Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,351 members • 21,121 posts

All posts for March 2018

MS Hug

I think I am having an MS Hug. I feel like Andre the Giant is squeezing me around the ribs. This is this the first time I have had this happen. Is there...

I think I am having an MS Hug. I feel like Andre the Giant is squeezing me aroun...

cljones

•7 years ago

16 Replies

Got off the phone with Express Scripts/Accredo Pharmacy for my Tecfidera today

They have tried calling from various numbers today today so I called them back. The message first wants you to go online to do 'prepapproval to set up delivery...

They have tried calling from various numbers today today so I called them back. ...

bxrmom

•7 years ago

15 Replies

Thoughts on Tecfidera

My nuero is switching me to tecfidera. Does anyone have experience with this or knowledge on it? Or suggestions as I make the switch? Please and thank you!!

My nuero is switching me to tecfidera. Does anyone have experience with this o...

Sadieschafer

•7 years ago

15 Replies

Want to take advantage of all our features? Just log in!

Are there meds currently available for gait issues for Progressive ms...will be starting ocrevus shortly for the gait issue..a bit nervous

I am unable to take even 1 step unless I'm holding onto a wall, a table, a stove etc...I use a walker when I leave the house...which is not very often...I'm so...

I am unable to take even 1 step unless I'm holding onto a wall, a table, a stove...

geoghegan

•7 years ago

7 Replies

A heads up

To all the new members I don't know and the ones I am starting to know. I always sign my letters in an affectionate way. Like love, or something around those...

To all the new members I don't know and the ones I am starting to know. I always...

rlh1974

•7 years ago

10 Replies

Retirement

Hi all my lovelies! My favorite peeps! I pray this finds everyone well! I need some help from those of you that have been forced into retirement way to early...

Hi all my lovelies! My favorite peeps! I pray this finds everyone well! I need s...

rlh1974

•7 years ago

48 Replies

Question of the Month, Dr. Appointments!

I'm sorry for just getting to this. "March has come in like a Lion" in more ways than one. So here's the question, who has already had an appointment this...

I'm sorry for just getting to this. "March has come in like a Lion" in more way...

CalfeeChick

CommunityAmbassador•7 years ago

42 Replies

Home from my Dr. Appt for refills & referral to new neuro and some other things

So I went in for my refills and to get a referal to a new neuro which my doctor had no problem giving me when I told him I wanted to go see Dr. Anagnos because...

So I went in for my refills and to get a referal to a new neuro which my doctor ...

bxrmom

•7 years ago

11 Replies

Peephole

I finally had enough at home and retreated to my art room to finish this. Sons are driving me nuts! But blew off some steam by "playing with my buttons and...

I finally had enough at home and retreated to my art room to finish this. Sons ...

mrsmike9

•7 years ago

29 Replies

News Update on Zinbryta

Hello! Just sharing the latest MSAA news update about the disease-modifying therapy Zinbryta that was just posted on MSAA's website:...

Hello! Just sharing the latest MSAA news update about the disease-modifying ther...

MSAA_Staff

•7 years ago

2 Replies

Celestial Wonders

Isn't this beautiful? It is the surface of Jupiter. I have found a new interest in the heavens. Have the best day ever!

Isn't this beautiful? It is the surface of Jupiter. I have found a new interes...

MsGelfling1

•7 years ago

3 Replies

Who's tried the keto diet?

Hi, my fitness fanatic sister thinks it would be good for me to try the keto diet. She feels it could help my MS as well as my prediabetes. Just wondering if...

Hi, my fitness fanatic sister thinks it would be good for me to try the keto die...

Wizardsmom

•7 years ago

9 Replies

Question about tx for SPMS

I have my reg. 6 mos. checkin with my neuro this coming Thurs. 3/8. I transitioned to SPMS about 5 yrs ago. Previously, I had taken Copaxone from the time I...

I have my reg. 6 mos. checkin with my neuro this coming Thurs. 3/8. I transitio...

suznj325

•7 years ago

6 Replies

A Prayer Please

I don't want to discuss the weird insurance and other bullcorn going on right now I don't have the stamina Just a nice prayer pretty please Xxxoo

I don't want to discuss the weird insurance and other bullcorn going on right no...

SometimesCrazy

•7 years ago

4 Replies

National Multiple Sclerosis Society (NMSS) MS Awareness Week is March 11th through March 17th.

The National Multiple Sclerosis Society is celebrating March as MS Awareness Month. Specifically they are celebrating MS Awareness Week March 11th through...

The National Multiple Sclerosis Society is celebrating March as MS Awareness Mon...

Fancy1959

•7 years ago

3 Replies

Frames in Facebook

This is MS Awareness month & you can put an MS Awareness frame on your profile picture. I also came across a 'background' of the orange MS Awareness...

This is MS Awareness month & you can put an MS Awareness frame on your profile p...

suznj325

•7 years ago

2 Replies

FYI: Article in Wall Street Journal

About the RRMS drug 'Zinbryta'. https://www.wsj.com/articles/biogen-and-abbvie-take-multiple-sclerosis-drug-off-market-1520007411

About the RRMS drug 'Zinbryta'. https://www.wsj.com/articles/biogen-and-abbvie-...

suznj325

•7 years ago

2 Replies

The Impact of Generics on MS Treatment

Medications used to treat MS have all been developed relatively recently, are still, which means that the majority of them are still patent protected. Until...

Medications used to treat MS have all been developed relatively recently, are st...

bxrmom

•7 years ago

17 Replies

Finding my balance.

Hey, everyone. :) This is Donnarae. I was diagnosed 3 days after Christmas, so I'm a newbie. What a ride! Less than two months later, I turned 53. Some...

Hey, everyone. :) This is Donnarae. I was diagnosed 3 days after Christmas, s...

donnaraet

•7 years ago

73 Replies

ocrevus I'm new here

will be starting ocrevus within the next 2 weeks...what can I expect...and has anyone seen much improvement?

will be starting ocrevus within the next 2 weeks...what can I expect...and has a...

geoghegan

•7 years ago

4 Replies

Cannabis

My brother, who also has MS. Has recently started taking cannabis oil. He has been raving about the good effects. My neurologist poo-poo ed it. Comments from...

My brother, who also has MS. Has recently started taking cannabis oil. He has be...

Iggyvair

•7 years ago

20 Replies

The Not So Sudden Changes of MS

With MS, sometimes change is sudden and drastic enough to notice right away. But sometimes it creeps up on us so slowly that we don’t even realize it’s...

With MS, sometimes change is sudden and drastic enough to notice right away. But...

bxrmom

•7 years ago

8 Replies

WEATHER UPDATE

Well we made it through the night nothing happened to my house we didn’t loose the power. But now it’s cold and still a little windy, no snow who knows what is...

Well we made it through the night nothing happened to my house we didn’t loose t...

ssdw1958

•7 years ago

11 Replies

Another link with events for MS Awareness Month

This is from MS Focus and not part of MSAA. The Dine Out Event unfortunately doesn't have a large list of participating restaurants....

This is from MS Focus and not part of MSAA. The Dine Out Event unfortunately do...

greaterexp

•7 years ago

7 Replies

This weather is starting blowing

My husband had to go to work (he works on tree removal) and this wind is still blowing I’m glad I don’t live right by the ocean. The winds in Boston are up to...

My husband had to go to work (he works on tree removal) and this wind is still b...

ssdw1958

•7 years ago

17 Replies

Saw this on CNN

Multiple sclerosis drug pulled from market after reports of brain inflammation - CNNhttps://apple.news/AnKJvcpl7Qti3Uc04HkHv8Q

Multiple sclerosis drug pulled from market after reports of brain inflammation -...

Midgey_Midge06

•7 years ago

29 Replies

Appointment with my family Doc next Monday!

I have an appointment with him to get some meds refilled. My current Neuro is refiling my Tecfidera now and the cost through my new insurance is $8.35 (not...

I have an appointment with him to get some meds refilled. My current Neuro is re...

bxrmom

•7 years ago

10 Replies

Disappointed

Y’all know that I had my iv steroids last weekend but im disappointed that I havent had any improvement. If anything my fatigue walking and dizziness are...

Y’all know that I had my iv steroids last weekend but im disappointed that I hav...

Doubled51

•7 years ago

33 Replies

Say hi 👋

Hi MsGelfing So sorry you had to come to this site but you can ask anything but do remember we are not doctors here. But we are all friendly here. I am...

Hi MsGelfing So sorry you had to come to this site but you can ask anything but...

ssdw1958

•7 years ago

2 Replies

Hi I'm new.............

Hi. I'm MsGelfling. I'm new here so I don't know what to ask or talk about yet. I need to read the site. Thanks

Hi. I'm MsGelfling. I'm new here so I don't know what to ask or talk about yet...

MsGelfling

•7 years ago

12 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for March 2018

MS Hug

Got off the phone with Express Scripts/Accredo Pharmacy for my Tecfidera today

Thoughts on Tecfidera

Are there meds currently available for gait issues for Progressive ms...will be starting ocrevus shortly for the gait issue..a bit nervous

A heads up

Retirement

Question of the Month, Dr. Appointments!

Home from my Dr. Appt for refills & referral to new neuro and some other things

Peephole

News Update on Zinbryta

Celestial Wonders

Who's tried the keto diet?

Question about tx for SPMS

A Prayer Please

National Multiple Sclerosis Society (NMSS) MS Awareness Week is March 11th through March 17th.

Frames in Facebook

FYI: Article in Wall Street Journal

The Impact of Generics on MS Treatment

Finding my balance.

ocrevus I'm new here

Cannabis

The Not So Sudden Changes of MS

WEATHER UPDATE

Another link with events for MS Awareness Month

This weather is starting blowing

Saw this on CNN

Appointment with my family Doc next Monday!

Disappointed

Say hi 👋

Hi I'm new.............

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