No More Baclofen!!: I posted last month... - My MSAA Community

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No More Baclofen!!

BRENDA1958 profile image
8 Replies

I posted last month about my accidentally forgetting to take my Baclofen one day. To make a long story short, not taking them took me out of the fog, made me more aware and made me stay up most of the day. I appreciate all of the responses and advice from my fellow Ms sufferers. To update my progress, I have been officially off Baclofen as per my neuro for a month with no problems. Like they say about Ms affecting everyone different, I never had leg cramps or muscle spasms. I have been diagnosed since 1987. I'm progressed past stage 6. I haven't felt this good in years! Good Riddance, Baclofen.

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BRENDA1958
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ssdw1958 profile image
ssdw1958

I to had problems with baclofen when I was on it, it made my legs feel so heavy and it put me into a fog. So I got off of it and I felt better. But it does took a while to get out of your system.

I do wish it worked on me like every one else. It’s so stand how one drug works on someone else than another person.

bxrmom profile image
bxrmom

BRENDA1958 So glad that you don't have to take it anymore and don't have any problems with not taking it! I have a lot of problems if I miss a dose.

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply to bxrmom

Me too, and doc recently ok'd me to increase it and Gabapentin because of numbness, tingling and spasms. Being a little "High Strung" whenever my personal stress goes up, so do my symptoms. Yesterday, I just puttered around with some gardening stuff and had tingles up to my ribs on one side. So a nice hot bath, dinner and I could barely stay awake enough to get into bed.

jimeka profile image
jimeka

Some drugs your body can get dependent on them, and you have to keep increasing the dose for your body to feel any benefit. I think sometimes you have to wean yourself off them gradually and see if you are better without them, because sometimes they are at the root of the problem. Good news for you Brenda, pleased that you are ok. Blessings Jimeka 🦋 🍫

BRENDA1958 profile image
BRENDA1958 in reply to jimeka

Thank you

MarkUpnorth profile image
MarkUpnorth

Forgot why I took it all those years! Can't remember if it helped or not, because I can't remember why I was taking it. Think I forgot to keep taking it.....so by default stopped? Was that a side effect? I'm doing well without it! : - )

Sukie427 profile image
Sukie427

Wow, I guess I dodged a bullet. My neuro mentioned Baclofen for my current flare because my legs are so painful and constantly cramping. Instead, he is giving me Tizanadine, which I have taken before and does put me in cogfog and fatigues me the next day, so I am going to try cutting them in half and see what that does. Glad to hear that you're doing better. This appears to be a case of the cure being worse than the disease!

Timeflies5 profile image
Timeflies5

Having the same response now I’m off Tramadol and on Medical strength CBD Oil...hope all is well Brenda1958! 🎄⛄️

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