Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,447 members • 66,491 posts

All posts for January 2018

Please help

Hello everyone i was wondering if there is any advice for me as i have been sweating badly for while now including walking to the shop in snowy weather and...

Hello everyone i was wondering if there is any advice for me as i have been swea...

Sarjaychi

•6 years ago

18 Replies

Very high CRP and ESR

Hi all I had been feeling unwell for about 4 days and knew I needed antibiotics but put off seeing my GP until after I had my planned appointment for extensive...

Hi all I had been feeling unwell for about 4 days and knew I needed antibiotics ...

Queencara78

•6 years ago

4 Replies

Hi all New Member

Hello everyone This is my first ever post on any site and we'll it's not just me who is suffering. Crumbling spine Severe spinal stenosis neck and lower......

Hello everyone This is my first ever post on any site and we'll it's not just me...

Tezzaa

•6 years ago

7 Replies

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Trying Hemp Cannabinoid.. For Pain

I have found no relief from strong prescribed Dr's painkillers. I have yet to see a Rhumotology consultant. I was only diagnosed December just gone. My...

I have found no relief from strong prescribed Dr's painkillers. I have yet to se...

Cats65

•6 years ago

35 Replies

Hosp visit

Well been confirmed today by rhemo .he said ppl get better from fibro i dont know anyone that has .he gave me sleepin tabs and said sleep may help me .go back...

Well been confirmed today by rhemo .he said ppl get better from fibro i dont kno...

Patches12

•6 years ago

6 Replies

2 days into giving up smoking

So today is day 2 I'm think I'm doing good all day yesterday I had 1 gag and the inhaler thing to help me so it's going good so far lol xx

So today is day 2 I'm think I'm doing good all day yesterday I had 1 gag and the...

Louise-heather

•6 years ago

13 Replies

Trying to find out more about my condition

Can anyone please recommend any books on coping with Complex Regionsl Pain Syndrome and Cebtral Nervous System Hypersensitivity Disorder

Can anyone please recommend any books on coping with Complex Regionsl Pain Syndr...

Ireneshepherd

•6 years ago

2 Replies

Please can anyone help. New doc medication removed, nothing to replace 4 months into a flare & I'm worse than I was on month 3 thank you xx

OMG for the second time I have been writing on here to reach out for help. It takes me ages to write & for the 2nd time, after its taking me about an hour to...

OMG for the second time I have been writing on here to reach out for help. It ta...

RCooper

•6 years ago

5 Replies

Esa appeal fail applies again still messing me about

Hi I'm back again we'll still not had a penny in 9 months had to apply for esa again due to tribunal fail I have wrote to the judge to ask for a 2 no tier...

Hi I'm back again we'll still not had a penny in 9 months had to apply for esa a...

Jan-bell

•6 years ago

8 Replies

CB ESA

Hello, I hope someone can help me I'm so very confused. I receive CB ESA £109 per week I receive 2 premiums £62.45 £15.90 I also receive an occupational...

Hello, I hope someone can help me I'm so very confused. I receive CB ESA £109 p...

fjh29

•6 years ago

27 Replies

Acute fever after having warm bath or shower

Hi everyone I'm feeling quite desperate as we all do from time to time for answers or people to understand us or just support. Lately I've noticed after a...

Hi everyone I'm feeling quite desperate as we all do from time to time for answ...

Sabberz_Yaqqerz

•6 years ago

11 Replies

Struggling with Fatigue

I’m really struggling with the fatigue that goes along with my pain. It makes me feel so ill. I seem to be able to semi function for a few days then it all...

I’m really struggling with the fatigue that goes along with my pain. It makes me...

mcglada0

•6 years ago

13 Replies

annoyed and confused

Just had my PIP appeal tribunal rejected and was basically called a liar by the panel but yet on the letter they stated that they agree I have fibromyalgia but...

Just had my PIP appeal tribunal rejected and was basically called a liar by the ...

AppleFanBoy82

•6 years ago

7 Replies

Chance to get your PIP experiences heard......Debate on PIP at HoC

Laura Pidcock MP @LauraPidcockMP Delighted to secure a Westminster Hall debate on Personal Independence Payments (PIP) next Wed 31/1. As debate is focusing...

Laura Pidcock MP @LauraPidcockMP Delighted to secure a Westminster Hall debat...

Bananas5

•6 years ago

5 Replies

Amitryptiline and ventricular arrythmia

I have had fms for at least 10 years and take high doses of both amitryptiline and gabapentin. I get breathless so easily,even getting into bed! My heart races...

I have had fms for at least 10 years and take high doses of both amitryptiline a...

sannyboyle

•6 years ago

10 Replies

Has anyone heard from Blue52

Blue52 is on here most days. I have missed her posts and wondered if anyone has heard from her. I know we all have a few days when we haven't got any energy to...

Blue52 is on here most days. I have missed her posts and wondered if anyone has ...

Golfer15

•6 years ago

16 Replies

Phantom limb pain

I was in a motorcycle accident which has left me with a paralysed right arm and lung I’m suffering with the most horrendous phantom limb pain which no drugs...

I was in a motorcycle accident which has left me with a paralysed right arm and ...

Neevellongbottim

•6 years ago

2 Replies

Fibromyalgia

Hello everyone,new to this group doctors appointment today but haven't got a clue what to say to him I'm suffering with depression and most symptoms of...

Hello everyone,new to this group doctors appointment today but haven't got a clu...

Scott4630

•6 years ago

7 Replies

Is NHS causing Addiction by its Negligence of the Muscuskeletal diagnosis ?

I believe NHS ought to get its act to gather re: way it treats the muscuskeletal via independent physios & practitioners who are not the best medically...

I believe NHS ought to get its act to gather re: way it treats the muscuskeletal...

skybluepink

•6 years ago

8 Replies

Newbie!

Hello, new to this forum! I got diagnosed with Fibro about a year ago. I have also got under-active thyroid and coeliac disease and have had Anorexia for...

Hello, new to this forum! I got diagnosed with Fibro about a year ago. I have al...

Bellerin

•6 years ago

1 Reply

ESA

I have sent my Mandatory Reconsideration already with a complaint about the lies in the HC worker's report but when they sent the Medical Report I noticed more...

I have sent my Mandatory Reconsideration already with a complaint about the lies...

Johnyhasgone

•6 years ago

18 Replies

Excitement in hospital

My youngest who is 27 and has special needs broke her femur last Monday so has been on a ward with several ladies with dementia. Life is never dull on the ward...

My youngest who is 27 and has special needs broke her femur last Monday so has b...

rebelist45

•6 years ago

1 Reply

Hi I was wondering if there is people here under 21, and what changes are they having to make ? Any help or suggestions ? Thank you

Young people (under 21) out there can you help with what changes that have taken place effecting your life style ? Thank you

Young people (under 21) out there can you help with what changes that have take...

lindsey65

•6 years ago

7 Replies

Petition: Introduce a Workability law; Companies must provide home based jobs for disabled people

Hi Everyone! :) Due to a range of disabilities, 18 per cent of working age adults are disabled (Source: Scope https://www.scope.org.uk/) and a number of this...

Hi Everyone! :) Due to a range of disabilities, 18 per cent of working age adul...

Mdaisy

•6 years ago

11 Replies

Constant Thick Mucus in Throat and Nose. GP don't help me. Feels serious but they are not taking me serious. Feeling like there is no hope.

Since getting Fibromyalgia and Diabetes (MY THIRD YEAR FOR BOTH) I have had a constant dry mouth and nose, I went to GP told me It was...

Since getting Fibromyalgia and Diabetes (MY THIRD YEAR FOR BOTH) I have had a co...

D1gD33per

•6 years ago

36 Replies

Pip appeal

Hi all. I'm Sian my husband Michael has won his appeal After 14 months . He suffers with mental health problems and very bad anxiety. He can't go out on his...

Hi all. I'm Sian my husband Michael has won his appeal After 14 months . He s...

Sian46

•6 years ago

2 Replies

About me

Hi I'm Kellie I'm 44 year's old I am a mum of five and my daughter gave me a beautiful grandson on the 1st of September 2017 I love animals I have 4 🐕 2 🐈...

Hi I'm Kellie I'm 44 year's old I am a mum of five and my daughter gave me a bea...

kellie2273

•6 years ago

9 Replies

Nothing important really.

Feeling a tad low, just fancy chatting to people who understand how difficult things are when you have fibro. Been an up and down year. Don't particularly...

Feeling a tad low, just fancy chatting to people who understand how difficult th...

CushMonkey

•6 years ago

12 Replies

Visit to Pain Clinuc

Well I went along to Pain Clinic today to see if the pain management course is for me. I must say that I am quietly optimistic that they might help me to...

Well I went along to Pain Clinic today to see if the pain management course is f...

mcglada0

•6 years ago

31 Replies

Why

Why do my Doctors in Wales keep telling me they do not believe in Fibromyalgia. I was living in Scotland when I was diagnosed by a Specialist. It has made me...

Why do my Doctors in Wales keep telling me they do not believe in Fibromyalgia. ...

gillianwilhelm

•6 years ago

10 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for January 2018

Please help

Very high CRP and ESR

Hi all New Member

Trying Hemp Cannabinoid.. For Pain

Hosp visit

2 days into giving up smoking

Trying to find out more about my condition

Please can anyone help. New doc medication removed, nothing to replace 4 months into a flare & I'm worse than I was on month 3 thank you xx

Esa appeal fail applies again still messing me about

CB ESA

Acute fever after having warm bath or shower

Struggling with Fatigue

annoyed and confused

Chance to get your PIP experiences heard......Debate on PIP at HoC

Amitryptiline and ventricular arrythmia

Has anyone heard from Blue52

Phantom limb pain

Fibromyalgia

Is NHS causing Addiction by its Negligence of the Muscuskeletal diagnosis ?

Newbie!

ESA

Excitement in hospital

Hi I was wondering if there is people here under 21, and what changes are they having to make ? Any help or suggestions ? Thank you

Petition: Introduce a Workability law; Companies must provide home based jobs for disabled people

Constant Thick Mucus in Throat and Nose. GP don't help me. Feels serious but they are not taking me serious. Feeling like there is no hope.

Pip appeal

About me

Nothing important really.

Visit to Pain Clinuc

Why

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