Does progression of ET come with the length of time you've had it or is it related to the platelets going higher? I'm trying to fit all the pieces together to understand the condition. The hematology nurse told me the risk of developing leukemia is a little higher because I'm Jak2+ but reassuringly said it only happens to a very low percentage of people- she didn't say if risk of leukemia comes from the medication or the condition itself I've heard both?
By progression I guess they mean more symptoms associated with the condition like fatigue, leg pain, hot flushes headaches etc. My thoughts initially was these symptoms were side effects of the medications. But I have all of these symptoms and bad hip and lower back pain and at the moment I'm only taking aspirin? Maybe my aches and pains are related to other things.