Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,107 members • 20,885 posts

All posts for July 2017

a word of encouragement

For whatever you're facing today...

Juleigh21

•7 years ago

7 Replies

Time for a wheelchair?

I guess I am approaching that dreaded time when I need a wheelchair to go anywhere in public. I am hoping it is just the heat causing my legs to not work. I...

I guess I am approaching that dreaded time when I need a wheelchair to go anywhe...

Amore55

•7 years ago

27 Replies

When to add Baclofen

For those of you who take Baclofen or other muscle relaxer, do you remember at what level of discomfort or pain from muscle spasms you asked for, or your...

For those of you who take Baclofen or other muscle relaxer, do you remember at w...

greaterexp

•7 years ago

47 Replies

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Suzy the Figure Skater with MS from R.I.

Hello. I would like to introduce myself. I have had ms since about age 28 @ 1989. I worked for 35 years going full steam ahead with lots of denial and wine...

Hello. I would like to introduce myself. I have had ms since about age 28 @ 19...

Laur3ncb1

•7 years ago

22 Replies

Ever have days like Sisyphus?

Struggle to get the boulder up the mountain only to have it roll back down...

erash

•7 years ago

9 Replies

MS 150

Hi Everyone, I am looking into riding the MS 150 in Cherry Hill. Does anyone have information on their experience? I just finished a Sprint Tri a few weekends...

Hi Everyone, I am looking into riding the MS 150 in Cherry Hill. Does anyone hav...

Mande1313

•7 years ago

2 Replies

Peripheral neuropathy and burning feet

Saw some comments a few days ago, and wanted to remind everyone to carefully read the literature that comes with all your drugs. For a couple of years, I have...

Saw some comments a few days ago, and wanted to remind everyone to carefully rea...

4fishylady

•7 years ago

4 Replies

Do you use humor to break the tension when maneuvering with your rollator/wheelchair/scooter (whatever!) in tight public spaces?

I am learning that humor goes a long way to diffuse the anxiety that other people have when they encounter a handicapped person maneuvering in their immediate...

I am learning that humor goes a long way to diffuse the anxiety that other peopl...

Nom_De_Plume

•7 years ago

71 Replies

Surgery - part 3

Surgery cancelled again. My surgeon was in an accident or something so he is in the hospital himself.

Surgery cancelled again. My surgeon was in an accident or something so he is in ...

Midgey_Midge06

•7 years ago

9 Replies

Good Motto

👍 I choose the last option!

erash

•7 years ago

5 Replies

Custom road bike

I saw this bike recently when I was driving as support for our group. I got so excited to think of riding something like this. This rider has some brain damage...

I saw this bike recently when I was driving as support for our group. I got so e...

CalfeeChick

CommunityAmbassador•7 years ago

12 Replies

Long term disability harassment

So, I've been physically unable to work for 16 months now. I am receiving LTD payments from my former employer. I get phone calls, letters, etc on a monthly...

So, I've been physically unable to work for 16 months now. I am receiving LTD pa...

tenessa24

•7 years ago

28 Replies

Good news.

Just received great news. Will be getting phone and internet service hooked up Tuesday. Life. Is good. I can be back online. Lol.

Just received great news. Will be getting phone and internet service hooked up T...

Doubled51

•7 years ago

15 Replies

Following on Jes's post

For me, this photo says it all...

erash

•7 years ago

14 Replies

With heat index over 105°, this must be looking like paradise to others besides myself!

Forget the Lego castle I want one of these right now! A little juice for flavoring and unlimited snow cones! Sorry jimeka I guess your going to have to settle...

Forget the Lego castle I want one of these right now! A little juice for flavori...

Allen5280

•7 years ago

6 Replies

Facing real

hi I'm rocky,desided to come out of my head and face the world.

1963trp

•7 years ago

15 Replies

Great news amazing blessings!

Have some awesome news! My federal disability has paid out! We received a payment with back pay this week. Bad news is my company will take all of it away. But...

Have some awesome news! My federal disability has paid out! We received a paymen...

rlh1974

•7 years ago

21 Replies

This is it

Well guys as promised it is official. I am not a MS patient. I don't have any debilitating diseases. I am suffering from an injury that occurred in childhood...

Well guys as promised it is official. I am not a MS patient. I don't have any de...

Fee09

•7 years ago

9 Replies

Last day

We finished in Malibu yesterday! My shirt says to "Follow me to Malibu!"

CalfeeChick

CommunityAmbassador•7 years ago

12 Replies

Handling comments

Good morning all. Had an experience yesterday that is still making me mad, could use some community insight...Went to a company wide meeting yesterday and a...

Good morning all. Had an experience yesterday that is still making me mad, could...

ylimem

•7 years ago

29 Replies

Lipoic Acid

Is anyone taking Lipoic Acid? If so, care to share your experience so far?

Corran731

•7 years ago

3 Replies

RESTLESS LEG SYNDROME

Hello Everyone. I haven't wrote in a long time. I wake up Depressed. I have restless leg syndrome. I sit at my Computer Desk with a Box under My Legs, but it's...

Hello Everyone. I haven't wrote in a long time. I wake up Depressed. I have rest...

Foots

•7 years ago

26 Replies

DO MRI STUDIES ACCURATELY REFLECT YOUR DISEASE STATUS?

I found a very interesting study done by Harvard University researchers who concluded that there is no link between clinical exams and MRIs in some MS...

I found a very interesting study done by Harvard University researchers who conc...

Sukie427

•7 years ago

12 Replies

THE EYES HAVE IT

Went to the opthamologist for my year checkup, and found out that the MonSter has done some damage to my optic nerve since last year, but thank goodness it was...

Went to the opthamologist for my year checkup, and found out that the MonSter ha...

Sukie427

•7 years ago

4 Replies

So true

I know funny stuff helps, but I am really depressed by all the events of this month. I am so tired of people telling me "don't worry, I am praying, and you...

I know funny stuff helps, but I am really depressed by all the events of this mo...

agapepilgrim

•7 years ago

11 Replies

An MS funny...

That really isn't that funny but oh so true!

Juleigh21

•7 years ago

15 Replies

Solumedrol

Hello all!!!!! Today I start 3 freaking days of steroids!!!! I hate steroids! They totally mess with my diabetes! The next 6 days of my blood sugars are going...

Hello all!!!!! Today I start 3 freaking days of steroids!!!! I hate steroids! Th...

rlh1974

•7 years ago

30 Replies

Funny but embarrassing

Hello all. Well yesterday I went to get pizza for dinner. The lady told me it was 635. I looked at my hand and said, "oh boy I don't have enough, let me go...

Hello all. Well yesterday I went to get pizza for dinner. The lady told me it w...

LissaH

•7 years ago

51 Replies

Day4

This father son duo sets up and takes down my tent ⛺️ every night. I'm Blessed. The younger one has cystic fibrosis. He's riding strong. Again proving life...

This father son duo sets up and takes down my tent ⛺️ every night. I'm Blessed. ...

CalfeeChick

CommunityAmbassador•7 years ago

8 Replies

Hot, humid and I couldn't resist this photo

😊

erash

•7 years ago

21 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for July 2017

a word of encouragement

Time for a wheelchair?

When to add Baclofen

Suzy the Figure Skater with MS from R.I.

Ever have days like Sisyphus?

MS 150

Peripheral neuropathy and burning feet

Do you use humor to break the tension when maneuvering with your rollator/wheelchair/scooter (whatever!) in tight public spaces?

Surgery - part 3

Good Motto

Custom road bike

Long term disability harassment

Good news.

Following on Jes's post

With heat index over 105°, this must be looking like paradise to others besides myself!

Facing real

Great news amazing blessings!

This is it

Last day

Handling comments

Lipoic Acid

RESTLESS LEG SYNDROME

DO MRI STUDIES ACCURATELY REFLECT YOUR DISEASE STATUS?

THE EYES HAVE IT

So true

An MS funny...

Solumedrol

Funny but embarrassing

Day4

Hot, humid and I couldn't resist this photo

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