to Participate in Trial of Treatment Strategies....

FDA Expands Use of Gilenya® (fingolimod) for Children and Teens 10 Years and Older with Relapsing MS - First Approved Therapy for Pediatric

Need a brace for foot drop and I need knowledge from those who know.

Lettuce Smile

Lettuce Smile

Ocrevus update.

Migraine meds

Summer Fun!

Double negative

G'day, words of ??? just for u, yes you.

Drug options

Wisteria

I Salute Us!

WEATHER IS CRAZY AGAIN r

depressiveness

Aubagio

Stressful Day & Heightened symptoms

Treatment meds

Let's brighten our chat room with Nature's Beauty!

Pediatric Ms

MSAA News Update - FDA Approves Gilenya® for Pediatric MS

Hope all is well.....

Post Mother’s Day

A gift for Dad on Mothers Day

Vision

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