Newbie

[Rndcowart]

I'm new to this just diagnosed in Sept. 2017 with ppms. Has been quite a life changer.

[MsGelfling]

Yes, I agree. I think the worst part of MS for me was having to get used to and live with not feeling well every day. It took me five or six years to get used to it. Also, for me, the numbness in my legs, all the way up to and including part of my hips, drove me insane. That was hard to learn to live with. I did it, and I know you can do it, too. Just keep telling yourself, healthy and happy, no matter how miserable you are. I try to keep my tongue and not yell at the dog. He didn't do this to me. Best of luck to you.

[greaterexp]

Welcome to a place filled with wonderful people. I can’t begin to tell you how helpful they were to me during the first year after diagnosis, and they still are today!

I won’t say it’s easy finding our way through the emotional and physical sides of MS, but you’ll find this a safe place to vent, get ideas for coping, and to get tons of support. When those around you can’t really grasp what you go through, we truly do. Believe it or not, we laugh with one another a lot!

We’ll be glad to get to know you better.

Be sure to soak up what MSAA has for you.

mymsaa.org/

[CalfeeChick CommunityAmbassador]

Welcome to the group. There is allot of great people here for you. please read along with us, comment or ask questions. Usually someone here can answer or refer you to where you can find some answers. I personally feel this forum became my friend, my source of support even before I was actually diagnosed. We all have our own story, but share so many symptoms. Keep on coming back, when you are ready, maybe share some of your MS story. We all share our thoughts, questions, answers and gradually are becoming a big family!

[Morllyn]

Sorry to hear about the diagnosis but welcome to the group.

[Doubled51]

Welcome to the family. Sorry for the reason but glad you found us. I was dx in April of 2017 with RRMS. I honestly didn’t even know what MS was then. But I’ve learned more from the caring compassionate people here than any dr could tell me.

So join right in with whatever is on your mind. We all are joined together with a common bond. MS. So when nobody else understands we do.

Welcome and God bless

Donnie

[Nvprp21]

I’m fairly new here too! Everyone has been warm and welcoming! MS no matter what form of it is life changing not just for us but our family and friends. Best of Luck!

[4fishylady]

The diagnosis is mind blowing. But, upon learning all the normal symptoms of MS, it was a bit comforting to me to know that all those separate symptoms that I had for years, could be lumped into the same bucket - MS! It finally made sense! For 40 years I had wondered about the dizziness, that was not really vertigo, but disorienting at the same time, was really MS. The fact that I had a certain amount of energy to use, and after that I was toast made sense. I couldn't get too hot or be in the sun very long, or else I was wiped out. All the years of making excuses for my seeming weakness for these reasons, finally made sense with this diagnosis in my 70's. There comes to mind a phrase from a Christian Psychologist's book many years ago, "Acceptance spells peace." What the heavenly Father allows in our lives, in the end works for our good. We just need to depend on Him moment by moment.

I will say also that my Neuro says that no one knows exactly which type you have, that time will tell. If you have been treated with steroids for an exacerbation, it might relent some. Also, the Disease Modifying Therapies that are available help you to have fewer relapses. So you might have a slower progression, and the body itself sometimes repairs its own nerve connections, allowing you to return to somewhat normal functions. One MS specialist Neurologist told me that I had PPMS after only one visit to her. Right now, about 1 year later, I am back to being almost my "normal" self, like I was prior to the diagnosis, with quite a bit of energy. I have proven her to be absolutely WRONG!!!! Keep the faith! Doctors can be wrong! They only "practice" medicine. Only God knows for sure, and He's still in the miracle working business! May He bless you with healing.

[Tracy79]

The diagnosis is a life changer. Try and remember what your life was like before. Try to keep your mind and body moving. This is a fantastic site and very supportive Be well 🙂 from Colorado