Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for October 2012

Has anyone experienced a remission in ET with interferon and how long did it last?

•12 years ago

does anyone have polycythaemia ?

hi im looking for some support or help i am 30 yr old male i have had empysema now for 7 years but only got told about it in 2010 and now ive also been...

hi im looking for some support or help i am 30 yr old male i have had empysema n...

•12 years ago

help PLEASE

hi im looking for some support or help i am 30 yr old male i have had empysema now for 7 years but only got told about it in 2010 and now ive also been...

hi im looking for some support or help i am 30 yr old male i have had empysema n...

•12 years ago

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Does any one take Hydroxcarbamide with Anagrelide.

Is any one taking a cocktai of two drugs my Haematologist has suggested I mix in Anagrelide with the hydroxycarbamide that I have been taking for six...

Is any one taking a cocktai of two drugs my Haematologist has suggested I mix ...

•12 years ago

Is anyone else with PV only taking aspirin and having venesections?

I was diagnosed nearly 8 years ago with PV and apart from awful fatigue, headaches, some blurred vision occasional itching,night sweats and restless achy legs,...

I was diagnosed nearly 8 years ago with PV and apart from awful fatigue, headach...

•12 years ago

Tiredness: this is a long story but think some may want to pursue the same medical line.

2012: I'm 51. Diagnosed with ET in 1995; know I had it in 1986. My son was born in 1990: felt exhausted, horrendous & about 100 from that day on. Before...

2012: I'm 51. Diagnosed with ET in 1995; know I had it in 1986. My son was bor...

•12 years ago

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NOT SURE IF I HAVE ASKED THIS ALREADY, BUT DOES ANYONE ELSE HAVE PARKINSON'S AND ET? IT WOULD BE GOOD TO HEAR FROM YOU.

•12 years ago

Does anyone take pain meds Or B 12 shots for energy? I have ET.

I have pain in my feet, my joints and sometimes stabbing headaches like nails going into my head. I'm only 39 years old but feel like I'm a 80. I can hardly...

I have pain in my feet, my joints and sometimes stabbing headaches like nails go...

•12 years ago

Mylofibrosis

Hi everyone. Three weeks ago my husband diagnosed with mylofibrosis after PRV for six years. However his marrow sample was sent to another hospital for...

Hi everyone. Three weeks ago my husband diagnosed with mylofibrosis after PRV f...

•12 years ago

I have PV Do I need the flu Jab

Hi I have PV and take (Clopidogrel and hydracarbimide daily). After reading the link here I contacted my GP with regards to the flu jab, especially since I'm...

Hi I have PV and take (Clopidogrel and hydracarbimide daily). After reading the ...

•12 years ago

HYDROXYCARBOMIDE - SO TIRED!

Hi to all, Just thought I would drop a line to ask if anyone taking this drug suffers with any tiredness or headaces? I have had ET now for 16 years and...

Hi to all, Just thought I would drop a line to ask if anyone taking this drug...

•12 years ago

I have ET and have minor symptoms,however my consultant said he will put me on anelgaride probably in the near future. Will I feel unwell ?

•12 years ago

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