Recently lost My Alan

[Ruthi15]

Hi I recently lost my husband to MSA and was wondering what groups or people living in Scotland for me to talk to thanks in advance Ruth x

[Paul_and_Sue_Wood]

Ruth,

A loss is sad news all the time.

Reach out to MSA trust as they have group and lots of information and advice.

Paul

[Ruthi15 in reply to Paul_and_Sue_Wood]

Thanks

[Diane831]

Hi Ruth, I am so sorry that you have lost your husband recently. (It is just 2 years since I mine died.)I am sorry that I can’t help you with someone to talk to in Scotland. Has the MSA Trust nurse, Katie Rigg got any suggestions? Is there a carer organisation locally that might have some ideas?

Diane

[Ruthi15 in reply to Diane831]

Will contact the msa trust as would love to talk to someone who has been through my kind of journey x

[Hidden]

Hello, sorry to hear about your loss. It sounds like you might want to reflect on you and your husband's journey as a whole with MSA, with people who have been there. There isnt currently a system of 1to1 peer support, but its worth a chat with the MSA nurse.

There is an online group in Scotland that meets every few months. These may be a bit far apart for what your needs may be right now, and tend to focus on a range of issues for people at different stages. As a backup I'd suggest cruse bereavement has a range of supports including peer support groups: (which I realise might feel a bit too general).. crusescotland.org.uk/how-ca...

Kx

[Ruthi15 in reply to Hidden]

Thanks going to try and see what is out there I really think I would benefit from someone who has walked a bit in my shoes started counselling with the palliative care team but only once a month going away abroad for Christmas and new year as can’t face that right now xx

[Hidden]

Good on you, hope your time away is soothing. I meant to say, it's not everyone's cup of tea to bare their soul on the forum, and things may still be too raw, but if you ever feel like posting a couple of your reflections, I reckon you'll get a bunch of folk relating to what you're saying. xx

[Heronblue]

Hi Ruth, my husband has MSA-c and is currently doing ok but has progressed from walking unaided and driving in May this year to walking with a frame. I have met two lovely ladies through the disease and because they donated equipment to us, that their husbands used, sadly now both passed.We now try to meet up once a month usually in Edinburgh. You’d be welcome to join us if you would like to, I’ve made lovely new friends & support from them both.

[Ruthi15 in reply to Heronblue]

That would be lovely my email is [e-mail]