Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,469 members • 66,515 posts

All posts for January 2018

Fibromyalgia support, updates and breakthroughs

I was diagnosed with fibromyalgia in 1990/91. This was before it was taken seriously, many people had never even heard the word. It was a time when it was...

I was diagnosed with fibromyalgia in 1990/91. This was before it was taken seri...

allisonloveslife

•6 years ago

1 Reply

New diagnosis

Hello. Today I was diagnosed with fibromyalgia. It ha been building up for years now. I am in constant pain and cramp and headaches. I feel like I'm totally...

Hello. Today I was diagnosed with fibromyalgia. It ha been building up for yea...

nicola2305

•6 years ago

3 Replies

Annoyed to say the least😡

Tambrox here hi, I have not worked since August 2017 during this time I have applied for both ESA and PIP. I have appealed and been refused ESA and now...

Tambrox here hi, I have not worked since August 2017 during this time I have app...

Tambrox

•6 years ago

6 Replies

Want to take advantage of all our features? Just log in!

New and confused.

hi All, im not sure I belong here, it was a passing comment by my Doc, but as all other avenues have closed, im sorta hoping I can maybe find answers here....

hi All, im not sure I belong here, it was a passing comment by my Doc, but as al...

jebus3rd

•6 years ago

22 Replies

Pip assessment

Hi. Does anyone know how many people who ask for a mandatory reassessment end up worse off by losing points instead of getting more?

Hi. Does anyone know how many people who ask for a mandatory reassessment end up...

Ellenlow18

•6 years ago

17 Replies

Fluoxetine, depression, unemployment

Hello Not too sure how to start the post but here it goes... It seems like my world gone upside down in the last couple of months. My work has been extremely...

Hello Not too sure how to start the post but here it goes... It seems like my w...

Simmeke83

•6 years ago

6 Replies

D-Ribose

Does anyone rate D-Ribose for helping with fatigue? If so in what form - powder or tablet? Thanks in advance.

Does anyone rate D-Ribose for helping with fatigue? If so in what form - powder ...

Zootle

•6 years ago

3 Replies

Duloxetine and extreme tiredness

I've been taking Duloxetine for two weeks now. One 30mg a night (due to go up to two a night for two weeks then three a night for two weeks!) and I don't know...

I've been taking Duloxetine for two weeks now. One 30mg a night (due to go up to...

Emma16

•6 years ago

7 Replies

Petition to Jeremy Hunt: Provide funding for research into Fibromyalgia

In the UK they are currently approximately 3 million people living with fibromyalgia in the UK alone, between 2.9 and 4.7% of the population worldwide....

In the UK they are currently approximately 3 million people living with fibromya...

Mdaisy

•6 years ago

49 Replies

Pain Clinic

Hi everyone and I hope you are all as well as can be in this cold January morning. Just wanted to say that I am going for an initial appointment at the pain...

Hi everyone and I hope you are all as well as can be in this cold January mornin...

mcglada0

•6 years ago

5 Replies

Recently diagnosed.

Hi all, I was diagnosed with Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis 6 years ago and diagnosed with Fibromyalgia yesterday. My pain is badly...

Hi all, I was diagnosed with Chronic Fatigue Syndrome/ Myalgic Encephalomyeliti...

chronicallyfabulous

•6 years ago

47 Replies

Fibro foot pain - shoes, meds, and swimming

Foot pain has been with for the last 4 years of fibro. I went to a podiatrist and she thought the bottem of my feet were just one of my pain spots. Not...

Foot pain has been with for the last 4 years of fibro. I went to a podiatrist an...

Laurel-martin42

•6 years ago

5 Replies

Failed PIP

Well the brown envelope arrived today far quicker than expected. Nill points for everything and full of a lot of lies. I was kinda expecting it to be honest...

Well the brown envelope arrived today far quicker than expected. Nill points fo...

S840

•6 years ago

34 Replies

New here

Hi i am new here.i have fibromyalgia for a year now.and spinal stenosis for 4 years as well as many illnesses.i am here to chat to people with fibromyalgia..i...

Hi i am new here.i have fibromyalgia for a year now.and spinal stenosis for 4 ye...

Hidden

•6 years ago

7 Replies

Sick paper advice please

Hi , ive been on long term sick since last September and recently been too ill to drive to drs with no family etc to go for me and I ve just realised im 2...

Hi , ive been on long term sick since last September and recently been too ill t...

wiiliamsa

•6 years ago

8 Replies

DWP letter arrived today regarding my PIP

The DWP sent me a letter at the end of November 2017 saying that my DLA would be stopping and did I want to claim PIP. I sent for the form and had a month to...

The DWP sent me a letter at the end of November 2017 saying that my DLA would be...

Hidden

•6 years ago

53 Replies

Needing some talking therapy

I have had such a bad time over the last few years but particularly the last 6 months. I currently live in Edinburgh and I am looking for a therapist who...

I have had such a bad time over the last few years but particularly the last 6 m...

nikki56

•6 years ago

5 Replies

Trouble accepting Duloxetine

I take low dose Mst I’m always in pain and in my case I also have an autonomic disease that wreaks havoc with very high and low BP . I’m very nervous after...

I take low dose Mst I’m always in pain and in my case I also have an autonomic d...

marouska-10

•6 years ago

2 Replies

amitriptyline 10 mg withdrawal cold turkey after 13 days and now i have intrusive thoughts has anyone else had this

Hi my name is Katie , I was put on amitriptyline 10mg for back problems 3 years ago but it was causing me horrible side affects so the hospital told me to...

Hi my name is Katie , I was put on amitriptyline 10mg for back problems 3 years...

kat2803

•6 years ago

8 Replies

Continuing fatigue

I was diagnosed with fibromyalgia 12 years ago and was medically retired from work.I have also got chronic kidney disease and vascualties so no feelling in my...

I was diagnosed with fibromyalgia 12 years ago and was medically retired from wo...

pancho676

•6 years ago

1 Reply

ESA Assessment

I have just had my ESA Assessment and reply came taking me off the Support Group after being on it for a year. In the Assessment report by the HCP worker was...

I have just had my ESA Assessment and reply came taking me off the Support Group...

Johnyhasgone

•6 years ago

15 Replies

Help with parking

I have recently been diagnosed fibromyalgia having suffered for many years with symptoms but didn't know what was wrong. I am married and don't work, my...

I have recently been diagnosed fibromyalgia having suffered for many years with ...

Supersonicson

•6 years ago

9 Replies

Bummer

Hi everyone, Can i ask if anyone on this site have problems with stinging ,burning feeling on there Bottom, Im finding this problem unbearable, Cant sit on it...

Hi everyone, Can i ask if anyone on this site have problems with stinging ,burni...

Fibromepainless

•6 years ago

22 Replies

Rotator Cuff

Has anyone got Rotator Cuff Tear and Carpel Tunnel

Hidden

•6 years ago

5 Replies

Hey :)

Hello, This is my first post to the site. I do read the daily posts from a quiet distance and find it comforting having a familiar subject of discussion. For...

Hello, This is my first post to the site. I do read the daily posts from a quie...

Hidden

•6 years ago

10 Replies

fibro friend

what can i do to cope with the fatigue and continue to work full time ,as i have to take so many days off

what can i do to cope with the fatigue and continue to work full time ,as i have...

gothicmum

•6 years ago

1 Reply

fibro friend

hi guys im 56 and live in wolverhampton and i was diagnosed with fibromyalgia last year after a few years of being tested for everything under the sun. i feel...

hi guys im 56 and live in wolverhampton and i was diagnosed with fibromyalgia la...

gothicmum

•6 years ago

13 Replies

Our Stories

Hi guys, I am a 20 year old journalism student from Worcester and I have suffered with fibromyalgia for four years now. As a journalist, I would like to use...

Hi guys, I am a 20 year old journalism student from Worcester and I have suffer...

MissTurquand

•6 years ago

3 Replies

This may help clear that mental fog and give some pain relief.

I have been diagnosed fibromyalgia 25 years plus. Approx three months ago I started taking New Zealand green mussel supplement. I didn't think anything would...

I have been diagnosed fibromyalgia 25 years plus. Approx three months ago I star...

hilarydm

•6 years ago

6 Replies

My mam

Hi guys well Iam a full time care assistant have been for over 5 years..but my mam baffles me...had issues with depression ect when i was young so..talking 20...

Hi guys well Iam a full time care assistant have been for over 5 years..but my m...

Ali1234567

•6 years ago

1 Reply

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for January 2018

Fibromyalgia support, updates and breakthroughs

New diagnosis

Annoyed to say the least😡

New and confused.

Pip assessment

Fluoxetine, depression, unemployment

D-Ribose

Duloxetine and extreme tiredness

Petition to Jeremy Hunt: Provide funding for research into Fibromyalgia

Pain Clinic

Recently diagnosed.

Fibro foot pain - shoes, meds, and swimming

Failed PIP

New here

Sick paper advice please

DWP letter arrived today regarding my PIP

Needing some talking therapy

Trouble accepting Duloxetine

amitriptyline 10 mg withdrawal cold turkey after 13 days and now i have intrusive thoughts has anyone else had this

Continuing fatigue

ESA Assessment

Help with parking

Bummer

Rotator Cuff

Hey :)

fibro friend

fibro friend

Our Stories

This may help clear that mental fog and give some pain relief.

My mam

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