Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,062 members • 20,791 posts

All posts for May 2018

Hot!!!

Our AC went out. We've gone all weekend without it. Can't sleep. Can't move. They're coming tomorrow to check it. Hot!!!

Our AC went out. We've gone all weekend without it. Can't sleep. Can't move. The...

mrsmike9

•6 years ago

10 Replies

Seeing my neurologist on Wednesday and neurophysioterrorist 🙌🙌🙌🙌🙌😁😁😁😁😁 tomorow xxxx

Busy week this week I think I spend my life lately at hospitals..........harrumph! 🙄🙄🙄🙄🙄

Busy week this week I think I spend my life lately at hospitals..........harrump...

janetb1968

•6 years ago

11 Replies

Ocrevus

Hi, I just had my first half dose of Ocrevus. I heard recently, from another person with MS, that Ocrevus can take two years to become effective. Surely that...

Hi, I just had my first half dose of Ocrevus. I heard recently, from another per...

Wizardsmom

•6 years ago

2 Replies

Want to take advantage of all our features? Just log in!

IMPORTANT HEADS UP!

Just wanted to let people know that there is a person on this group that is trying to pull a fast one. Please do not do as this person asks if she contacts...

Just wanted to let people know that there is a person on this group that is tryi...

Bygonelines

•6 years ago

14 Replies

Muscle Weakness

My leftside has been very weak. Is this normal?

RoseySawyer

•6 years ago

11 Replies

Vacation

My view from the 5th (penthouse) lol floor for the next 6 days. 1/2 mile from the “strip” in Pigeon Forge Tennessee. Meeting 2 very good friends from the...

My view from the 5th (penthouse) lol floor for the next 6 days. 1/2 mile from th...

Doubled51

•6 years ago

12 Replies

World MS Day

Today is World MS Day - what are you doing to raise visibility and dispel the stigma? https://twofacesofms.wordpress.com/2017/04/17/stigma/ @twofacesofms...

Today is World MS Day - what are you doing to raise visibility and dispel the st...

TwoFacesofMS

•6 years ago

3 Replies

Thought for the Day

Be strong enough to stand alone, smart enough to know you need help, and brave enough to ask for it.

Be strong enough to stand alone, smart enough to know you need help, and brave e...

SueAB

•6 years ago

2 Replies

Happy Memorial Day Weekend!!! ...

Happy Memorial Day Weekend!!! Have fun but be safe about it. 🌞🎉😎

RoseySawyer

•6 years ago

2 Replies

Ocrevus for PPMS

I am 65 with PPMS Anyone else 65 with PPMS taking Ocrevus? Is it helping? My doctor recommended it yet at the same time he is not sure how much it may help...

I am 65 with PPMS Anyone else 65 with PPMS taking Ocrevus? Is it helping? My...

livewell2

•6 years ago

27 Replies

☀️Summer Safety Tips!🌞

For our newest family members who have recently been diagnosed with MS I thought it might be a good idea to go over heat intolerance and sun safety tips for...

For our newest family members who have recently been diagnosed with MS I though...

Fancy1959

•6 years ago

13 Replies

Smile

Look into the mirror, with the light on and smile. say thank you, I know what u r going through and I know i can do it, slowly at first but u will keep trying,...

Look into the mirror, with the light on and smile. say thank you, I know what u ...

RoyceNewton

•6 years ago

11 Replies

I have a question and I will try to keep it clean (no pun....hehe)

When I take a shower and sit on my bath chair and rub a dub dub then rinse ready to grab the towel and all if a sudden I cannot remember if I washed ...let's...

When I take a shower and sit on my bath chair and rub a dub dub then rinse ready...

KC0808

•6 years ago

32 Replies

Started Ocrevus today, first med... still finding our New Normal

My recent diagnosis in April has let us down many different avenues on what we can control and what we can't in my family. I believe that after all my...

My recent diagnosis in April has let us down many different avenues on what we c...

JMWCO

•6 years ago

17 Replies

Well i had my LP...

Ouch! Dat! Hurt! Golly they took 4 viles of fluid, to chk. My mylin, any o-bands & such & a cbc, i'm done w/needles 2day sheesh!!😱😍💐❤💜💙🙏

Ouch! Dat! Hurt! Golly they took 4 viles of fluid, to chk. My mylin, any o-bands...

Jazzyinco

•6 years ago

14 Replies

Was able to schedule Tecfidera delivery online!

Received a text today to schedule delivery of my tecfidera either by calling them or to go online and do it online through express-scripts.com! I noticed...

Received a text today to schedule delivery of my tecfidera either by calling the...

bxrmom

•6 years ago

5 Replies

Memory Tests

The picture I took of a spider catching a fish. I took it near Fort Knox, Kentucky several years ago now. This is one of the world's fewest spiders that eat...

The picture I took of a spider catching a fish. I took it near Fort Knox, Kentuc...

Peruzzot

•6 years ago

5 Replies

Two MS Medications Appear on FDA’s Shame List

Apparently, Ampyra and Tecfidera don't want to play nice with generic making companies:...

Apparently, Ampyra and Tecfidera don't want to play nice with generic making co...

bxrmom

•6 years ago

9 Replies

2 Choices

I am sorry that we met, I am sure u r a nice person and I wish you the best in this journey. Beyond all the medicine and such, this disease boils down to 2...

I am sorry that we met, I am sure u r a nice person and I wish you the best in t...

RoyceNewton

•6 years ago

7 Replies

For those with a Coffee Addiction 8 Ways to Make Your Coffee Super Healthy

8 Ways to Make Your Coffee Super Healthy link below...

rjoneslaw

•6 years ago

2 Replies

On going headaches for month

Hello everyone. I have suffering with headaches nothing is working for me. I am in the hospital since Wednesday. The last dose of prednisone that they gave me...

Hello everyone. I have suffering with headaches nothing is working for me. I am ...

Hali12

•6 years ago

6 Replies

CBD oil.

Has anyone tried CBD oil for pain, oral or topical? Any good results?

cheilke

•6 years ago

11 Replies

WOW, what a difference a day can make!

Ok, what a DAY! I was finally (after my Doctor appealed the denial by my insurance) approved for Modafinil(PROVIGIL) yesterday. 200mg tablets. I took half...

Ok, what a DAY! I was finally (after my Doctor appealed the denial by my ins...

Allen5280

•6 years ago

76 Replies

Advice

Been a little of a week since I started the tecfidera have some flushing once but took aspirin for a few days before each dose. Now I’ve stopped the aspirin...

Been a little of a week since I started the tecfidera have some flushing once bu...

Smartcloud1981

•6 years ago

5 Replies

MSAA Cooling Vests

Somebody in response to a question posted a link for the application to the MSAA for the cooling vests. I did that Saturday and it arrived today. That is so...

Somebody in response to a question posted a link for the application to the MSAA...

melack01

•6 years ago

14 Replies

Silver Sneakers

https://www.silversneakers.com/ Though I'm not eligible, I thought that some of you may be interested. A friend told me about her experiences with this group...

https://www.silversneakers.com/ Though I'm not eligible, I thought that some of ...

greaterexp

•6 years ago

10 Replies

Birthday Fundraiser

A few weeks ago, I had the opportunity on FB to raise funds for my 70th Birthday. I chose MSAA as my recipient. It raised $510.!! I'm so pleased to help MSAA...

A few weeks ago, I had the opportunity on FB to raise funds for my 70th Birthday...

CalfeeChick

CommunityAmbassador•6 years ago

6 Replies

Has anyone here tried stem cell therapy for their MS?

Has anyone here tried stem cell therapy for their MS? What kind did you have? What were the results?

Has anyone here tried stem cell therapy for their MS? What kind did you have? Wh...

dogdaddy

•6 years ago

32 Replies

I had a small victory no I mean VICTORY

I am sorry to be pedantic,but you did Not have a small victory. U had a VICTORY no ifs ands or buts, accept it and say it, be proud of yourself, let me be...

I am sorry to be pedantic,but you did Not have a small victory. U had a VICTOR...

RoyceNewton

•6 years ago

2 Replies

Victories?!

Good Thursday morning all!! I had posted earlier in the week about a small victory & asked others to share- but I wanted to make this its own post. Please...

Good Thursday morning all!! I had posted earlier in the week about a small vict...

4krobh

•6 years ago

19 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for May 2018

Hot!!!

Seeing my neurologist on Wednesday and neurophysioterrorist 🙌🙌🙌🙌🙌😁😁😁😁😁 tomorow xxxx

Ocrevus

IMPORTANT HEADS UP!

Muscle Weakness

Vacation

World MS Day

Thought for the Day

Happy Memorial Day Weekend!!! ...

Ocrevus for PPMS

☀️Summer Safety Tips!🌞

Smile

I have a question and I will try to keep it clean (no pun....hehe)

Started Ocrevus today, first med... still finding our New Normal

Well i had my LP...

Was able to schedule Tecfidera delivery online!

Memory Tests

Two MS Medications Appear on FDA’s Shame List

2 Choices

For those with a Coffee Addiction 8 Ways to Make Your Coffee Super Healthy

On going headaches for month

CBD oil.

WOW, what a difference a day can make!

Advice

MSAA Cooling Vests

Silver Sneakers

Birthday Fundraiser

Has anyone here tried stem cell therapy for their MS?

I had a small victory no I mean VICTORY

Victories?!

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