Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for June 2022

Are there any older people with Essential thrombocythemia and Jak2 not taking Hydroxyurea or other similar drug?

Essential thrombocythemia and medications

Essential thrombocythemia and medications

•2 years ago

Effective INF Dose Part 2, more considerations, research, and Dr vs patient wishes

My last two doses of Bes were 70-80 mcg. In my recent Hem visit Dr was most displeased that I had cut it from 100 (actually 110) prior to that without his...

My last two doses of Bes were 70-80 mcg. In my recent Hem visit Dr was most di...

•2 years ago

Living with PV

Hi I'm new here and I've just been diagnosed with PV and taking hydroxycarbamide, 1 tablet per day 2 at weekends along with allopurinol for the gout symptoms...

Hi I'm new here and I've just been diagnosed with PV and taking hydroxycarbamid...

•2 years ago

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URGENT - Frustration with Haematologist over Urgent Question

Please may I ask for urgent advice, as I am so upset, anxious and frustrated. I have just tried to speak to my haematologist and was told they are in clinic...

Please may I ask for urgent advice, as I am so upset, anxious and frustrated. I...

•2 years ago

Questions about switching from hydroxyurea to interferon

I am ET Jak 2 positive, age 71. I have been taking a low-dose, 500 mg of hydroxyurea every three days, for the last year and prior to that I took the same...

I am ET Jak 2 positive, age 71. I have been taking a low-dose, 500 mg of hydro...

•2 years ago

Update 6.5

Based on the recent increase in HCT (05/11=46.3%) we decided to up the Besremi dose from 110mcg to 150mcg. First 150mcg dose was 05/25. HCT on 05/27 was...

Based on the recent increase in HCT (05/11=46.3%) we decided to up the Besremi d...

•2 years ago

ET Diagnostic Criteria

Hi, I have polycythemia vera- diagnosed about a year and half ago and being treated with pegasys. My brother in law is seeing a hematologist for rising...

Hi, I have polycythemia vera- diagnosed about a year and half ago and being trea...

•2 years ago

lactase dehydrogenase

Did you all have this blood test. I have looked at my blood tests for 2 weeks time and it is included prior to my appointment so I think my consultant is being...

Did you all have this blood test. I have looked at my blood tests for 2 weeks ti...

•2 years ago

Tired and itchy on Pegasys

Been on Peginterferon just over 2 months. Initially felt great and very energetic. The last 10 days I have been feeling rather energy lees and my skin is dry...

Been on Peginterferon just over 2 months. Initially felt great and very energeti...

•2 years ago

HCT responses on PEG and Besremi

In recent posts it seems Bes is weak in reducing HCT for many while it cuts the other counts ok. I'm in CHR so far on low doses (all blood counts ok) but WBC...

In recent posts it seems Bes is weak in reducing HCT for many while it cuts the ...

•2 years ago

Et headache dizziness

Hi , is everyone having headaches every day and so dizzy like wobbly feeling… is this related to ET????

Hi , is everyone having headaches every day and so dizzy like wobbly feeling… is...

•2 years ago

More hair loss questions!

Having just read the latest hair loss discussion I’m really worried. I have been on hydroxycarbemide for 2 months now. I’ve ET and platelets were 689 initially...

Having just read the latest hair loss discussion I’m really worried. I have been...

•2 years ago

Besremi 1 yr update

Hi, Time for a update as it has been 1 year since I fully transitioned of Hydroxy onto Besremi. So far the experience has been very positive with no adverse...

Hi, Time for a update as it has been 1 year since I fully transitioned of Hydrox...

•2 years ago

Does being jak2 negative pretty much rule out mpn?

Hi. I posted on my thread about waiting tine for jak2 calr etc and my appointment for results from the consultant is 29th June but I telephoned yesterday to...

Hi. I posted on my thread about waiting tine for jak2 calr etc and my appointmen...

•2 years ago

Interesting article on blood production and aging

https://www.theguardian.com/science/2022/jun/01/research-may-reveal-why-people-can-suddenly-become-frail-in-their-70s?utm_term=629835c3d7c196a2260c6308f2a070f8&

https://www.theguardian.com/science/2022/jun/01/research-may-reveal-why-people-c...

•2 years ago

Besremi - CBC and CMP after the 7th dose kept at 200mcg

Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 7th dose (results of 5/25/2022; 1st dose...

Just want to share my Besremi experience for anything to be learned from it. Abo...

•2 years ago

Aspirin report

Friends, I apologize for the typo in my earlier post of today. The aspirin report was issued on April 26, 2022, not on April 26, 2002. I acknowledge and thank...

Friends, I apologize for the typo in my earlier post of today. The aspirin repor...

•2 years ago

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