RIP Dad: My Dad took his last breath... - Multiple System A...

Multiple System Atrophy Trust

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RIP Dad

ZoeSweet7 profile image
23 Replies

My Dad took his last breath around 9.19pm. What an absolute rollercoaster of suffering and decline this has been for him. There was absolutely no let up for him and we had only got a CPap machine for him yesterday. He didn’t even get a chance to suppress any of the symptoms. 😭😭😭😭

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ZoeSweet7 profile image
ZoeSweet7
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23 Replies
Hellebelle profile image
Hellebelle

So sorry Zoe. At least he is now at peace, no more suffering. My dad is currently at the hospice and declining rapidly. I truly hate this condition.

Sending all my love to you and your family. Your dad was really lucky to have such a devoted daughter.

Helen xx

So sorry to hear your sad news Zoe

Tusker1953 profile image
Tusker1953

I'm so very sorry to hear your sad news. Your dad is at peace now. Best wishes to you. Jan.

phamwales profile image
phamwales

There are many of us here who feel deeply for you at this moment

If there is any comfort it’s that your dad is not suffering anymore

I hope family and friends will wrap a blanket of support around you for this next part of the journey

Take good care

chester2107 profile image
chester2107

So sorry to hear this , sending love , he is at peace now , even though you will all miss him x

Diane831 profile image
Diane831

So sorry to read about this. You really have been on a rapid and rough journey and you have obviously been doing everything in your power to get your Dad the help he needed.

You are going to miss him so much, but it sounds as if his MSA symptoms were such that his life wasn’t really enjoyable. Grieve his loss, and remember the man you loved before these troubles.

Diane

Madauntie profile image
Madauntie

Zoe my heart hurts for you. Knowing he is no longer suffering is a comfort but losing your dad is so hard on you. God Bless 🙏

Kiwimagic profile image
Kiwimagic

So very sad to hear this Zoe 😭 your father is at rest it’s the most horrific disease ever.

Please look after yourself and your family. I’m 10 weeks ahead of you it’s difficult but you will be ok.

Try and take comfort that he’s no longer suffering.

Please god they find a cure so that others don’t have to go through this.

Sending you a hug x

Daleston10 profile image
Daleston10

So very sorry for your loss deep condolences 💜💜

TK-67 profile image
TK-67

I'm so sorry to hear this, your love for him has shone through your posts. It's truly an awful disease. My mum is also in final stages after a re-diagnosis last August, she's had a rapid decline in the last week or so and is now not eating and just fading, we just hope we can keep her comfortable and calm with the help of a nursing home and hospice. It's so hard watching this happen to someone you love - make sure you look after yourself, you've been through a lot.

Trudy xxxx

ChocolatePot profile image
ChocolatePot

thinking of you and your family Zoe.

ZoeSweet7 profile image
ZoeSweet7

Thanks all. It all means so much. Xxx

So sorry for you loss I’m truly gutted for you 😢

Janeyl profile image
Janeyl

Oh Zoe: I am so sorry to hear this news. You have been his champion through the very difficult MSA path. Sending my love and deepest condolences. Jane x

Keycode profile image
Keycode

So sorry for your loss, it is such a horrible condition and heart breaking to watch those you love the most suffer every day. I know how painful it is as I lost my mum to this only 3 weeks ago. Try to take comfort in the fact that your dad is now at peace and no longer suffering. Thinking of you xx

ZoeSweet7 profile image
ZoeSweet7

Collecting his death certificate today and registering him. Planning the funeral and try to find out if/how up to date his will is if he even has one !!! He didn’t think he was going to die 😭😭😭😭😭

Kiwimagic profile image
Kiwimagic in reply toZoeSweet7

Take each step at a time ...... small little steps you will sort it out ... you poor love x hope someone is supporting you. X

Madauntie profile image
Madauntie

💔💔💔💔

heysunshine profile image
heysunshine

Zoe, I am very sorry to hear of your Dad's passing. Blessedly, he is at peace now and knew how much he was loved in this life.

My condolences to you and your family.

pamlake1 profile image
pamlake1

Zoe, condolences to you all.

ZoeSweet7 profile image
ZoeSweet7

Type 2 respiratory failure for the ultimate cause of Death for Dad. I will never forget seeing him at the hospital when they managed to get the co2 out of his system and he breathed on his own (they thought they’d got him stable). I went into see him, he was red in the face, sat up, but staring into space completely out of it, not talking or responding to anyone. Then I watched his eyes roll back and he went again. Mask went back on, but his lungs had completely given up, he could no longer do it for himself and the machine wasn’t doing much either other than prolonging something he was never going to return from.

16 hours of Dad battling on, he took his last breath at 9.19pm. Saddest thing of all, he wasn’t ready to die. He didn’t think he was going to die.

I miss him so much 😭😭😭

Kiwimagic profile image
Kiwimagic

Zoe

it’s heartbreaking you had to see your dad go through this, it’s so very raw for you.

MSA is a beast of a disease.

You will miss him forever.

He is at peace.

Sending you lots of hugs prayers and peace

X x

2georgepheobe profile image
2georgepheobe

He's at peace now💜RIP

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