Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,351 members • 21,121 posts

All posts for March 2018

This is my first post

Hi you can call me Turbo. I had my first symptoms of MS in 2003. I was not diagnosed with Relapsing Remitting MS until 2006. I started on Copaxone and have...

Hi you can call me Turbo. I had my first symptoms of MS in 2003. I was not diagn...

turbowilt

•7 years ago

15 Replies

You Never Know...

"You never know how strong you are until being strong is the only choice you have!"

"You never know how strong you are until being strong is the only choice you hav...

SueAB

•7 years ago

5 Replies

Utah, anyone?

Hi, I am fairly new here and am feeling quite lonely. I have lost friends due to MS and becoming 'disabled". I was wondering how many people live in Utah? I...

Hi, I am fairly new here and am feeling quite lonely. I have lost friends due to...

Wizardsmom

•7 years ago

11 Replies

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Last Day . . .

Change your clocks Tomorrow 2:00am

MS_Indestructible

•7 years ago

4 Replies

Not going down without a fight.

I woke up one morning in May of 2015 with numbness in my legs and that was the start of a long journey which isn’t over yet, but doesn’t have a sad ending....

I woke up one morning in May of 2015 with numbness in my legs and that was the s...

Haptik

•7 years ago

13 Replies

No lesions

Have you had a spinal tap and blood work 🤷🏼‍♂️ I had read in rare cases you can have lesions where they cannot seem them🤷🏼‍♂️ Wish you well and let us know...

Have you had a spinal tap and blood work 🤷🏼‍♂️ I had read in rare cases you ca...

Kenu

•7 years ago

4 Replies

the dreaded normal MRI

Hiya! So I experience quite classic MS symptoms according to my neurologist (paraparesis, ataxia, fatigue, babinski sign, lhermitte's sign, clonus, muscle...

Hiya! So I experience quite classic MS symptoms according to my neurologist (par...

quinq

•7 years ago

9 Replies

Do as I Say Not as I Do!

Well, after living with MS for 30 years, I am always telling you not to over due it. Guess what? I did not listen to myself! Last week was crazy busy - we...

Well, after living with MS for 30 years, I am always telling you not to over due...

SueAB

•7 years ago

13 Replies

Called family doctor for another round of antibiotics for sinus infection

Still have a lot of pressure above my eyes and on my right ear and this morning was my last day of my antibiotic so I called my doctor to see if I could get...

Still have a lot of pressure above my eyes and on my right ear and this morning ...

bxrmom

•7 years ago

10 Replies

Denver, Colorado

I’m new here but have had ms over 20 years. I am looking for anyone on this site who also lives in Colorado. Thank you 🙃. My new emoji for ms because I’m...

I’m new here but have had ms over 20 years. I am looking for anyone on this site...

Tracy79

•7 years ago

8 Replies

Change your media pic to MS pic for MS Awareness

I just found this site with lots of pictures to choose from. You have to right click on one, then "save as" then you can update your FB, Twitter, Instagram...

I just found this site with lots of pictures to choose from. You have to right c...

CalfeeChick

CommunityAmbassador•7 years ago

7 Replies

Change your Clocks!

For those of you in states that participate in Daylight Savings time, change your clocks late Saturday or early Sunday... Remember the old adage: Spring...

For those of you in states that participate in Daylight Savings time, change you...

CalfeeChick

CommunityAmbassador•7 years ago

19 Replies

Ampyra

Just got approval to start ampyra. Should arrive by Friday. Hopefully it works out.

Just got approval to start ampyra. Should arrive by Friday. Hopefully it works o...

StacyHayward

•7 years ago

4 Replies

New t-shirt

I’m taking one for the team here, since I don’t wear orange (it makes me look anemic), and I don’t wear t-shirts. But I’ll be wearing this for MS Awareness...

I’m taking one for the team here, since I don’t wear orange (it makes me look an...

greaterexp

•7 years ago

21 Replies

Down another week

Out of work for another week. Had my cardiac mri this morning confirming the myocarditis. It’s mild which is good but still healing from it and being a single...

Out of work for another week. Had my cardiac mri this morning confirming the myo...

Nvprp21

•7 years ago

9 Replies

Tysabri today with the flipping snow 😕

Hi all had the first infusion today and I felt fine just tired tonight but I did have to get up at 6am and woke up to loads of snow which has now gone 😊. Hope...

Hi all had the first infusion today and I felt fine just tired tonight but I did...

janetb1968

•7 years ago

13 Replies

Amantadine

Has anyone had experience with this drug. I started it for my extreme fatigue, but am feeling pretty awful. Very tired, a bit dizzy and nauseous. I’m...

Has anyone had experience with this drug. I started it for my extreme fatigue, b...

Linda3579

•7 years ago

58 Replies

Abbreviations from our past quizzes.

Might be a good Idea to copy and past into a "MS Word" doc for reference. :-) Note the MS Word funny, how many of us even think Microsoft Word any more? If...

Might be a good Idea to copy and past into a "MS Word" doc for reference. :-) No...

CalfeeChick

CommunityAmbassador•7 years ago

7 Replies

Webinar

Here is a link for more information about a webinar dealing with fall prevention. This is not associated with MSAA, but may be helpful since so many of us...

Here is a link for more information about a webinar dealing with fall prevention...

greaterexp

•7 years ago

Be the first to reply

MS Hug

MS hug isn't being very nice to me today. Head feel like its in a vice, lungs and heart feel like an elephant is standing on them. both my arms feel like...

MS hug isn't being very nice to me today. Head feel like its in a vice, lungs a...

LissaH

•7 years ago

15 Replies

Newbie

I'm new to this just diagnosed in Sept. 2017 with ppms. Has been quite a life changer.

I'm new to this just diagnosed in Sept. 2017 with ppms. Has been quite a life ch...

Rndcowart

•7 years ago

8 Replies

New MS Support Group in Fort Bragg CA Area.

Hi, My wife and I are co-leading an NMSS sponsored support group in the 95437 zip code. Meetings are held the second Wednesday of each month at 1:30 pm and...

Hi, My wife and I are co-leading an NMSS sponsored support group in the 95437 z...

Kstiver

•7 years ago

1 Reply

MS Expo April 7th Palm Desert, CA

http://www.healthcarejourney.com/expo.html This should be a very good and informative time. If you know anyone that lives near or would be able to travel to...

http://www.healthcarejourney.com/expo.html This should be a very good and inform...

JensterJ

•7 years ago

Be the first to reply

Ugh more snow!!!!!

Here we go again here on the east coast. Its snowing crazy here in Jersey and its sticking fast. Pray all will be careful if you are gong through it.

Here we go again here on the east coast. Its snowing crazy here in Jersey and i...

LissaH

•7 years ago

17 Replies

Crashed PC Fixed

Got it back on Monday. It was some kind of power thing inside. I believe it was Ms-Indestructible that gave me the correct DX of the problem....

Got it back on Monday. It was some kind of power thing inside. I believe it ...

CalfeeChick

CommunityAmbassador•7 years ago

8 Replies

Biomarkers: The Future of MS Treatment?

Research is showing how biomarkers can be used to identify MS in individuals, pinpoint the type of MS someone has, and even provide direction in treatment....

Research is showing how biomarkers can be used to identify MS in individuals, pi...

bxrmom

•7 years ago

5 Replies

Really rough day

I woke up this morning and knew instantly I was in trouble. My left side was paralyzed, just could not move my arm or leg. I really needed to use the restroom,...

I woke up this morning and knew instantly I was in trouble. My left side was par...

Amore55

•7 years ago

25 Replies

Voyager I took this picture

The picture was taken through the rings of Saturn. The picture is called Pale Blue Dot. Can you see the tiny white dot in the ring at the top of the...

The picture was taken through the rings of Saturn. The picture is called Pale B...

MsGelfling1

•7 years ago

6 Replies

To inject or not to inject? That is the question!!!

Hello All! I hope everyone is having the best day ever!! This is my first post. I decided to join the chat because there is so much support and positivity...

Hello All! I hope everyone is having the best day ever!! This is my first post. ...

Jozzi

•7 years ago

23 Replies

Just Saw This

t's not what you accomplish in life that matters, it's what you overcome. Don't be afraid to ask for help, if you need it. Be proud of what you have...

t's not what you accomplish in life that matters, it's what you overcome. Do...

SueAB

•7 years ago

5 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for March 2018

This is my first post

You Never Know...

Utah, anyone?

Last Day . . .

Not going down without a fight.

No lesions

the dreaded normal MRI

Do as I Say Not as I Do!

Called family doctor for another round of antibiotics for sinus infection

Denver, Colorado

Change your media pic to MS pic for MS Awareness

Change your Clocks!

Ampyra

New t-shirt

Down another week

Tysabri today with the flipping snow 😕

Amantadine

Abbreviations from our past quizzes.

Webinar

MS Hug

Newbie

New MS Support Group in Fort Bragg CA Area.

MS Expo April 7th Palm Desert, CA

Ugh more snow!!!!!

Crashed PC Fixed

Biomarkers: The Future of MS Treatment?

Really rough day

Voyager I took this picture

To inject or not to inject? That is the question!!!

Just Saw This

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