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Fibromyalgia Action UK
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Fibromyalgia

Hello everyone,new to this group doctors appointment today but haven't got a clue what to say to him I'm suffering with depression and most symptoms of fibromyalgia I'm not one for complaining to my gp was wondering if anyone had an advice I've been going to the gps for a while now I was diagnosed with hand arm vibrations syndrome in 2014 but they make you feel it's in my head

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Hi Scott, I too was back and forth at the doctor's for a long time (4-5 years) and after numerous tests (including CT scan) was told they could find nothing wrong other than slight Vit D deficiency. Fibro was never mentioned, I was told I probably had a weird form of migraine but it was also hinted at that it was all in my head (no pun intended) but I knew in my heart I was not imagining these symptoms. Like you I did my own research and came across fibro and I was gobsmacked when I could literally tick off every symptom listed. So I wrote down all my symptoms, printed off the information I had found so I could cross reference them and I showed them to my GP. It was hard for him to ignore especially as the info I had was from he NHS Choices website and as all other possible conditions had already been ruled out, he agreed to refer me to a Rheumatologist who eventually diagnosed fibro. Good luck and let us know how you get on. Take care. x

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Thanks ramjets I'll keep you all informed as to what he says hopefully get this sort sooner rather than later

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Welcome to the FMAUK Community Scott4630 ! :)

I am sorry to hear your GP is being dismissive of your symptoms, you may need to consider seeing another GP about a referral to a Rheumatologist or writing a letter of complaint to your practice manager. It is difficult as Ramjets has mentioned for some to get some healthcare professionals to listen to your symptoms but please do keep trying to get the help and diagnosis you need. These symptoms are not 'all in your head' and try not to let anyone make you think they are!

FMAUK offer to send a medical pack to your GP Practice and if you wish to do this you can do so via this link;

fmauk.org/information-packs...

As a newbie to the community I have noticed this post is not locked to this community. If you wish to do this please find all the information you need below;

healthunlocked.com/fibromya...

I sincerely wish you all the best in your quest to get a diagnosis

All the best

Emma :)

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Hun write it all down before you go so you dont forget to tell your gp important things, apart from your hand/arm diagnosis list other things that affect your daily life and sleep pattern, IF gp thinks its fibro then ask for referal to a rheumatologist for a deffinate..

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When I first saw rheumy I had a timeline of the symptoms - i.e. when they first started and how long and when the next symptoms appeared. i.e. the first symptoms for me was losing my grip in my hand, then stiffness, a few months later my balance started going and fatigue. Rheumy said it was really helpful. (not that I got a diagnosis though!!!) but apparently consultants like a timeline of symptoms - it makes it clearer for them and helps them rule other things out.

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Hi there, Scott4630 I just wanted to wish you a very warm welcome to the group :) I hope your Doctors appointment went ok for you and you came away with the help and understanding you where hoping for.

Momo

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Doctor has put me mirtazapine and sent me for blood tests to rule out whatever I mentioned rheumatology and he said no basically what for the blood test results still non the wiser

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