MSA Awareness

[Scragger]

We were at the eye doctor yesterday when a proposed procedure for cataract and glaucoma was discussed for my wife. She has the tentative MSA diagnosis. Because her eye test was pretty good it was decided that we could safely postpone any procedure for 6 months while we waited to see how the MSA diagnosis progressed.

In anticipation of the procedure we had been given a hospital admittance form to complete. One of the questions was “have you been diagnosed with a stroke or TIA, MS or MND”. There was no mention of MSA. I know there are lots of rare neurological conditions but I wonder why the question could not have included “or any rare neurological condition”. To be fair there was a further question along the lines of “Is there anything else we should be aware of”?

It’s been a busy few days. At the sleep physician today, and he was aware of the MSA condition and we had mentioned this again in our discussions, his parting words included “good luck with the MS”. Was it a slip of tongue?

And finally a more sobering and realistic comment. I had to see my cardiologist today for review. I mentioned I was under the pump looking after my wife who was not well. He asked what was wrong and when I mentioned Multiple Symptom Atrophy, he responded immediately, saying that he was well aware of MSA and that some symptoms were much the same as MND. I know a little about MND symptoms with my father, brother and sister becoming victims. It won’t be easy for my wife in the coming months.

Kind regards to all who are battling and suffering the effects of MSA.

[FredaE]

ALWAYS use the full form Muliple System Atrophy. as you say there are far too many abbreviations with 'M' in

[thedjsupreme]

I wish your wife good luck in her battle. I believe there are a family of illnesses called "Parkinson’s plus" which msa fits in

[Photo1250]

We had the MS comment when leaving surgery with Adrienne. Immediately used full form and stressed it was quite different. Always use full form. Adrienne has Multiple System Atrophy. I'm never ill, but I'm the one with Glaucoma and Cataracts.

[jeaninemiller293]

My 68 year old Husband who suffered from muscle tiredness brought on by chronic fatigue in its early stages. Neurologists first had difficulty diagnosing it until multiple examinations indicated MSA, for which there was no known cure other than the prescription of levodopa medications, vitamins, and therapies. More advancements in breathing difficulties, before we made the decision to try different medications, which significantly enhanced his condition. He received Neuro X treatment for MSA at naturalherbscentre . com from the U.S approximately four months ago; since then, he sleeps well, works out frequently, and has become very active. it has improved his quality of life. .