Never ending problems!

[Bizzyissy]

…. And I’m back! After being told prob wasn’t MSA now back to possible! Was blue- lighted into hospital suspected TIA. Thankfully it wasn’t but admitted overnight due to falling in the toilet & bladder retention whilst I was there. orthostatic Hypotension has got worse despite being on medication, tremors a plenty, unsteady even though using crutches. A Nystagmus has also raised its head which increases the dizziness and nausea. CT still nil acute. Consultant I spoke to says he is going to speak to my neurologist for review as he is concerned about the latest issues. Very frustrating but I’m glad I stayed on here!

[Helenhooter]

Oh yes, keep fighting 👍💪😘

[Paul_and_Sue_Wood]

We all don't want to be here, but we are glad you've rejoined us.MSA does change the goals regularly to keep us all on our toes.

Keep a list of symptoms and issues along with medication and review regularly. Plan for all eventualities good or bad because if you don't those issues will sneak up on you.

Paul & Sue

[ReverendBadger]

That all sounds very familiar.Urinary problems often appear early with MSA, including the very unpleasant retention. Have you got a bladder PVR reading, anything well over 100ml is classic MSA symptom.

My hypotension didn't really respond to drugs either so I am on a high salt diet and enjoying crisps and salty french fries. BP still 90 -110 sys thougth

The challenge in coping with the problems gets harder every week with MSA. You should expect nothing less with this progressive debilitating disease. I have around 24 diffferent body systems in various states of malfunction.

However you are wrong about it being never ending, there is an end. I also keep telling my wife aka carer, when she complains that she didn't apply for the 24/7 job, I remind her that the position is only temporary.

My general advice is to never say no to any offer of help and try to get a referral to your local hospice asap, very helpful people with the right experience.

[Polesden11]

You're being very greedy having all those things going wrong at the moment same time!!! Hang on in there.

Sue x

[Monkeyfeet1]

I’m sorry you’re back. Thinking of you x