Posts - MPN Voice | HealthUnlocked

MPN Voice

10,438 members • 14,387 posts

All posts for June 2019

Travel Insurance

I'm sure this has been asked before Just been diagnosed with mild MF the day I retired. I have booked a holiday and will need to get Travel insurance. any...

I'm sure this has been asked before Just been diagnosed with mild MF the day I r...

•5 years ago

Splenomegaly

Hello all. After several years of being misdiagnosed with Costochondritis, my GP recently discovered that I have an enlarged spleen and iron deficiency...

Hello all. After several years of being misdiagnosed with Costochondritis, my G...

•5 years ago

Von willebrand

I had my routine check up today. I was diagnosed with e.t jak 2 positive 2 years ago. My platelet count has went over a million. The clinic called back after...

I had my routine check up today. I was diagnosed with e.t jak 2 positive 2 years...

•5 years ago

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Good news!

So I went to the hematologist today and for the first time in years my platelets were at normal levels. But my anemia is getting worse. He took me off...

So I went to the hematologist today and for the first time in years my platelets...

•5 years ago

Stress/fibromialgia

In reply to the question regarding stress. Have been unable to locate post. Yes, stress certainly adds to our condition. Have read several articles relating...

In reply to the question regarding stress. Have been unable to locate post. Ye...

•5 years ago

Diagnosis for insurance

Hi all I've been trying to sort insurance for my holiday. I explained I have Essential thrombocytosis jak2 +. I tried to explain it comes under the unbrella of...

Hi all I've been trying to sort insurance for my holiday. I explained I have Ess...

•5 years ago

Hydro and MF

I am trying to find the post someone wrote about Hydroxyurea inducing progression to MF. Could you please repost it for me?

I am trying to find the post someone wrote about Hydroxyurea inducing progressio...

•5 years ago

Taking Vitamin D and myleofibrosis

Being a regular reader of a science magazine I came across a study done (I think in US) saying there was evidence that vitamin D appeared to escalate PV to...

Being a regular reader of a science magazine I came across a study done (I think...

•5 years ago

Inspire by Living!

https://www.pvreporter.com/ten-year-anniversary-living-with-polycythemia-vera-blood-cancer/ Best, David - PV Reporter

https://www.pvreporter.com/ten-year-anniversary-living-with-polycythemia-vera-bl...

•5 years ago

first appointment at a Spanish hospital

i will have my first appointment on Thursday at Elche hospital now i have my Spanish healthcare .. will see how things chamgr from UK

i will have my first appointment on Thursday at Elche hospital now i have my Spa...

•5 years ago

Red blotches

Hi all, I have et jak 2+ for last 7 years no probs but have started getting roundish red blotches on my skin. Two under my arm, one the size of a 50p and the...

Hi all, I have et jak 2+ for last 7 years no probs but have started getting roun...

•5 years ago

Confused

Results of my Bone Marrow Biopsy/Aspiration came back confirming thrombocytosis (mildly elevated platelets) and iron deficiency. I’m scheduled for. (2) Iron...

Results of my Bone Marrow Biopsy/Aspiration came back confirming thrombocytosis ...

•5 years ago

Et

I have ET for 10 years been on interferon 2b,been to hospital to pick meds up today and they said dont do 2b anymore,so my new med is interferon 2a any advice...

I have ET for 10 years been on interferon 2b,been to hospital to pick meds up to...

•5 years ago

What next?

Saw the Cardiologist today. He suspects Atrial Fibrillation and now I’m wearing a heart monitor for the next 2 weeks. Then he will do an ultrasound. I had...

Saw the Cardiologist today. He suspects Atrial Fibrillation and now I’m wearing ...

•5 years ago

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