RevReturns: Long story long made short... - Multiple System A...

Multiple System Atrophy Trust

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RevReturns

ReverendBadger profile image
19 Replies

Long story long made short. Rapid deterioration and then 17 days in hospice then discharged to nursing home where

I remain now and wheelchair bound.

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ReverendBadger profile image
ReverendBadger
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19 Replies
Monkeyfeet1 profile image
Monkeyfeet1

welcome back, Ken. I hope you’re comfortable xXx

ReverendBadger profile image
ReverendBadger in reply toMonkeyfeet1

Acceptably so,how are you ?

Monkeyfeet1 profile image
Monkeyfeet1 in reply toReverendBadger

Okay thanks xxx

esj20 profile image
esj20

very sorry to hear this.

Bloody MSA!

ReverendBadger profile image
ReverendBadger in reply toesj20

On the + no more putting up with the wife’s cooking !

esj20 profile image
esj20 in reply toReverendBadger

😀

Ruffner profile image
Ruffner

I've been wondering about you - miss your entertaining and insightful posts. I'm so sorry that you are going through this and hope that you are being well cared for.

ReverendBadger profile image
ReverendBadger in reply toRuffner

I have been here 4 months and still learning the ropes . The staff here are very nice for example after a recent Catheter change I haq 5 women checking the state of my foreskin. You couldn’t ask for more really , and only 1’545 a week

Yanno profile image
Yanno

Hello Ken, lovely to hear from you again. Great to hear you’re still seeing the positive side of life. Best wishes to Anne.

Take care, Ian

ReverendBadger profile image
ReverendBadger in reply toYanno

Thanks Ian. We will be at Tewkesbury.

thedjsupreme profile image
thedjsupreme

Sorry to hear this.

Paul_and_Sue_Wood profile image
Paul_and_Sue_Wood

Rev

Good to see you back and in a safe place.

Peace be with you.

Paul and Sue

ReverendBadger profile image
ReverendBadger in reply toPaul_and_Sue_Wood

Peace good peas not.

GreenJo profile image
GreenJo

So sorry to hear this - hope you've stabilised a bit for now

ReverendBadger profile image
ReverendBadger in reply toGreenJo

Not really, tremour muscle weakness swallowing fatigue all worse.PEG soon.

GreenJo profile image
GreenJo in reply toReverendBadger

Yes hellish disease. TC not so good either. Deteriorated a lot over Christmas - now on hyoscine driver and reduced feed and fluid. He's not in pain - small mercies

Derkie54 profile image
Derkie54

Welcome back, wondered where you had gone.

Could you get CHC funding to help with your care home fees ?

ReverendBadger profile image
ReverendBadger in reply toDerkie54

Yes chc awarded

thedjsupreme profile image
thedjsupreme

So sorry to hear this. Hope they keep you comfortable

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