What are your symptoms currently?

[Just_Jessy]

I'm 33 and my symptoms progress rapidly they are currently...Memory loss

Brain fog

Severe head pain constantly

Peripheral neuropathy

Progressive Vision loss

Bladder urgency

Uncontrollable constant shaking

Random muscle jerks

Numbness/tingling in limbs

Severe Muscle cramps

Random rashes

Shooting pain

Sharp side/back pain(MS hug)

Difficulty breathing

Muscles getting stiff/stuck in place

Muscle weakness

Unbalanced/bad coordination

Stomach ulcers(from medication)

...And so many more I just can't remember lol gotta love the Memory loss and brain fog.

[TheWallBumper]

I've also had a lot of those symptoms that felt like it happened all at once. I know everyone is different on symptoms and the severity of them so it's hard to tell you what it could be but I can tell you my diagnoses if that helps. MS has the common brain fog, vision changes, neuropathy and weakness of course but I experienced after my first diagnosed MS attack in 2015. I instantly had sharp stabbing pain on one side of my head (later diagnosed as trigeminal neuralgia), muscle spasms and numbness (in time got better with medication but returns everytime I get an infection of any kind), difficulty with speech, concentration, forgetfulness and couldn't remember people's names even. It was so hard going from working 60+ hours a week and dang good at my job to forgetting codes, phone numbers and names of people I worked with for years. Some of my symptoms got better with time or practice/therapy. It was and still is frustrating to deal with but I finally got to the time of just recognizing that no one is perfect, to laugh it off and enjoy life. I know that's not what you want to hear and at first I would of smacked someone for saying that but years later it clicked and changed my life.

[kerry0915]

So sorry for what you are going through. I have alot of those also but right now they are taking th back burner due to I have a broken leg. I broke it in November first part and still trying to get to normalcy. Doctors and Physical therapist say it is a long process even for someone that has other medcial problems like me with MS. The PT did tell me on one of my last visits they all felt I would never get out of my wheelchair but I did and I am walking -with a rollator . SLOW BUT STEADY Hang in there Kerry

[goatgal in reply to kerry0915]

Persistence pays! I fractured an ankle over 6 yrs ago; it will never be normal again. Though it took months to graduate from wheelchair to walker to cane, and I still have a cane always available just in case, we can regain a function we took for granted even after a slip go down. Never give up, have faith in your ability to recover, believe in possibility!

[whwiechm]

It's always so hard to distinguish MS problems from problems that may have a different source. MSW problems unfortunately don't usually go away. Right now, I think I have a sinus infection which is probably (?) not MS related.

My symptoms, from your list, include numbers 1, 2, 6, 9, 10, 17, and 18. In addition, I would include bowel difficulty.

[StacyHayward]

Got to love MS and its variations! Many symptoms come and go. My most consistent ones are fatigue, spasticity, nerve pain, and trouble walking.

But I have a plethora of other health problems complicating the MS. So it’s tricky navigating all of it together.

I try not to focus on each problem too much. It’s the current problem that gets my attention. Oddly, when new things creep up, other problems seem to mellow out a bit. Or I’m too distracted to notice!

[Petdog]

I'm so sorry you're going through this! I gone through this.I want to let you know that all these symptoms can be addressed. It takes time and a damn good doctor. First may I ask you, do you have an MS specialist as your neurologist?

[Just_Jessy in reply to Petdog]

I awaiting an appointment with one as i just switched. My neurologist sucked. It's a 3.5 month wait which sucks not being treated. Things continue to rapidly go downhill. Luckily I have my first pain management appointment in about 2 weeks. This indomethacin is killin me.

[Petdog in reply to Just_Jessy]

I am so glad you got an MS specialist. I went to a neurologist and it was fine as long as MS was asymptomatic and all she had to do was prescribe Copaxone at the time. When things got worse she told me I was just depressed. When I told her what I am supposed to do when things are getting worse she told me to pray. I thought I was going crazy. With the help of an amazing therapist, she questioned me about my team. I thought about it and fired them. I got an MS specialist who I attribute to saving my life.

He broke down each one of my symptoms which read like yours. On top of it all they recognized that I'm prone to infection, mainly UTI but others that exasperated things and he addressed that too. I added PT and OT. I'm doing great. I want to assure you that you will too. Thank goodness you got a way from the lousy neurologist. Your team right now is important. Also, make sure you have a good primary doctor because often we think everything is MS but sometimes it's other stuff that cause pseudo exasperations. I am older than you so I deal with arthritis for example which can feel like MS.

[Just_Jessy in reply to Petdog]

I absolutely love my PCP. He's wonderful and has sent in all of my referrals quickly and as urgent. He continues to fill my indomethacin prescription and my Omep. To counteract some of the side effects. I can't wait to get into pain management. The pain I deal with constantly with not even a min of relief is what drains me and depresses me the most. Nothing fully makes it go away and some days more often than not it's unbearable.

[bxrmom]

I have quite a few of these:

Brain fog, Head pain constantly lately which I think is related to my allergies and all the pollen currently.

Bladder urgency sometimes but Oxybutinin has helped but I find that around the time of my period it gets worse and then gets better afterwards.

I sometimes get the random muscle jerks, especially when I'm tired and trying to fall asleep. This happened before my MS dx in 2006.

I have the numbness/tingling in limbs. Some days are worse than others but I have not found a trigger to why.

I get the Severe Muscle cramps if I don't take my Baclofin on time. Haveing a reminder on my phone really helps with this.

I get the Muscles getting stiff/stuck in place when the weather is cold or the house is not warm enough. When my body warms up it seems to be less.

My muscle weakness is in my hands the worst and it seems to get worse all the time.

[wowzors77]

Hi,

I have a lot of these same symptoms and also had a hard time with pain management. I tried the medications they recommended but I found that they caused more fatigue and irritability. I recently tried the therapeutic cannabis program where I live and I have to say it has helped tremendously with a lot of my problems.

[Just_Jessy in reply to wowzors77]

I definitely might have to see if there is anything like that here. I know that's something that does help me some on the off chance I decide to partake lol.