Life can be crazy!: Hey everyone! I haven... - My MSAA Community

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Life can be crazy!

StacyHayward profile image
8 Replies

Hey everyone! I haven’t followed up since my last post about my CPAP experience. I have been reading your posts though and continually hope you all find answers.

If you remember, using a CPAP increased my apnea events significantly and left me sleep deprived to the point I couldn’t even walk. I did do a sleep study at a sleep center. It was supposed to be a split night, 1/2 without the CPAP and 1/2 with. I never even met the criteria to need one, so I quit the CPAP entirely.

The great news is my legs recovered fully. It took some time though. It shows how incredibly important sleep is!!

However my body is an attention seeker and I caught a cold and then entirely lost my voice. Everything was so tight from the roof of my mouth going down my throat it seemed paralyzed.

After lots of scans and tests, nothing could be found. I finally saw an ENT last week who used a camera and found thick callouses on my voice box! He said it’s from coughing so hard. Now I’m not supposed to talk or whisper for six weeks to let them heal.

it’s already been 30 days with no voice. It’s very isolating to not speak. But at least the ent said my nerves are fine so it’s not MS related. Every ER Dr wants to find a MS connection so it’s tricky.

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StacyHayward
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8 Replies
starlight5 profile image
starlight5

Six weeks without talking! I cant imagine. Hopefully all works out and you will have your voice back soon 🤞🙏 🤞

Great new that you no longer need the CPAP machine and your legs are doing so much better 🎉

twooldcrows profile image
twooldcrows

now this is a new one ...wow ...never heard of it ...i loose my voice alot ...didn't think to ask the doctor about it ...just thought it was from working outside cleaning up the yard from all of the storm damage ...thought is was from all the junk in the air from moving all the branches and stuff..dust and stuff ..i guess i should write down all the times now and on when i do loose it or well it is like if talked too much and was loosing the voice ..go luck so glad they found out why the cpap didn't work and made it worse...i use one have for several years...love and much happiness and to get to feeling back to yourself before the cpap machine use..take care and get some rest ...this thing about not talking for six weeks would be the pits ..wow...good luck doing this ...love and much happiness...i guess you could write alot of notes ...laughing is that okay or giggling ????

Greentime profile image
Greentime

This would be very hard for me. haha! 😆 But great about your legs! 😊

mrsmike9 profile image
mrsmike9

I think my family would love it if I lost my voice! I hope you heal quickly.

StacyHayward profile image
StacyHayward

our house is already so quiet! At least before I could break up the monotony!

Amore55 profile image
Amore55

You are a champion if you can go six weeks without talking! I don’t think I would make it one day. I’m glad you have your legs back.

StacyHayward profile image
StacyHayward in reply toAmore55

It’s a struggle but I’m falling into a rhythm!

CatsandCars profile image
CatsandCars

Wow, those must have been some coughs! I feel like you are great at seeing the right doctors to get correct answers! It's disheartening that they get it wrong so often, but I'm glad that you persisted and you'll be okay.

I think for me to be quiet that long, they would have to sedate me. 😉

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