Symthom change!!!

I'm hoping someone has advice with a current problem my husband is having. When i get him up or he walks a short distance to the bathroom. He starts to clench his fist, shaking and his breathing is really shallow. When taken a pulse/oxygen from his finger its reading pulse of 27 and sats of 77%. His face is pale and his eyes are fixed with wide pupils.

The symthoms don't last long but they are alarming. I repeated call his name to get a response. He does come round and his readings do return to safer parameters. He is adamant he doesn't want to return to hospital. Bad experience on an resent admission for sepsis.

Is this a MSA advance symthom or is something else going on? Thank you in advance. Xx

[Courgettegrower]

Perhaps blood pressure problems? Get in touch with your MSA nurse.

[Hidden in reply to Courgettegrower]

Just had to call for a paramedic, his heart rate and oxygen were so low. Causing a blackout. They check every possibility. He's come round and is safely in his own bed. Refusing to go to hopital, what can you do? 🙄 X

[TK-67]

Mum has similar 'episodes' - did the paramedics check his BP when they came out? I now always think that when things happen, its because mum's brain can no longer deal with things happening. We had instances a couple of years ago of this happening when she couldn't control her body temperature, we ended up in hospital, sadly there is little they can do there, only hydrate, extra O2, and wait. Mum is adamant as well that she won't go to hospital after this experience. Bear in mind what is also going on in A&Es at the moment, it's our biggest dread, because of waiting times and the possibility we may not be able to be with her. It's awful that we have to consider this now. I hope he's settled and today is a better day.

[Hidden]

Definitely one for the MSA nurses. Kx good luck!🌈

[Diane831]

Definitely sounds like a BP issue. Is he getting enough fluids It can be hard to drink enough if swallowing is a problem. There will be a fact sheet on the MSA website and a chat with the MSA nurse Emma will perhaps give you some more pointers. It is so frightening isn’t it. Always making sure that there is a chair to sit on and lifting his legs as high as you can-onto another chair helped me if Geoff had an episode like this. I don’t think that it should be a hospital job unless he doesn’t come round quickly when he lies down or his legs are lifted. It is more a case of managing the risk in my opinion. We got a wheelchair that tilted back with elevated leg rests so that I could tilt him quite quickly when he went off his feet completely.

[Hidden in reply to Diane831]

Thank you for the information. I just wanted to know if the symptoms were linked to MSA or cardiovascular, eg MI or AF. The ECG did so a noisy trace that looked normal. We are now going to have to stop all walking, as it takes so much out of him. He can't walk any distance normally. At present he can't even move from bed to bathroom for example without an episode happening. It's taking time for him to recover from sepsis. We are now talking about community OT, Physio and any other areas as they arise. He was just managing to work on light duties but i think this is where he needs to stop.Kind Regards Sharon x

[Diane831]

A difficult time for you both. There is still time for some recovery after his sepsis, but the rule of thumb is that after an episode of ill health then the MSA progresses a bit and you don’t recover to quite the pre illness level.I hope things improve a little.

Diane