Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for July 2020

Anyone with ET that has progressed to MF?

My symptoms have seemed to have progressed - more bone pain, night sweats, bloating, nausea, high fatigue and flue like symptoms that come and go during the...

My symptoms have seemed to have progressed - more bone pain, night sweats, bloat...

JenngeetingR828

•4 years ago

MPN QoL Study Group MPN & COVID-19 Survey STILL OPEN

During the last few months we have been asking you to complete a number of surveys regarding COVID-19 and its impact on MPN patients, your response, as always,...

During the last few months we have been asking you to complete a number of surve...

Partner•4 years ago

First Trip to Shops Since Early March

So I decided to go to the shops today Though a tad apprehensive I have to say Was I feeling all at sea needlessly? Well I guess i'll just have to wait and...

So I decided to go to the shops today Though a tad apprehensive I have to say Wa...

•4 years ago

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Platelet number fluctuations

Does anyone see their platelet numbers fluctuate? Like jump down or up 100k in just 3 weeks with ET or any MPN?? Also, does anyone have high ESR SED with ET?...

Does anyone see their platelet numbers fluctuate? Like jump down or up 100k in j...

•4 years ago

Travel Insurance and ET

Has anybody tried to get travel insurance with an ET diagnosis. If so, have they imposed an excess on the premium and how much ?

Has anybody tried to get travel insurance with an ET diagnosis. If so, have they...

•4 years ago

MPNU/ET/Aspirin

Hello all It’s been a while since my last communication...hope everyone is doing well with all this added challenge of covid. I was diagnosed as MPNU from the...

Hello all It’s been a while since my last communication...hope everyone is doing...

•4 years ago

COVID update, re: blood clots

This may not be so much new news for many but thought I would pass it along all the same.....good news is perhaps if you're already on aspirin, you may be in a...

This may not be so much new news for many but thought I would pass it along all ...

•4 years ago

Peg, interferon

Hi all started peg about 10 weeks ago, previous i was on interferon 2a doing fine, then was stopped hospital could not get supply of 2a,,just after a bit of...

Hi all started peg about 10 weeks ago, previous i was on interferon 2a doing fin...

•4 years ago

The Shielder’s Dilemma

Given our recent discussions about trust, control and children returning to school ... well I guess this sums it up. :)))

Given our recent discussions about trust, control and children returning to scho...

•4 years ago

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