MS,changes and Happy Sunday.

[jackiesj]

You all are such a delightful bunch of peeps. the happiest i feel is often right here..so thank you. ive always pulled myself back up but feel im loosing a battle with my family. Fatique expectations and a son who is a doctor not accepting a thing....Use to do it all...knew i was in trouble when i left a family thing for the car ages ago and he said.."well be that way".... why in this world is acceptance not there. i do not understand and the more i live the less i do....Question... am i suppose to take a mess of medications to please other people and "oh she looks fine" or do what i need to...(oh that was a bad question)...

Sunday, jj and the Lord. and her peeps.

[carolek572 CommunityAmbassador]

I don’t know the answer to your question, jackiesj . All that I know is that you cannot control what others do or think. 🤗

[Helpmeup]

So sorry you are dealing with this. All I can offer is to say that although your family may love you and attempt to be understanding and compassionate, only your fellow MSers can truly understand what you are going through. I have discovered that with my family as well. I know they love me and want to be sympathetic, but they just don't "get it" the way our MS buddies do.

You do what's right for you. As carole572 said, we cannot control what others think. Well said. Sending hugs. 🤗

[Amore55]

I can say unequivocally that one of the reasons that my ex-husband divorced me was because I was not able to stay at family events for more than an hour or so! He was a very good man, we have stayed great friends, and I am SO happy to say that the joke is on him because I am much healthier now than before!!! He has said well, gee, if only I had known…. Hah! Life is all about choices and you must make choices that are best for you and not others. If you need to be in the car while an event is happening, then that is fine. You don’t need to take medicine to make anyone else happy. Be good to yourself and be gentle with yourself. We all love you and support you. Kelly

[twooldcrows]

you have to take care of yourself even when others are questioning whether you have MS or not ...you have the right to do what it is that you believe in that is right for you unless is would harm you ...take care and be happy ...

[jackiesj in reply to twooldcrows]

it is very hard.

[NorasMom]

No advice, but I've discovered that the "harsh and critical" part of my family has been the most accepting of my issues. It's the "but we just have your best interests in mind" group that gets angry or tries arguing. Do what you need to do for yourself.

[sashaming1]

Do what your Neurologist (specializing in MS) says for MS diagnosis and necessary meds. Get an MRI and spinal tap for reasonable proof of MS (maybe also the McDonald tests). This should satisfy yourself (and all reasonable people) of the MS diagnosis.

[jackiesj in reply to sashaming1]

need to look up a mcdonalds test....love the name and a fav spot!😜😜

[sashaming1 in reply to sashaming1]

OK, McDonald Criteria!

[Greentime]

For some people, it is more about the inconvenience it is for them. 🙄 I am very sorry that you have to deal with this within your own family. 🤗

[jackiesj]

UPDATE,,,first i want to thank you all...it really helped me to continue on..everyone needs boundries and it is protective. i decided not to go to an event i know that id ask to leave half hour after i got there. yes concequences came and fallout but im still glad i stayed home and rested when i needed it.after a couple day i was sitting back up and i took my wheels outside in the sun. back to bed for a couple days hoping to see the sun again. keep hope..keep trying and i am grateful for you all....

[Greentime in reply to jackiesj]

I am so glad to hear this! Rest is such a game changer and when we need some, we need some!

[Lilian1209]

Bendiciones para ti. Mira entregale tus cargas a Dios confía en Él y te guiará por el mejor camino y tomar las decisiones correctas.

😉👍