Fibromyalgia Action UK
41,173 members53,265 posts


Hello, new to this forum!

I got diagnosed with Fibro about a year ago. I have also got under-active thyroid and coeliac disease and have had Anorexia for nearly 20 years

Before my diagnosis, I had never heard of Fibro and I struggle to find much information about it, and how to cope with it. I am hoping that some members could help with that :) I originally went to my GP because I was having so much joint pain, so she sent me to a Rheumatologist and that's when I was diagnosed.

I guess what I am really asking is does it get worse? My pain seems to have got worse ten-fold since I got diagnosed. The Rheumatologist suggested I take a painkiller that also was a mild anti-depressant (sorry cannot remember the name) but I refused to take it as it has a link to a gain in weight or increase of appetite (my anorexia) but he didn't suggest anything else. He said to try and get more sleep, but I sleep terribly, just cannot drift off at all (I'm lucky if I get a few hours a night) and I can't seem to find anything that will help. I had also been referred to a Neurologist as my GP wants to check my pain isn't nerve-related.

I had heard that some people took Cannabis oil for Fibro and wondering if anyone on here could give me some advice for what I could try. Thank you very much for taking the time to read my post and look forward to any suggestions.

1 Reply

Hello Bellerin welcome. I am sure people on here will be giving you lots of help, and once you find your way around it is and excellent site, for all sorts of problems related to fibro. It has been a life saver for me x

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