Hot spot on foot ??: hi folks. I hope everyone is... - MPN Voice

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Hot spot on foot ??

LittleLuna profile image
8 Replies

hi folks.

I hope everyone is having a great weekend.

Little question-has anyone experienced, what I can only describe as a hot spot on top of my right foot.

Not there all the time, regularly feel flash of heat in same area, no redness, just like someone put hot pad on it. Quite annoying to be honest.

PV related or just plain weird?

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LittleLuna profile image
LittleLuna
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8 Replies
EPguy profile image
EPguy

I've had precisely that. I liked it some times since I could warm up the other foot with it. Usually while in bed, but more rare since I've been on Besremi.

LittleLuna profile image
LittleLuna in reply toEPguy

thanks EPguy. Good to know I am not imagining it.

hunter5582 profile image
hunter5582

That sounds like a possible PV microvascular symptom. Suggest you run this by your MPN care team.

LittleLuna profile image
LittleLuna in reply tohunter5582

thanks Hunter. Have specialist appointment in couple of weeks so will add this to the list

dancingfiend profile image
dancingfiend

Not just a hot spot. More of a sensation of burning over half the top of the left foot. Combined with feeling like someone hit the top of the foot (including toes) with a hammer! Doesn’t stop me sleeping, thank goodness. Nerve conduction study did not apparently show damage. Two months on allopurinol for suspected gout only served to make matters worse. Getting shoes on is a painful process. Very strange. Specialists seem to be mystified. I have ET JAK2.

EPguy profile image
EPguy in reply todancingfiend

I think the hot foot and the pain foot may be different or at least ranges of the condition. What I and apparently LittleLuna have is not painful, rather pure heat. I know it was hot since it could heat up the other foot. But as Hunter says, any of these if they persist are worth discussing with Dr. I failed to do so but on IFN it seems to have stopped.

dancingfiend profile image
dancingfiend in reply toEPguy

Yes, thank you. Obviously, with reviews now 3 months apart, pain levels alter and need reporting. Good point.

william-Indo profile image
william-Indo

I experienced with this pain too.Taken pregabalin (Lyrica) for 2 months and it gone till now

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