Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for February 2019

Anti inflammatory diet

I’ve mentioned this before but has anyone seen an update? https://www.curetoday.com/articles/investigating-diet-and-nutritions-effects-on-mpns I’m intrigued to...

I’ve mentioned this before but has anyone seen an update? https://www.curetoday....

•5 years ago

Et

I got diagnosed with et over a week ago I've read this is a rare blood cancer is this is true I've had 7 operations all from sticky blood and clotting I've...

I got diagnosed with et over a week ago I've read this is a rare blood cancer is...

•5 years ago

Et

I got diagnosed with et last week I've read this is a rare blood cancer is this correct cause my consultant says we don't like to say cancer but we like to say...

I got diagnosed with et last week I've read this is a rare blood cancer is this ...

•5 years ago

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Aspirin

I’ve was diagnosed with ET five years ago and one of my daily meds is 75mg aspirin. I’ve had problems with my stomach recently and had to have a colonoscopy...

I’ve was diagnosed with ET five years ago and one of my daily meds is 75mg aspir...

•5 years ago

Blood pressure

Hi, I have pcv and taking hydroxycarbamide and aspirin, plus I have a venesection every 3 months. I always seem to have high blood pressure, which no one...

Hi, I have pcv and taking hydroxycarbamide and aspirin, plus I have a venesecti...

•5 years ago

Polycythemia is it safe to fly with this condition?

Hello, I’m Alexandra smith from UK and I am writing this on behalf of my boyfriend. He had a stroke last year and found out it was from having Polycythemia...

Hello, I’m Alexandra smith from UK and I am writing this on behalf of my boyfrie...

•5 years ago

Medical Exemption Certificate

Just a reminder to those with MPNs who would normally pay for prescriptions. Once you are prescribed any medication for your MPN, even low dose aspirin, you...

Just a reminder to those with MPNs who would normally pay for prescriptions. Onc...

•5 years ago

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Orange juice and teeth

Hi, I must share with you what I have learned recently. After my two colds in the space of a month, I started vitamins and orange juice every morning. I drink...

Hi, I must share with you what I have learned recently. After my two colds in th...

•5 years ago

Forums

Hi I was wondering if anyone has the dates for any forums in 2019. Hoping there is going to be one in Wales or somewhere near. Here's hoping.

Hi I was wondering if anyone has the dates for any forums in 2019. Hoping there ...

•5 years ago

BMB and Trephine - Feaful ( New member)

Hi all, Feeling anxious and concerned. Been advised I have Thrombocytosis (ET). and although platelets have remained above normal level they're not too...

Hi all, Feeling anxious and concerned. Been advised I have Thrombocytosis (ET)....

•5 years ago

Waiting for lab results for jak2 mutation been 9 days heard it could be 3 weeks. Feel like I'm going crazy.

My name is Jamie , I have never been on a board before. I have always been healthy all my life I have never even had surgery or any kind of procedure. I've...

My name is Jamie , I have never been on a board before. I have always been healt...

•5 years ago

Knee surgery

Husband has Pv/mpn takes Ruxolitinib and baby aspirin daily. He is under going total knee replacement surgery and has been told to stop taking his aspirin a...

Husband has Pv/mpn takes Ruxolitinib and baby aspirin daily. He is under going t...

•5 years ago

ET progression

Does progression of ET come with the length of time you've had it or is it related to the platelets going higher? I'm trying to fit all the pieces together to...

Does progression of ET come with the length of time you've had it or is it relat...

•5 years ago

How to change my user name.

How can I change my user name, please?

How can I change my user name, please?

•5 years ago

PV and Vasculitis ?

Is there anyone here with PV, jak 2 positive and also having Vasculitis ? Will be helpful to hear from them .......

Is there anyone here with PV, jak 2 positive and also having Vasculitis ? Will b...

•5 years ago

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Treatment options

I am due to start treatment in two weeks. I have ET with Calr positive. My plateletsare 1645.. which is high. Not had other issues. I take aspirin. I have a...

I am due to start treatment in two weeks. I have ET with Calr positive. My plat...

•5 years ago

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