Posts - MPN Voice | HealthUnlocked

MPN Voice

10,647 members • 14,730 posts

All posts for July 2012

Has anyone out there been fortunate enough to get on to the JAKAFI trials........

•12 years ago

Have you been diagnosed with Fibromyalgia?

•12 years ago

is anyone out there using interferon? If so, any experiences with it would be welcome to learn about

•12 years ago

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My story

I was diagnosed with E.T. last November (2011) & was told by my Haematologist that it would be a "walk in the park". That I could go into his waiting room &...

I was diagnosed with E.T. last November (2011) & was told by my Haematologist th...

•12 years ago

Are you affected by itching?How you treat it?

•12 years ago

Which is your opinion about influence of drinking water to keep under control PV?

•12 years ago

What does everyone think about BMBs - are they necessary for all?

I was diagnosed with ET in 2009. Platelets are persistently around 600 and I am JAK2 positive. WBC also top limit side of norm range. Treatment is aspirin,...

I was diagnosed with ET in 2009. Platelets are persistently around 600 and I am ...

•12 years ago

Is there anyone else being treated with Interferon, especially Pegasus?

How long has it taken for you to settle on the treatment?

How long has it taken for you to settle on the treatment?

•12 years ago

Consultants - are there any and is it more beneficial to find one who specialises in MPD's?

•12 years ago

ET - what symptoms do you have ?

•12 years ago

Do most/all ET patients have feelings/senstions in their fingers, the section between the very tip and first knuckle?

am trying to find a good descriptive term for the pain/sensation I have in my fingers (the tips not joint and it's not really an ache). Someone mentioned a...

am trying to find a good descriptive term for the pain/sensation I have in my fi...

•12 years ago

Iwas diagnosed with PV then MF 8 years ago. had bonemarrow transplant 2006 now have AML, anyone similar

•12 years ago

Has anyone else been diagnosed jak2 negative?

I was diagnosed with ET in 2001 with high platelets over 600 and put on clopidogrel. Last year the consultant decided that since I was jak2 neg he discharged...

I was diagnosed with ET in 2001 with high platelets over 600 and put on clopidog...

•12 years ago

Who is able to do exercise with PRV, would love some advice.

•12 years ago

Informal Glasgow meetup?

Are there any other MPN'ers based in Scotland who would be interested in a meetup in Glasgow ?

Are there any other MPN'ers based in Scotland who would be interested in a meetu...

•12 years ago

Meeting other people with MPDs at forums

Last week I represented MPD Voice at the Edinburgh patients' forum, and I met some lovely people. Unfortunately due to the adverse weather conditions, which...

Last week I represented MPD Voice at the Edinburgh patients' forum, and I met so...

Partner•12 years ago

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