I'll Run Again in Heaven

[scooterjon]

My name is Jon “Scooterjon” Wegner. In July of 1991, I was diagnosed with my MS.  I was 33 years old.  I’m nobody special. I’ve never done anything spectacular in my life.  I got my nickname because I now ride an electric scooter 100% of the time due to MS. My neurologist told me I have an MS lesion on my lower spinal cord. That lesion is affecting everything below my waist including standing, walking, balance, bladder and bowel. On top of that I have many other MS invisible symptoms.

Below is a list of my primary and secondary symptoms. My secondary symptoms are the direct result of my MS

Heat Intolerance/Fatigue

Bladder/Bowel

Balance/Foot Drop

Memory/Cognitive

Sleep/Pain

Numbness/Lhermitte's

Sex/Caregiving

Clonus/Spasticity

Osteoporosis/Pressure Points

Taste/Swallowing

Speech/Anxiety

Depression/Emotional

Vision/Optic Neuritis

Tooth Loss/Blood Clots

Dexterity/Handwriting

Exercise/Confidence

Disinhibition/Voice

Sounds/Migraines

[goatgal]

None of us are anybody special except where it counts, in heart and soul. There we ahave the capacity to be unique and truly very special. Our outside exterior package matters very little in the life given to us. Our value lies in how we interact and respond to those around us.

[agapepilgrim in reply to goatgal]

My problem, symptom, is loss of social boundaries. Even my grandson noticed and told me. The old me was socially correct; the MS me is a red neck who drinks wine out of the bottle (and greatly offends people). I forget my subject of talking about 3 words into a sentence. I have offended all my siblings but they do no accept that it it is due to 3/4 of right brain filled with lesions, and nerves are damaged and dont communicate to other nerves, hence my “stupidity” and lack of self control. So i mostly stay away from prople.

[scooterjon in reply to agapepilgrim]

Hi, isn't this a "fun" disease that we have? I told my wife this morning, from the waist up I look normal but my insides suck big time! Have your doctors explained what disinhibition is? That's one of my symptoms. When I'm around people I say what's on my mine and usually add some 'f" words. I swear a lot and often. I do a lot of crossword puzzles. I'll be looking for a word in the dictionary and by the time I get the dictionary open I forget the word I'm looking for! lol My lack of bowel control has made me a recluse. I stay in my apartment 24 hours a day. I have a big bedroom which has my bed, desk, TV, computer and bathroom 10 feet away. I don't need to go out anymore and get anxious about my rear end.

[Amore55]

These are very typical and such difficult things to deal with! I hope you find great support here at this forum. We are really just one big family who laugh with and at each other, love each other, and most importantly, we support each other and understand each other.

[hopeandgrace]

Welcome to the group. Thanks for sharing. I’m believing that I will run again in Heaven, too. I also don’t walk, have spasticity in my legs and use a wheelchair now for about the past 18 months. Hang in there! There is still hope and much joy in this life when we fight for it.

[Mayzee12]

I believe i will walk in heaven and much move!! Having love and being kind and always giving others a smile makes you special always remember that. I am so sorry you having so many symptoms . I have alot not all of the symptoms you have. I will pray for you.🙏🙏

[mrsmike9]

You have the biggest list of problems! So sorry!

[LovetoSalsa]

You are special. Don’t forget that….