Posts - MPN Voice | HealthUnlocked

MPN Voice

10,440 members • 14,387 posts

All posts for May 2019

AXSL MUTATION

Hi Folks, I keep up to speed with the Forum, I don't often post, when I do, I have always had kind informative replies... I joined you folk last year in March,...

Hi Folks, I keep up to speed with the Forum, I don't often post, when I do, I ha...

•5 years ago

ET-symptom of abnormal bleeding.

Hi everyone. I would like to know exactly what the abnormal bleeding symptom means. In other words, where does it occur ? Can it happen internally. I...

Hi everyone. I would like to know exactly what the abnormal bleeding symptom mea...

•5 years ago

Ruxolitanib

POST PV MF My husband started ruxolitanib end of February two weeks later he's developed really angry spots on his neck below his ears on both sides. He's...

POST PV MF My husband started ruxolitanib end of February two weeks later he's d...

•5 years ago

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Jak2 burden

Hi What is jak2+ mutant burden 56% mean I have no clue.

Hi What is jak2+ mutant burden 56% mean I have no clue.

•5 years ago

PV diagnosis

Hi! My name is Pauline. I was diagnosed with PV Jak 2- 1 year ago. I'm on phlebotomy as needed and baby aspirin daily. My question; Does anyone get a...

Hi! My name is Pauline. I was diagnosed with PV Jak 2- 1 year ago. I'm on ph...

•5 years ago

Opinion s please following my hematologist apt today.

Hi all Im ET jak2 2 +. I went for my 3 month review with the nurse not the hematologist today and my platlets have gone up a bit they were 471 three months...

Hi all Im ET jak2 2 +. I went for my 3 month review with the nurse not the hema...

•5 years ago

Health insurance for pre-existing conditions (UK)

I have health insurance to help pay for extras (they accept pre-existing conditions). Very accepting of a wide range of complementary and alternative...

I have health insurance to help pay for extras (they accept pre-existing conditi...

ilovetoastwithbutter

•5 years ago

One year on. and still happy🌞

A whole year has passed since my lovely wife had her operation to remove her ruptured spleen during the night, in France. In the year she has been in hospital...

A whole year has passed since my lovely wife had her operation to remove her rup...

•5 years ago

NEW AUSSIE MPN FORUM LAUNCHED TODAY - MPN-MATE.COM

Hey guys... :-) It's been a while coming to fruition, however, as of today www.mpn-mate.com has now become a reality, and it is a purpose built...

Hey guys... :-) It's been a while coming to fruition, however, as of today www....

•5 years ago

HU and foot ulcers

I sm on s high dose of HU and have had ET for 13 years. Just developing an ulcer on my ankle. Any help or advice would be appreciated. Thanks.

I sm on s high dose of HU and have had ET for 13 years. Just developing an ulcer...

•5 years ago

Leg ulcers and Hu. Help?

After 13 years with ET, I have an ulcer on my ankle developing.

After 13 years with ET, I have an ulcer on my ankle developing.

•5 years ago

Hydroxy

Thank you all so much for your replies, I feel so much better now. From a vanity point are you all still able to have your hair coloured ?

Thank you all so much for your replies, I feel so much better now. From a vanit...

•5 years ago

Sad day...progressed to MF

I went to my doctor yesterday and I have now progressed to MF. I am not prone to depression but this is more than I can bare. The doctor referred me to a SCT...

I went to my doctor yesterday and I have now progressed to MF. I am not prone to...

•5 years ago

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